"Just to tidy this up, I finally had an in-person review by my sleep clinic yesterday, who agreed the ResMed AirSense 10 was "wheezy" and replaced the machine."
Sleep Apnoea Forum Bringing Help + Support to the Patient
Welcome to our Forum - Feel Free to Introduce Yourself Here.
Welcome to the Hope2SleepGuide Forum, which is a service run by the Hope2Sleep Charity founded by Kath Hope with a marvellous team of trustees and volunteers.
Kath herself has severe sleep apnoea and hypoventilation/hypercapnia, and has used CPAP for several years and is now on non-invasive ventilation. Our trustees and volunteers are all either sufferers of sleep disordered breathing or clinicians/medics working in this field, and most importantly, we are all passionate in supporting (with empathy) others and raising awareness to help people live healthier and more energised lives.
Whilst we do not give medical advice, more often than not, with support, tips and knowledge, people can overcome any problems experienced with our therapy, and there is a whole page dedicated to this on the website http://www.hope2sleep.co.uk/tips-for-problems-sleeping-with-cpap-or...
Please come and join us, and don’t feel obligated to use your ‘real’ name if you prefer to remain anonymous as this is a public forum. Don’t be shy in posting and sharing, as we’re all in this together and to help each other.
Best Wishes for good sleep!
Kath
Views: 13000
Replies to This Discussion
-
Permalink Reply by Kath Hope on
-
Great to hear you're making good progress Steve
Steve Dobson said:Hi everyone.
New to this but already getting there I think!
I have found CPAPCentral in Brisbane to be very helpful indeed - they are associated with the Queensland Sleep Clinic next door at the Mater Private Clinic - the process was very simple and easy.
No trouble getting used to wearing the equipment (nasal pillows) which is great news - given the size of the nose, not having any soreness is a bonus LOL!
I've got the software and I'm trying to fathom it one bit at a time. It seems to tell me that the leakage is mixed - some nights none at all, on odd occasions it has on average been 12-15% for the whole night. That certainly messes up my figures!
Hope to chat and share notes as we go!
Steve
-
Permalink Reply by Terry Vella on
-
Steve, welcome from Melbourne, the most important number in the data is your AHI (Apnea Hypoapnea Index) this is how many times you stop breathing on average per hour for 10 secs or more, you want it to be below 5. At you sleep study you get a figure which determines your severity and pressure settings. 0-5 is normal, 5-15 is mild, 15-30 is is moderate and 30+ is servere.
Masks leaks are not to bad, you will some if you move or toss and turn.
Steve Dobson said:Hi everyone.
New to this but already getting there I think!
I have found CPAPCentral in Brisbane to be very helpful indeed - they are associated with the Queensland Sleep Clinic next door at the Mater Private Clinic - the process was very simple and easy.
No trouble getting used to wearing the equipment (nasal pillows) which is great news - given the size of the nose, not having any soreness is a bonus LOL!
I've got the software and I'm trying to fathom it one bit at a time. It seems to tell me that the leakage is mixed - some nights none at all, on odd occasions it has on average been 12-15% for the whole night. That certainly messes up my figures!
Hope to chat and share notes as we go!
Steve
-
Permalink Reply by Wanda Polk on
-
Hi Deborah,
Welcome! I am excited that you are here. Next week, I will be insurance eligible to use the Eson Nasal Mask, I am excited about the possibility that it can alleviate some of my nose issues. BTW, I live in the US.
Deborah Wainwright said:Ha, sorry, I meant having a daughter results in a lack of sleep for me! She doesn't have any problems!
Kath Hope said:Have you ever had your daughter tested Debi? I've had my son tested for the same reasons as your daughter, plus lots of brain confusion. He came up with a low AHI of 6.8 and obviously a slim 17 year old isn't a candidate for CPAP, although he probably will get worse as he gets older. My daughter refuses to be tested, and she's a nurse so should know better!!
Good to hear you're passionate at your job (sleeping with the devices by choice) and spending Sat evening on our forum ;)
Deborah Wainwright said:I'm on here using my posh name, but actually I am known as Debi. I'm a mum, don't have sleep apnoea, but do have a 16 year old daughter which, sometimes, results in the same lack of sleep and accompanying headache! I've slept on an S9, a System One and an Icon just to 'understand'.
