"Hi
My sleep clinic discharged me, saying they were happy I was self-managing. Roll on a decade and the cardiologists taking care of me were very unimpressed and I was re-enrolled. I expect remote monitoring with current generation Resmed…"
Sleep Apnoea Forum Bringing Help + Support to the Patient
Take Action for Sleep Apnoea Please
**IMPORTANT REQUEST**
ng the comparatively low awareness of OSA there is, both among the general public as well as healthcare professionals. It also asks them to take appropriate action to draw attention to OSA in governments and parliaments across the UK.
Even if you don't have Sleep Apnoea, please fill it in and share this important action.
Thank you!
Here's the link to the form www.blf.org.uk/osa-action
Views: 561
Replies to This Discussion
-
Permalink Reply by Gary Pearson on
-
Job done!
-
Permalink Reply by Kath Hope on
-
Great work Gary. Have been busy sending the link to all my social media sites. Please everyone consider hitting the Facebook, Twitter + other Share Buttons to get this viral.
-
Permalink Reply by Ian Adamson on
-
Just filled it in, only takes a minute!
-
Permalink Reply by Bill Thomson on
-
Sent it yesterday, got a reply from David Liddington MP's office a couple of hours later saying he had written to the Dept of Health.
-
-
Wow, that's brilliant news Bill and the first I've heard of a response. This is very encouraging, and I would urge everyone to pass the link to all their family and friends.
Bill Thomson said:Sent it yesterday, got a reply from David Liddington MP's office a couple of hours later saying he had written to the Dept of Health.
-
-
Just heard of another person who has received an email back from her local MSP, Mr Mike MacKenzie who is pleased to support this.
-
-
Hi,
I wrote a paragraph about my experiences of OSA to my MP, and appended the British Lung Foundation's form letter. I received a prompt reply through the post (attached).
Jonathan.
- Attachments:
-
-
GlendaJackson.png, 42 KB
-
-
-
Great news Jonathan and thanks for letting us know. Can others let us know too if they get any feedback? Still waiting for mine here in Hull
-
-
Hi Kath
I recieved a letter from Karl Turner the MP for Hull East Costituency to inform me has written a letter to the Secretary of State For Health in support. Letter came end of last week so I am sure yours will follow soon as we have the same MP.
-
-
Hmm.... how come you got a letter before me? He'd better send me one as well
Ian Adamson said:Hi Kath
I recieved a letter from Karl Turner the MP for Hull East Costituency to inform me has written a letter to the Secretary of State For Health in support. Letter came end of last week so I am sure yours will follow soon as we have the same MP.
-
Permalink Reply by Darryl Milligan on
-
I just received a letter from Angela Eagle MP, with a copy of the letter she sent to "The Secretary of State for Health" Jeremy Hunt.
Kath, I have emailed you a copy of them.
About
Sleep Apnoea Forum
New to the Sleep Apnoea Forum?
1. Stop by our Sleep Apnoea Welcome Center to introduce yourself to the SleepGuide community.
2. Start a New Topic of Conversation.
3. Post your photos - of yourself, your old CPAP machine, your new CPAP machine, your pet, something about you!
Interested in advertising, have a problem or need to contact us? Click the Report an Issue page.
Latest Activity
"Hi Jonathan,
Thanks again for the info. My cpap *should* be monitored by the NHS though I haven’t had any contact from them since pre-covid. I checked out the link you gave to access extra data and I think that’s going to be…"
"Hi
I have the ResMed Airsense 10 Autoset (APAP). It's monitored remotely by my NHS sleep clinic and I believe they can make changes to the settings. I don't know whether they are notified if I make changes, nor whether they…"
"Hi Jonathan,
Thanks for the reply. I'd say that I'm fairly technical. I have the ResMed Airsense 10 Elite machine. I've discovered that I can upload data wirelessly from my machine and having lowered the pressure by…"
"Hi
You don't say how technical you are, or what sort of machine you use. However https://www.sleephq.com/ has software which allows you to upload data from compatible machines, and analyse your sleep "score", including a…"
air bubbles after weight loss
Hi,I've been on Mounjaro for about 3 months now, not primarily for weight loss, but I have lost weight around my face and neck. I've noticed that I am increasingly getting air bubbles in my mouth which of course is disturbing my sleep (and my…See More
Micro plastics risks
I was reading an article in the I newspaper today written by a journalist who had her blood tested for micro plastics and was shocked by the results.…See More
job with the charity
Was wondering if there might be a job for me with Hope2Sleep?(I also just asked this of a group by mistake)See More
For Sale - Ventura Full Total Face CPAP Mask
I’m selling an Ventura Full Total Face CPAP Mask Large and two spare liners. I bought it new from the Hope2Sleep shop, but it is not suitable for me. Only used for about two weeks so I have washed it thoroughly. Because of this, it is very much…See More
"I put in a claim for PIP which was denied and now I am over 66 and on pension I tried for AA. Denied again.I have other health conditions ( Diverticular disease and Bile Acid Malabsorbtion ) which I consider hard to live with and they refused all of…"
"No personal experience, but CPAP.com review of AirMini
The AirMini runs at about 30 decibels, which is about the same sound level as a whispered conversation. For comparison, full-sized CPAPs tend to run around 26-28 decibels. Due to their…"
ResMed AirMini for travel
I am considering either buying or renting an AirMini for a forthcoming holiday this month where I will be sharing a twin room. I have read that they’re quite noisy and I don’t want to waste my money on either rental or purchase if the noise level…See More
"Hi, I use a ResMed F20 and had the same issue with the silicone full face mask causing red marks and soreness on my nose bridge. I switched over to the Airtouch memory foam full face masks which are expensive and not supplied by the NHS, but the…"
"It's very much still relevant and we're getting closer to have them manufactured and has been no easy challenge. In fact we were speaking with the company working with us on this only yesterday. If you're not on our newsletter list…"
"I expect others may have responded by now, but I use the Fitlife full face mask. I kept getting a hard lump on my nose when first starting out & it got so bad that I ended up buying my own masks as my clinic would only give the Fitlife to new…"
© 2025 Created by The SleepGuide Crew.
Powered by
