Hope2SleepGuide

Sleep Apnoea Forum Bringing Help + Support to the Patient

Forum Discussions (865)

Discussions Replies Latest Activity

Advice Needed please

After being diagnosed with Severe Sleep Apnoea (AHI 53) In November 2009, my consultant and GP, have still to find a treatment which works…

Started by craig seville in Sleep Apnoea

2 May 22, 2015
Reply by Sleep2snore

New Silent Night MASK LINERS for CPAP, BiPAP, APAP + Ventilators

Pleased to announce that the Silent Night Mask Liners have now arrived and my own trials using this liner (which even sticks to the mask to…

Started by Kath Hope in Sleep Apnoea

2 May 6, 2015
Reply by Kath Hope

Sleep Apnoea linked to memory loss article on BBC web site

There is an interesting article on the BBC website today re memory loss and sleep apnoea, see:- http://www.bbc.co.uk/news/health-32317109

Started by David in Sleep Apnoea

1 Apr 23, 2015
Reply by Kath Hope

Dangers of Untreated Sleep Apnoea

I was inspired to create this new poster highlighting the dangers of untreated sleep apnoea, after hearing one of our passionate UK sleep p…

Started by Kath Hope in Sleep Apnoea

10 Apr 23, 2015
Reply by Kath Hope

Sad Article of Young Son Who Died Before Tonsillectomy for Sleep Apnoea

Very sad to read this when the parents were so close to having surgery for their little boy to have his tonsils removed, to hopefully cure…

Started by Kath Hope in Sleep Apnoea

0 Apr 8, 2015

Respironics Amara

Just been for my annual appt at the clinic and been given the new Amara gel  full face mask. I must say I'm really impressed with it up to…

Started by David in Sleep Apnoea

5 Mar 19, 2015
Reply by Kath Hope

World Sleep Day 2015

Today is officially World Sleep Day and will be the focus all this month of good sleep and sleep disorders, so let's use this time to step…

Started by Kath Hope in Sleep Apnoea

0 Mar 13, 2015

Sleep Aponea

Hello All  I should be an expert by now, but education is a life time event so I am told. My Sleepyhead Report confuses me, it talks about…

Started by Ken1064 in Sleep Apnoea

3 Mar 12, 2015
Reply by Kath Hope

mixed apnoeas

Hi all, I've got a real problem! I'm using an auto cpap machine because the hospital have told me that I need the highest pressure setting…

Started by Russ in Sleep Apnoea

5 Mar 12, 2015
Reply by Kath Hope

Hybrid mask

Has anyone had experience with the hybrid masks. I am currently using the FitLife mask and it seems to be working but I am being left with…

Started by Tam in Sleep Apnoea

5 Feb 24, 2015
Reply by Tam

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Latest Activity

Jonathan replied to Ruth Furniss's discussion Nosebleed
"You don't mention whether you have a humidifier on your CPAP machine.  I think that would help a lot."
Dec 26, 2025
Ruth Furniss posted a discussion

Nosebleed

Hi does anyone suffer with nosebleeds using cpap machine? How do you manage to stop them please.See More
Dec 26, 2025
Jonathan replied to John's discussion Wellu O2 Ring - is it accurate enough for the medics?
"Hi The SleepCube was a private purchase, as way back then my local sleep clinic assessed patients by filming them overnight, whilst wearing an oximeter, and only issued CPAP machines without humidifiers.  There was no remote monitoring and…"
Oct 25, 2025
John replied to John's discussion Wellu O2 Ring - is it accurate enough for the medics?
"Yeah I was wondering about email address. I thought probably if they wanted me to mail them they would have given out an address. I can imagine heart data is considered more acute than sleep data, so it would make more sense to have that…"
Oct 24, 2025
Jonathan replied to John's discussion Wellu O2 Ring - is it accurate enough for the medics?
"Hi. I didn't use PatientsKnowBest (ironic name), but I have an email address for my heart department for sending in ECGs.  I was just saying that they may be able to review a PDF when then cannot review a data file from your O2 ring. I am…"
Oct 24, 2025
John replied to John's discussion Wellu O2 Ring - is it accurate enough for the medics?
"Hi Jonathan, did you do that through PatientKnowsBest?"
Oct 24, 2025
Jonathan replied to John's discussion Wellu O2 Ring - is it accurate enough for the medics?
"On an unrelated topic, I've been able to send ECGs by PDF to my heart clinic. On the subject of Resmed and apnoeas, take a look at https://youtu.be/ufOOAfyzZso?si=Tpdl4EEiCQBZR4iD&t=276 Your machine may be under-reporting. Good…"
Oct 24, 2025
John posted a discussion

