Hope2SleepGuide

Sleep Apnoea Forum Bringing Help + Support to the Patient

Welcome to our Forum - Feel Free to Introduce Yourself Here.

Welcome to the Hope2SleepGuide Forum, which is a service run by the Hope2Sleep Charity founded by Kath Hope with a marvellous team of trustees and volunteers. 

Kath herself has severe sleep apnoea and hypoventilation/hypercapnia, and has used CPAP for several years and is now on non-invasive ventilation.  Our trustees and volunteers are all either sufferers of sleep disordered breathing or clinicians/medics working in this field, and most importantly, we are all passionate in supporting (with empathy) others and raising awareness to help people live healthier and more energised lives.

 

Whilst we do not give medical advice, more often than not, with support, tips and knowledge, people can overcome any problems experienced with our therapy, and there is a whole page dedicated to this on the website http://www.hope2sleep.co.uk/tips-for-problems-sleeping-with-cpap-or...

 

Please come and join us, and don’t feel obligated to use your ‘real’ name if you prefer to remain anonymous as this is a public forum.  Don’t be shy in posting and sharing, as we’re all in this together and to help each other.

Best Wishes for good sleep!

Kath

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Hi Leoni

Sorry there was a delay in approving you onto the forum as we had a glitch and notifications weren't coming through.  If you had a private sleep test with Philips then you will have got an official diagnosis - probably from Dr Dawson.  If this is the case then you can purchase an auto machine from us at the charity.   If you'd like some help with this being new to you then give us a call tomorrow 0300 102 9711 or you can email support@hope2sleep.co.uk

Leoni Atkins said:

Hi everyone - lovely to e-meet you! 

I'm hoping you can help me. I took a private sleep test with Philips a few months back before the lockdown which shows I have severe sleep apnea. Unfortunately I haven't been able to get into a proper sleep clinic due to the Covid-19 situation but I desperately need to get this treated so I can get a decent night's sleep. 

I'm willing to buy a mask and machine myself, but does anyone know the best way of doing this without testing? I haven't found anywhere that provides testing of this equipment so would just have to buy on faith....

Any help, advice or sharing of experiences would be much appreciated. 

Kind regards, Leoni 

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Latest Activity

Mark Buckley is now a member of Hope2SleepGuide
Sep 9
AJ updated their profile
Sep 6
AJ is now a member of Hope2SleepGuide
Sep 6
Profile IconAndy Lakin-Hall, Tom Donnery, David Carrick and 1 more joined Hope2SleepGuide
Sep 4
Sherell Cunningham replied to Jason Moore's discussion Resmed S9 Autoset EPR CPAP Machine in the group Buy-Sell-Swap
"Hi there is this still available please."
Sep 4
Sherell Cunningham joined The SleepGuide Crew's group
Sep 4
Kath Hope replied to Amanda S's discussion Which is the best sleep apnoea test?
"Yes, that would be find Amanda and I know Joseph who runs the clinic and am sure he'll be very helpful too."
Sep 2
Amanda S replied to Amanda S's discussion Which is the best sleep apnoea test?
"Hi Kath, Thanks for the advice. I now have the go ahead from my husband to do another test. I think it will take too long via the doctors and would like to do a test straight away. I am thinking of going for the sleep disorder clinic as they do…"
Sep 2
Barbara lyttle is now a member of Hope2SleepGuide
Aug 26
Sue Abson added a discussion to the group Buy-Sell-Swap
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ResMed AirSense 10 Elite CPAP machine - almost new!

For SaleResMed AirSense 10 Elite CPAP machine, complete with carry bag, power pack, ResMed HumidAir humidifier, instruction booklets/documentation, 1 x brand new unopened hose and 1 x unopened large pack of filters.  Can also include a slightly used…See More
Aug 23
Sue Abson joined The SleepGuide Crew's group
Aug 23
Anthony Hilbert is now a member of Hope2SleepGuide
Aug 22
Kath Hope replied to Amanda S's discussion Which is the best sleep apnoea test?
"Hi Amanda You don't need to start a new discussion as we're following this one fine :)  It would be worth getting your GP to refer you to Oxford as the waiting list will no doubt be long due to this pandemic so at least he'll be…"
Aug 18
Amanda S replied to Amanda S's discussion Which is the best sleep apnoea test?
"Hi Kath, not used to the way the posting works on this forum . It feels as if I am collecting to much text. Should I start new topic? Have rung the clinic in Oxford and they said D has to be referred through the GP. I have found his Diagnosis from…"
Aug 18
Sleep2snore replied to Amanda S's discussion Which is the best sleep apnoea test?
"He really needs the attitude that if he is given a machine or a trial "This is going to work for came hell or high water!"  though it is not easy getting started or used to a CPAP machine.  Sometimes you just need to keep…"
Aug 17
Sleep2snore replied to thatbloke's discussion Having major trouble and getting very frustrated trying to use CPAP machine - help?
Aug 16
Sleep2snore replied to thatbloke's discussion Having major trouble and getting very frustrated trying to use CPAP machine - help?
"This came to a head a couple of weeks back where, even while just sat in front of my computer at home, I felt like I wasn't breathing properly, even with none of this going on - I was having to manually breathe. I got tested for covid that day…"
Aug 16
Sleep2snore replied to thatbloke's discussion Having major trouble and getting very frustrated trying to use CPAP machine - help?
"With the last point in mind, because I never feel like I'm breathing "normally" with the mask on, I then end up taking over and "manually" trying to concentrate on my breathing with it on. This, of course, means that…"
Aug 16
Sleep2snore replied to thatbloke's discussion Having major trouble and getting very frustrated trying to use CPAP machine - help?
"Note that this feeling of not breathing properly also happens even if I put the mask on for a bit during the day, just to try to get used to it. I simply do not ever feel like I'm taking in enough air when I breathe in, and therefore have to…"
Aug 16
Sleep2snore replied to thatbloke's discussion Having major trouble and getting very frustrated trying to use CPAP machine - help?
"Additionally, with the mask on, within literally about 5 breaths, my mouth becomes drier than the sahara desert - You NEED a HUMIDIFIER."
Aug 16

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