I work for Fisher and Paykel as country manager for the Uk. All views definitely my own (that's the legal bit!) and have used my name for transparency.
-
Permalink Reply by Deborah Wainwright on
-
Hi Wanda - good luck with Eson - I would value your feedback. We are having some great success here in the UK
Wanda Polk said:Hi Deborah,
Welcome! I am excited that you are here. Next week, I will be insurance eligible to use the Eson Nasal Mask, I am excited about the possibility that it can alleviate some of my nose issues. BTW, I live in the US.
Deborah Wainwright said:Ha, sorry, I meant having a daughter results in a lack of sleep for me! She doesn't have any problems!
Kath Hope said:Have you ever had your daughter tested Debi? I've had my son tested for the same reasons as your daughter, plus lots of brain confusion. He came up with a low AHI of 6.8 and obviously a slim 17 year old isn't a candidate for CPAP, although he probably will get worse as he gets older. My daughter refuses to be tested, and she's a nurse so should know better!!
Good to hear you're passionate at your job (sleeping with the devices by choice) and spending Sat evening on our forum ;)
Deborah Wainwright said:I'm on here using my posh name, but actually I am known as Debi. I'm a mum, don't have sleep apnoea, but do have a 16 year old daughter which, sometimes, results in the same lack of sleep and accompanying headache! I've slept on an S9, a System One and an Icon just to 'understand'.
I work for Fisher and Paykel as country manager for the Uk. All views definitely my own (that's the legal bit!) and have used my name for transparency.
-
Permalink Reply by Kathryn Chapman, on
-
Good Afternoon, .my name is Kathryn, im 48 and from Tamworth, AUSTRALIA..i was introduced , by the lovely Kath , to the group a couple of days ago .I have just been diagnosed with a severe case of sleep apnoea. results come back saying I stopped breathing 46 times in 1 hour , ( which frightened me a lot at first ) !!
I have been on a Cpap machine for a " trial " for the past 3 weeks , I have 1 week left. it was a Fisher & Paykel machine ( silver ) with a humidifier..She ( the consultant ) said it treats me well , it took a while to get used to the mask, it still does..she told me the cost..... nearly $2, 500 including the mask .i am only on a single mothers pension, I have looked around town , but they are around the same price. I knew they would be expensive . I could pay one off perhaps ??!!thankyou kath , I look forward to hearing back from you and your fellow sufferers !
Kathryn ( my real name )
-
-
Kathryn, welcome, I'm from Melbourne, they are expensive in Australia, the $2,500 is for a very good machine, you can get a basic one for about half that, could you tell me the brand and model. The other option is you could get it over the net but then you don't get the support. It is difficult and I understand your issue, we are here to help in anyway we can, just ask as many questions as you need, Terry.
-
-
Hi Terry , thankyou , I will get back to you with the model , Kath : )
Terry Vella said:Kathryn, welcome, I'm from Melbourne, they are expensive in Australia, the $2,500 is for a very good machine, you can get a basic one for about half that, could you tell me the brand and model. The other option is you could get it over the net but then you don't get the support. It is difficult and I understand your issue, we are here to help in anyway we can, just ask as many questions as you need, Terry.
-
-
Told you Terry would spot your post Kathryn
The spelling of your name is exactly the same as mine, although the only people to use my full title is my Dad and my sister. My Mum used to use it when I was naughty 
Deborah Wainwright is one of our members on here, and she works for Fisher & Paykel, so am sure would be happy to answer any questions regarding the machine you're using at the moment.
Kathryn Chapman, said:Hi Terry , thankyou , I will get back to you with the model , Kath : )
Terry Vella said:Kathryn, welcome, I'm from Melbourne, they are expensive in Australia, the $2,500 is for a very good machine, you can get a basic one for about half that, could you tell me the brand and model. The other option is you could get it over the net but then you don't get the support. It is difficult and I understand your issue, we are here to help in anyway we can, just ask as many questions as you need, Terry.
-
-
Hi Kathryn,
Things work differently in the UK with our National Health Service. I was issued with a CPAP machine (nothing fancy and no humidifier) free of charge. In 2009 I purchased the humidifier attachment locally for £150 (AUS$ 220). When I wanted a second machine (I was splitting my time between my home and my partners'), I purchased directly from CPAP.com. I purchased a Respironics CPAP, humidifier upgrade, spare water tank, mask, etc. etc. for £410 (AUS$ 600) including shipping from the USA. The humidifier cost just £65 as an upgrade. They were happy to supply, once they had a copy of my NHS diagnosis. Because it is personal medical equipment, and once I had found out the correct paperwork to complete, there was no import duty or sales tax (VAT) to pay. Because I was buying a duplicate of the machine I was already using, I didn't need any support. I was very happy with my purchase.
