"Hi
The SleepCube was a private purchase, as way back then my local sleep clinic assessed patients by filming them overnight, whilst wearing an oximeter, and only issued CPAP machines without humidifiers. There was no remote monitoring and…"
Sleep Apnoea Forum Bringing Help + Support to the Patient
Forum Discussions (864)
| Discussions | Replies | Latest Activity |
|---|---|---|
struggling with CPAPhello, I've only been using the machine and a full face mask about 3 weeks. ON THE GOOD SIDE - i dont need a nap in the afternoon now ON T… Started by sharon in Sleep Apnoea |
4 |
Jul 6, 2018 Reply by sharon |
Help for the hubbyHello everyone, I am hoping that maybe someone out there has been through what my husband is currently having to deal with. Three years a… Started by Bethany in Sleep Apnoea |
6 |
Jun 20, 2018 Reply by Alison |
What is a good oxygen OximeterI have been on CPAP therapy for nearly 2 years and still feel very tired, I have been to hospital a couple of times in that period and the… Started by Mags in Sleep Apnoea |
8 |
Jun 6, 2018 Reply by Sleep2snore |
What pressures?Hi, I was given my resmed airsense 10 by the hospital and instructed in its use. At no time were pressures mentioned and i have read of peo… Started by Chris Vesey in Sleep Apnoea |
2 |
Jun 6, 2018 Reply by Sleep2snore |
New to cpapHi I'm new to cpap nearly 2 weeks into therapy and feel really tired has anybody felt like this? Or is it normal to feel like this when new… Started by Ruth Furniss in Sleep Apnoea |
4 |
May 29, 2018 Reply by Sleep2snore |
Medistron batteriesHi, I bought a pilot and co pilot set up a few months ago and have recently been trying them out. I have found by trial and error the follo… Started by Chris Vesey in Sleep Apnoea |
12 |
May 29, 2018 Reply by Sleep2snore |
Twisted strap ouchhh!!My Simplus FFM is nearly the best mask I have used over several years but I have a bad habit of putting my mask on with the forehead strap… Started by Edam in Sleep Apnoea |
3 |
May 22, 2018 Reply by Sleep2snore |
I've 'hit a wall' can any body help me?I was diagnosed with severe OSA in November and I have been using a Philips Respironics CPAP machine and full face mask from early December… Started by John Wilkinson in Sleep Apnoea |
4 |
May 17, 2018 Reply by John Wilkinson |
Another newbie with a gazillion questionsHi, I live near Leeds and saw the consultant in sleep clinic today at st James who has diagnosed osa. He wants me to try Cpap because I hav… Started by Helen Page in Sleep Apnoea |
3 |
May 12, 2018 Reply by Chris Vesey |
Pressure difference between Resmed S8 Vs Breas Z1I have been using RESMED in auto mode. The pressure used to settle around 11cmWG with AHI between 2 and 4. I have recently switched over BR… Started by Mathura Dutt Kalauny in Sleep Apnoea |
5 |
Apr 18, 2018 Reply by Mathura Dutt Kalauny |
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Latest Activity
"Yeah I was wondering about email address. I thought probably if they wanted me to mail them they would have given out an address. I can imagine heart data is considered more acute than sleep data, so it would make more sense to have that…"
"Hi.
I didn't use PatientsKnowBest (ironic name), but I have an email address for my heart department for sending in ECGs. I was just saying that they may be able to review a PDF when then cannot review a data file from your O2 ring.
I am…"
"Hi Jonathan, did you do that through PatientKnowsBest?"
"On an unrelated topic, I've been able to send ECGs by PDF to my heart clinic.
On the subject of Resmed and apnoeas, take a look at https://youtu.be/ufOOAfyzZso?si=Tpdl4EEiCQBZR4iD&t=276
Your machine may be under-reporting.
Good…"
Wellu O2 Ring - is it accurate enough for the medics?
Moving some furniture my long lost O2 ring continuous oxygen saturation monitor turned up. So I've been wearing it and it tells me I have loads of saturation drops during the night even though my Airsense 10 says I have very few apneas.So I get two…See More
"Hi,
Just thought I'd give an update. So, I had my appointment with the NHS sleep clinic which was much quicker than I anticipated and I've now had the overnight sleep study. My AHI is now 6, down from over 30, so I'm…"
"Hi Sally from what I read the airsense doesn't suffer the same foam degredation issues as the infamous Phillips machine.I can conceive it's possible that microplastics may be shed from the flexible main tube.What worries me more about the…"
"Hi
My sleep clinic discharged me, saying they were happy I was self-managing. Roll on a decade and the cardiologists taking care of me were very unimpressed and I was re-enrolled. I expect remote monitoring with current generation Resmed…"
"Hi Jonathan,
Thanks again for the info. My cpap *should* be monitored by the NHS though I haven’t had any contact from them since pre-covid. I checked out the link you gave to access extra data and I think that’s going to be…"
"Hi
I have the ResMed Airsense 10 Autoset (APAP). It's monitored remotely by my NHS sleep clinic and I believe they can make changes to the settings. I don't know whether they are notified if I make changes, nor whether they…"
"Hi Jonathan,
Thanks for the reply. I'd say that I'm fairly technical. I have the ResMed Airsense 10 Elite machine. I've discovered that I can upload data wirelessly from my machine and having lowered the pressure by…"
"Hi
You don't say how technical you are, or what sort of machine you use. However https://www.sleephq.com/ has software which allows you to upload data from compatible machines, and analyse your sleep "score", including a…"
air bubbles after weight loss
Hi,I've been on Mounjaro for about 3 months now, not primarily for weight loss, but I have lost weight around my face and neck. I've noticed that I am increasingly getting air bubbles in my mouth which of course is disturbing my sleep (and my…See More
Micro plastics risks
I was reading an article in the I newspaper today written by a journalist who had her blood tested for micro plastics and was shocked by the results.…See More
job with the charity
Was wondering if there might be a job for me with Hope2Sleep?(I also just asked this of a group by mistake)See More
For Sale - Ventura Full Total Face CPAP Mask
I’m selling an Ventura Full Total Face CPAP Mask Large and two spare liners. I bought it new from the Hope2Sleep shop, but it is not suitable for me. Only used for about two weeks so I have washed it thoroughly. Because of this, it is very much…See More
"I put in a claim for PIP which was denied and now I am over 66 and on pension I tried for AA. Denied again.I have other health conditions ( Diverticular disease and Bile Acid Malabsorbtion ) which I consider hard to live with and they refused all of…"
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