Hope2SleepGuide

Sleep Apnoea Forum Bringing Help + Support to the Patient

Welcome to our Forum - Feel Free to Introduce Yourself Here.

Welcome to the Hope2SleepGuide Forum, which is a service run by the Hope2Sleep Charity founded by Kath Hope with a marvellous team of trustees and volunteers. 

Kath herself has severe sleep apnoea and hypoventilation/hypercapnia, and has used CPAP for several years and is now on non-invasive ventilation.  Our trustees and volunteers are all either sufferers of sleep disordered breathing or clinicians/medics working in this field, and most importantly, we are all passionate in supporting (with empathy) others and raising awareness to help people live healthier and more energised lives.

 

Whilst we do not give medical advice, more often than not, with support, tips and knowledge, people can overcome any problems experienced with our therapy, and there is a whole page dedicated to this on the website http://www.hope2sleep.co.uk/tips-for-problems-sleeping-with-cpap-or...

 

Please come and join us, and don’t feel obligated to use your ‘real’ name if you prefer to remain anonymous as this is a public forum.  Don’t be shy in posting and sharing, as we’re all in this together and to help each other.

Best Wishes for good sleep!

Kath

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Hi Leoni

Sorry there was a delay in approving you onto the forum as we had a glitch and notifications weren't coming through.  If you had a private sleep test with Philips then you will have got an official diagnosis - probably from Dr Dawson.  If this is the case then you can purchase an auto machine from us at the charity.   If you'd like some help with this being new to you then give us a call tomorrow 0300 102 9711 or you can email support@hope2sleep.co.uk

Leoni Atkins said:

Hi everyone - lovely to e-meet you! 

I'm hoping you can help me. I took a private sleep test with Philips a few months back before the lockdown which shows I have severe sleep apnea. Unfortunately I haven't been able to get into a proper sleep clinic due to the Covid-19 situation but I desperately need to get this treated so I can get a decent night's sleep. 

I'm willing to buy a mask and machine myself, but does anyone know the best way of doing this without testing? I haven't found anywhere that provides testing of this equipment so would just have to buy on faith....

Any help, advice or sharing of experiences would be much appreciated. 

Kind regards, Leoni 

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Latest Activity

Profile IconChristine Bridges and peter Ryan joined Hope2SleepGuide
4 minutes ago
Nick Daniel added a discussion to the group Buy-Sell-Swap
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Selling a DeVilbiss Sleepcube Auto Plus

Model DV54UK-P Excellent condition, just 200 hours usageI bought this as a spare for travelling but I've hardly used it and…See More
yesterday
Kath Hope replied to Holly's discussion Hot weather
"You're welcome Holly and will notice the article mentions the Silent Night Liners which helps with sweat.  I realise you probably haven't got any at the moment, but you can try making a liner from an old t-shirt (stretchy…"
Saturday
Holly replied to Holly's discussion Hot weather
"Thank you for thanking the time to reply. The mask is so hot a sweaty on my face. I will try the tips. Thank you "
Saturday
Kath Hope replied to Stuart Adrian Gillespie's discussion I'm so worried about my Health condition and putting on weight.
"So sorry that this post got missed Stuart and was flagged up thanks to Holly's reply.  Do let us know which machine you have so we can help."
Saturday
Kath Hope replied to Holly's discussion Hot weather
Saturday
Holly posted a discussion

Hot weather

Hi all. first summer using CPAP and my god it’s hard to use when it’s hot!! Any tips would be greatly appreciated HollySee More
Saturday
Holly replied to Stuart Adrian Gillespie's discussion I'm so worried about my Health condition and putting on weight.
"Hey. Depending on your make of machine you can download the app. I have a Philips dream station and you can see how you are doing every day. It took me 6 months to see any difference what so ever. At first I was more tired than I was before I…"
Saturday
Kath Hope replied to Mark's discussion Help! I'm not sure where to turn anymore.
"Hi Mark Just to let you know we've replied to your email, so can you check you've received the message in case it's gone to your junk or spam by mistake. Thanks."
Aug 5
Kath Hope replied to Amanda S's discussion Which is the best sleep apnoea test?
"Welcome Amanda and sorry to hear of your husband's struggles.  It sounds like he either went to a clinic that don't treat people with an AHI of less than 15 from the sleep study results, or he could have had a pulse oximetry sleep…"
Aug 4
Amanda S posted a discussion

Which is the best sleep apnoea test?

This is my first post and I am very grateful to have found this forum.My husband was tested for sleep apnoea  using a home test on the NHS in Dec 17. At the interview afterwards they told him he had sleep  apnoea  but not bad enough to be given a…See More
Aug 4
Amanda S is now a member of Hope2SleepGuide
Aug 3
Kath Hope replied to David's discussion Breas Z1 cpap machine error 33,
"Good luck and definitely stress you only used it for travel so had very little use."
Aug 3
David replied to David's discussion Breas Z1 cpap machine error 33,
Aug 3
David replied to David's discussion Breas Z1 cpap machine error 33,
"No Kath it’s not and disappointing. I’m holding fire to buy a travel one till next year when (if) we go abroad, Until then I’ll use my dream station as I won’t have carry it."
Aug 3
Kath Hope replied to David's discussion Breas Z1 cpap machine error 33,
"Heck, that's not lasted long David, and I assume you've not used it much either (more for travel).  Might be worth saving up for the DreamStation Go which has most features the same as your DreamStation.  We sell it at the…"
Aug 2
David posted a discussion

Breas Z1 cpap machine error 33,

My Breas Z1 machine has suddenly started showing error 33. Having contacted my supplier in the Uk it turns out that Breas will not repair it . I’ve only had about 4 years max. I feel that this is terrible service from the manufacturer to not support…See More
Aug 2
Profile IconKiersten and thatbloke joined Hope2SleepGuide
Aug 1
Mark replied to Mark's discussion Help! I'm not sure where to turn anymore.
"Thank you kath. I'm sending you through an email with the data from my cpap machine.The email address beings with my username."
Jul 29
Gavin Wayne is now a member of Hope2SleepGuide
Jul 26

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