Of course, these are 2009 prices, and it was a fairly basic machine, but you might want to explore buying on-line if you know the model of machine you want. Because of the cost of shipping, it's worth adding as many things as possible to your order.
Good luck!
Jonathan.
Kathryn Chapman, said:Good Afternoon, .my name is Kathryn, im 48 and from Tamworth, AUSTRALIA..i was introduced , by the lovely Kath , to the group a couple of days ago .I have just been diagnosed with a severe case of sleep apnoea. results come back saying I stopped breathing 46 times in 1 hour , ( which frightened me a lot at first ) !!
I have been on a Cpap machine for a " trial " for the past 3 weeks , I have 1 week left. it was a Fisher & Paykel machine ( silver ) with a humidifier..She ( the consultant ) said it treats me well , it took a while to get used to the mask, it still does..she told me the cost..... nearly $2, 500 including the mask .i am only on a single mothers pension, I have looked around town , but they are around the same price. I knew they would be expensive . I could pay one off perhaps ??!!thankyou kath , I look forward to hearing back from you and your fellow sufferers !
Kathryn ( my real name )
-
-
i
m having trouble finding my way around the forum and replying to peoples msgs , ive lost them , and cant find my old msgs I sent them . aaarrrggghhh !!!
-
-
That's great Jonathon you got it for free ! thanks for your advice . kath ; )
Jonathan said:Hi Kathryn,
Things work differently in the UK with our National Health Service. I was issued with a CPAP machine (nothing fancy and no humidifier) free of charge. In 2009 I purchased the humidifier attachment locally for £150 (AUS$ 220). When I wanted a second machine (I was splitting my time between my home and my partners'), I purchased directly from CPAP.com. I purchased a Respironics CPAP, humidifier upgrade, spare water tank, mask, etc. etc. for £410 (AUS$ 600) including shipping from the USA. The humidifier cost just £65 as an upgrade. They were happy to supply, once they had a copy of my NHS diagnosis. Because it is personal medical equipment, and once I had found out the correct paperwork to complete, there was no import duty or sales tax (VAT) to pay. Because I was buying a duplicate of the machine I was already using, I didn't need any support. I was very happy with my purchase.
Of course, these are 2009 prices, and it was a fairly basic machine, but you might want to explore buying on-line if you know the model of machine you want. Because of the cost of shipping, it's worth adding as many things as possible to your order.
Good luck!
Jonathan.
Kathryn Chapman, said:Good Afternoon, .my name is Kathryn, im 48 and from Tamworth, AUSTRALIA..i was introduced , by the lovely Kath , to the group a couple of days ago .I have just been diagnosed with a severe case of sleep apnoea. results come back saying I stopped breathing 46 times in 1 hour , ( which frightened me a lot at first ) !!
I have been on a Cpap machine for a " trial " for the past 3 weeks , I have 1 week left. it was a Fisher & Paykel machine ( silver ) with a humidifier..She ( the consultant ) said it treats me well , it took a while to get used to the mask, it still does..she told me the cost..... nearly $2, 500 including the mask .i am only on a single mothers pension, I have looked around town , but they are around the same price. I knew they would be expensive . I could pay one off perhaps ??!!thankyou kath , I look forward to hearing back from you and your fellow sufferers !