Wellu O2 Ring - is it accurate enough for the medics?

Moving some furniture my long lost O2 ring continuous oxygen saturation monitor turned up. So I've been wearing it and it tells me I have loads of saturation drops during the night even though my Airsense 10 says I have very few apneas.So I get two…See More
Oct 21, 2025
Richard Smith replied to Richard Smith's discussion air bubbles after weight loss
"Hi, Just thought I'd give an update.  So, I had my appointment with the NHS sleep clinic which was much quicker than I anticipated and I've now had the overnight sleep study.  My AHI is now 6, down from over 30, so I'm…"
Oct 15, 2025
John replied to Sally Gray's discussion Microplastics risks
"Hi Sally from what I read the airsense doesn't suffer the same foam degredation issues as the infamous Phillips machine.I can conceive it's possible that microplastics may be shed from the flexible main tube.What worries me more about the…"
Oct 7, 2025
Jonathan replied to Richard Smith's discussion air bubbles after weight loss
"Hi My sleep clinic discharged me, saying they were happy I was self-managing.  Roll on a decade and the cardiologists taking care of me were very unimpressed and I was re-enrolled.  I expect remote monitoring with current generation Resmed…"
Sep 1, 2025
Richard Smith replied to Richard Smith's discussion air bubbles after weight loss
"Hi Jonathan, Thanks again for the info.  My cpap *should* be monitored by the NHS though I haven’t had any contact from them since pre-covid.  I checked out the link you gave to access extra data and I think that’s going to be…"
Aug 31, 2025
Jonathan replied to Richard Smith's discussion air bubbles after weight loss
"Hi I have the ResMed Airsense 10 Autoset (APAP).  It's monitored remotely by my NHS sleep clinic and I believe they can make changes to the settings.  I don't know whether they are notified if I make changes, nor whether they…"
Aug 31, 2025
Richard Smith replied to Richard Smith's discussion air bubbles after weight loss
"Hi Jonathan, Thanks for the reply.  I'd say that I'm fairly technical.  I have the ResMed Airsense 10 Elite machine.  I've discovered that I can upload data wirelessly from my machine and having lowered the pressure by…"
Aug 30, 2025
Jonathan replied to Richard Smith's discussion air bubbles after weight loss
"Hi You don't say how technical you are, or what sort of machine you use.  However https://www.sleephq.com/ has software which allows you to upload data from compatible machines, and analyse your sleep "score", including a…"
Aug 29, 2025
Richard Smith posted a discussion

air bubbles after weight loss

Hi,I've been on Mounjaro for about 3 months now, not primarily for weight loss, but I have lost weight around my face and neck.  I've noticed that I am increasingly getting air bubbles in my mouth which of course is disturbing my sleep (and my…See More
Aug 28, 2025
Sally Gray posted a discussion

Micro plastics risks

I was reading an article in the I newspaper today written by a journalist who had her blood tested for micro plastics and was shocked by the results.…See More
Aug 3, 2025
Alison Mitchell is now a member of Hope2SleepGuide
Jul 2, 2025
John posted a discussion

job with the charity

Was wondering if there might be a job for me with Hope2Sleep?(I also just asked this of a group by mistake)See More
Jun 27, 2025
Tracey Tilley updated their profile
May 22, 2025

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