"Hi
The SleepCube was a private purchase, as way back then my local sleep clinic assessed patients by filming them overnight, whilst wearing an oximeter, and only issued CPAP machines without humidifiers. There was no remote monitoring and…"
Sleep Apnoea Forum Bringing Help + Support to the Patient
Forum Discussions (864)
| Discussions | Replies | Latest Activity |
|---|---|---|
humidifier and colloidal silvermy mind is muddled please excuse an humidifier can be used with colloidal silver this can keep the humidifier clean for day maybe weeks or… Started by 99 in Sleep Apnoea |
1 |
Dec 16, 2014 Reply by 99 |
Is my Sleep Apnoea report heading for 30 day compliance?Here's an extract from my AHI & AI - events/hr of my compliance report after 24 days Apnea index: 1.3 Hypopnea index: 4.0 AHI: 5.… Started by Michael Eacott in Sleep Apnoea |
2 |
Dec 15, 2014 Reply by Michael Eacott |
BREATHING PROBLEMS WITH VENTILATORI use a nippy 3+ ventilator as I have scoliosis. I also use oxygen, 1 litre. I am 48 years old. A few weeks ago I started with a cold, was… Started by Elizabeth Howard in Sleep Apnoea |
6 |
Dec 14, 2014 Reply by Elizabeth Howard |
Untreated Sleep Apnoea and Not Enough Sleep Leads to DementiaMore evidence of how both untreated Sleep Apnoea AND not getting in enough hours of sleep can lead to Dementia, and of course Margaret That… Started by Kath Hope in Sleep Apnoea |
0 | Dec 11, 2014 |
Hope to sleep on FacebookI seem to remember being told that there is a version of this site that runs from Facebook? Is there a link or a name that you enter, afte… Started by David Anthony Burnley in Sleep Apnoea |
1 |
Dec 8, 2014 Reply by Kath Hope |
Quick Anonymous Poll - Weight Changes With CPAP and Other TherapyPlease will everybody who is ON CPAP THERAPY OR OTHER for Sleep Apnoea please fill in the poll in light of another new study, resulting in… Started by Kath Hope in Sleep Apnoea |
5 |
Nov 8, 2014 Reply by Kath Hope |
Help Needed for Study of Online Forums + Community GroupsI'm posting this request for help on behalf of Dr Liz Sillence and would encourage people to participate, and especially as many of us real… Started by Kath Hope in Sleep Apnoea |
0 | Oct 24, 2014 |
When should I feel the benefit?Hi all, So I have been through what I guess most members here have, being provided with an NHS CPAP machine and mask, only to find that I c… Started by Simon A Hannaby in Sleep Apnoea |
2 |
Oct 16, 2014 Reply by Kath Hope |
Now Got A CPAPSo today I went to get fitted with a CPAP (was originally supposed to be tomorrow, but I moved it forward to today). I have be given a Res… Started by airbusA346 in Sleep Apnoea |
7 |
Oct 13, 2014 Reply by airbusA346 |
Brain damage from Sleep ApnoeaStarted by symmit in Sleep Apnoea |
2 |
Oct 13, 2014 Reply by Kath Hope |
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Latest Activity
"Yeah I was wondering about email address. I thought probably if they wanted me to mail them they would have given out an address. I can imagine heart data is considered more acute than sleep data, so it would make more sense to have that…"
"Hi.
I didn't use PatientsKnowBest (ironic name), but I have an email address for my heart department for sending in ECGs. I was just saying that they may be able to review a PDF when then cannot review a data file from your O2 ring.
I am…"
"Hi Jonathan, did you do that through PatientKnowsBest?"
"On an unrelated topic, I've been able to send ECGs by PDF to my heart clinic.
On the subject of Resmed and apnoeas, take a look at https://youtu.be/ufOOAfyzZso?si=Tpdl4EEiCQBZR4iD&t=276
Your machine may be under-reporting.
Good…"
Wellu O2 Ring - is it accurate enough for the medics?
Moving some furniture my long lost O2 ring continuous oxygen saturation monitor turned up. So I've been wearing it and it tells me I have loads of saturation drops during the night even though my Airsense 10 says I have very few apneas.So I get two…See More
"Hi,
Just thought I'd give an update. So, I had my appointment with the NHS sleep clinic which was much quicker than I anticipated and I've now had the overnight sleep study. My AHI is now 6, down from over 30, so I'm…"
"Hi Sally from what I read the airsense doesn't suffer the same foam degredation issues as the infamous Phillips machine.I can conceive it's possible that microplastics may be shed from the flexible main tube.What worries me more about the…"
"Hi
My sleep clinic discharged me, saying they were happy I was self-managing. Roll on a decade and the cardiologists taking care of me were very unimpressed and I was re-enrolled. I expect remote monitoring with current generation Resmed…"
"Hi Jonathan,
Thanks again for the info. My cpap *should* be monitored by the NHS though I haven’t had any contact from them since pre-covid. I checked out the link you gave to access extra data and I think that’s going to be…"
"Hi
I have the ResMed Airsense 10 Autoset (APAP). It's monitored remotely by my NHS sleep clinic and I believe they can make changes to the settings. I don't know whether they are notified if I make changes, nor whether they…"
"Hi Jonathan,
Thanks for the reply. I'd say that I'm fairly technical. I have the ResMed Airsense 10 Elite machine. I've discovered that I can upload data wirelessly from my machine and having lowered the pressure by…"
"Hi
You don't say how technical you are, or what sort of machine you use. However https://www.sleephq.com/ has software which allows you to upload data from compatible machines, and analyse your sleep "score", including a…"
air bubbles after weight loss
Hi,I've been on Mounjaro for about 3 months now, not primarily for weight loss, but I have lost weight around my face and neck. I've noticed that I am increasingly getting air bubbles in my mouth which of course is disturbing my sleep (and my…See More
Micro plastics risks
I was reading an article in the I newspaper today written by a journalist who had her blood tested for micro plastics and was shocked by the results.…See More
job with the charity
Was wondering if there might be a job for me with Hope2Sleep?(I also just asked this of a group by mistake)See More
For Sale - Ventura Full Total Face CPAP Mask
I’m selling an Ventura Full Total Face CPAP Mask Large and two spare liners. I bought it new from the Hope2Sleep shop, but it is not suitable for me. Only used for about two weeks so I have washed it thoroughly. Because of this, it is very much…See More
"I put in a claim for PIP which was denied and now I am over 66 and on pension I tried for AA. Denied again.I have other health conditions ( Diverticular disease and Bile Acid Malabsorbtion ) which I consider hard to live with and they refused all of…"
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