Kathryn ( my real name )
-
Permalink Reply by Sandy K. King on
-
Hi, I'm Sandy. I got diagnosed with OSA a couple month's ago. I got my C-pap machine on March 18, 2013. I have Phillips Resperonics machine and use a nose mask which is the Resmed Swift FX for her. I live in Michigan in the U.S. I'm having the trouble that most people have when trying to get used to it. Taking it off in my sleep and not remembering it at all. I wake up to find that the machine is off too. I am in a SA group in Daily Strength too and one of the people there reccomended this site to me. I will say that I have been on Seroquel,for years (a sleep med) In the last yr and a half I have cut down from 400mg to 50mg. I have read that it's not good to take sleep meds when you have SA. It's scary trying to get off of it because if I try to take a nap during the day I CANNOT sleep no matter how sleepy and tired I am. I guess that's because it takes seroquel to get me to sleep and I dont take it for naps. I am a bit anxious about going off it totally as the reason I got on it in the first place was for another medical problem, bipolar II. I have a racing mind when I lay down to sleep and it is easier said then done to stop it. I hope people accept me here when I mention that because a lot of people in this world stigmatize people with mental health disabilitys. So, I have that and SA and many other medical problems which I do take a lot of meds for. If I go off my mental health meds I have a relapse which sends me into a severe clinical depression and that folks is like being in hell and it doesn't just go away that quickly, it takes a month or two to find the right meds and sometimes longer if they put you on something that does not work for ya. I'm scared. Well I have rambled enough and I hope people here wont think I'm some crazy nut,, because I'm not. I am a very social person who loves people and loves to help people.I admin 2 support groups on FB for bipolar disorder. I also can be very silly and funny at times. I love animals, especially our 3 pet rats. I love nature, music, ghost hunting shows, movies, reading, singing and playing my keyboard. I live with my boyfriend who I have been with for 13 wonderful years. He has COPD and is on oxygen. He had a sleep apnea test 2 years ago and it came up negative and I dont believe that because he snores like a freight train, with periods of shallow breathing i think. We are trying to get his doctor to refer him to my pulmonary/sleep doctor but his doctor has forgotten so we are going to remind them, like TOMORROW. Have a Happy Easter everyone! SamLovesRats aka/ Sandy King
About
Sleep Apnoea Forum
New to the Sleep Apnoea Forum?
1. Stop by our Sleep Apnoea Welcome Center to introduce yourself to the SleepGuide community.
2. Start a New Topic of Conversation.
3. Post your photos - of yourself, your old CPAP machine, your new CPAP machine, your pet, something about you!
Interested in advertising, have a problem or need to contact us? Click the Report an Issue page.
Latest Activity
"thank you jonathan,i did get the it pack so tried the small and still struggled but i was sat up in bed so will try lying down great suggestion "
"Hi
My first thought is "don't panic"! We're all a bit different, and there are many things that can be tweaked. I took to CPAP therapy like a duck to water, but I've had friends who say they can't cope, but…"
1st time and I’ve failed the mask leak test
Hi everyone, today I received my rental kit - prisma smart max, plus a Philips dreamwear mask which I’ve been wearing unconnected to try and get used to it. I just did a mask fit test using a medium mask and got a constant red/orange leak warning…See More
Are every small CPAP machines any good?
Travel sized, micro - any good?See More
"Ha well it lasted a couple of days but started howling again. But it's a step in the right direction, just needs a bit more work."
"Nope, I just accept that some people's throats tend to close when they sleep, due to a loss of muscle tone during deeper sleep. Back when I was diagnosed, the sleep lab just filmed you whilst you slept, stuck an O2 meter on your finger,…"
"Did anyone tell you exactly what the anatomical issue is, Jonathan?"
"Can't say I know about this."
"So I tore some fabric from one of the filters and glued it over the holes - and it worked!It was dead quiet, and the air was still flowing freely.It was quiet all night then after a few hours a bit of whistling until I gave it a wipe.Vast…"
"Hi Jonathan, well see my nose is blocked a lot, so I mouth breath which really sucks a lot more moisture and makes my mouth dry. So I put humidity on maximum, which makes for condensation at the mask end, which becomes a demonic reed instrument.Now…"
ResMed AirSense 10 getting noisy
HelloI have an NHS issued ResMed AirSense 10 with heated humidifier. In the last couple of weeks, it's developed an annoying noise, when I inhale. It bothers me a little and my partner a lot! I sometimes get problems if the water container in the…See More
"Hi
My first question is why is condensation forming? I very occasionally get some condensation, may be once a month, but I can quickly run a finger around the inside of the mask, and wipe it away. I use a nasal mask, with the humidifier…"
"11K+? Ok that's probably where I should look then :-)"
"Hi John. Thanks for the compliment as I do my best popping on here, but it's difficult due to us now supporting 25k+ patients at the charity. To be honest, the forum is quiet because most people seem to prefer Facebook and forums aren't as…"
"There's some information here, but generally it's very common and likely due to our anatomy."
© 2024 Created by The SleepGuide Crew.
Powered by
