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Discussions Replies Latest Activity

Air Sense 10 - changing pressure settings

I have been successfully using my air sense 10 since OSA diagnosis, and my AHI is now under 2. I had an appointment with my clinic this wee…

Started by Frances Knight in Sleep Apnoea

4 Mar 13, 2024
Reply by Frances Knight

A few questions..

A quick bit of background Diagnosed with OSA about 7/8 years ago by my local sleep clinic and given a F &P Icon CPAP.  After a couple o…

Started by Sue Reeves in Sleep Apnoea

1 Mar 3, 2024
Reply by Jonathan

Decline in hearing

Hi I have regular, well yearly check ups at work. One being a hearing test. Since having my cpap machine my hearing has declined rapidly i…

Started by David Hudson in Sleep Apnoea

0 Feb 26, 2024

Feeling Abandoned by the Sleep Clinic

I was diagnosed with OSA back in 2017 following having used the Hope 2 Sleep diagnostic home thing. (Thank you!).  Since being diagnosed wi…

Started by Jenny Wren in Sleep Apnoea

6 Feb 8, 2024
Reply by Jenny Wren

How often do medics tell you the cause of apnea, rather than just prescribe CPAP and forget

It's been about five years since I was diagnosed, still no word of what the actual cause is.They gave me a CT scan recently to see what's g…

Started by John in Sleep Apnoea

2 Feb 2, 2024
Reply by John

Are resmed airsense reports really accurate?

The hospital swapped out my sleep cube for an Airsense 2 about a year ago.Now the machine reports my sleep quality to them over the airwave…

Started by John in Sleep Apnoea

4 Feb 2, 2024
Reply by John

My Apnoea / CPAP journey

Hi all,Apologies in advance for the long thread!I'm 51 and always suspected I had apnoea, but didn’t like the sound of CPAP so never did an…

Started by Dave Austin in Sleep Apnoea

5 Feb 1, 2024
Reply by John

NHS waiting time for CPAP machine - can anyone beat this?

Diagnosed on 18th December 2023 with severe sleep apnoea. Received letter a few days later advising that earliest I could get a CPAP is 23…

Started by Alex Lalvani in Sleep Apnoea

4 Jan 25, 2024
Reply by Kath Hope

DVLA

Hello everyone, I started my therapy in January, and was given a form from the sleep lab and told to inform DVLA I have OSAS.  March 21st…

Started by Terry Eustace in Sleep Apnoea

4 Jan 12, 2024
Reply by John

Explain the DVLA to me like I am a 5 year old please

Hi Everyone, I am looking for someone who really knows how the DVLA  / driving works with regards to OSA. Apologies if this is a little lon…

Started by lee smeaton in Sleep Apnoea

10 Jan 12, 2024
Reply by John

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Latest Activity

Jonathan replied to John's discussion Wellu O2 Ring - is it accurate enough for the medics?
"Hi The SleepCube was a private purchase, as way back then my local sleep clinic assessed patients by filming them overnight, whilst wearing an oximeter, and only issued CPAP machines without humidifiers.  There was no remote monitoring and…"
Oct 25
John replied to John's discussion Wellu O2 Ring - is it accurate enough for the medics?
"Yeah I was wondering about email address. I thought probably if they wanted me to mail them they would have given out an address. I can imagine heart data is considered more acute than sleep data, so it would make more sense to have that…"
Oct 24
Jonathan replied to John's discussion Wellu O2 Ring - is it accurate enough for the medics?
"Hi. I didn't use PatientsKnowBest (ironic name), but I have an email address for my heart department for sending in ECGs.  I was just saying that they may be able to review a PDF when then cannot review a data file from your O2 ring. I am…"
Oct 24
John replied to John's discussion Wellu O2 Ring - is it accurate enough for the medics?
"Hi Jonathan, did you do that through PatientKnowsBest?"
Oct 24
Jonathan replied to John's discussion Wellu O2 Ring - is it accurate enough for the medics?
"On an unrelated topic, I've been able to send ECGs by PDF to my heart clinic. On the subject of Resmed and apnoeas, take a look at https://youtu.be/ufOOAfyzZso?si=Tpdl4EEiCQBZR4iD&t=276 Your machine may be under-reporting. Good…"
Oct 24
John posted a discussion

Wellu O2 Ring - is it accurate enough for the medics?

Moving some furniture my long lost O2 ring continuous oxygen saturation monitor turned up. So I've been wearing it and it tells me I have loads of saturation drops during the night even though my Airsense 10 says I have very few apneas.So I get two…See More
Oct 21
Richard Smith replied to Richard Smith's discussion air bubbles after weight loss
"Hi, Just thought I'd give an update.  So, I had my appointment with the NHS sleep clinic which was much quicker than I anticipated and I've now had the overnight sleep study.  My AHI is now 6, down from over 30, so I'm…"
Oct 15
John replied to Sally Gray's discussion Microplastics risks
"Hi Sally from what I read the airsense doesn't suffer the same foam degredation issues as the infamous Phillips machine.I can conceive it's possible that microplastics may be shed from the flexible main tube.What worries me more about the…"
Oct 7
Jonathan replied to Richard Smith's discussion air bubbles after weight loss
"Hi My sleep clinic discharged me, saying they were happy I was self-managing.  Roll on a decade and the cardiologists taking care of me were very unimpressed and I was re-enrolled.  I expect remote monitoring with current generation Resmed…"
Sep 1
Richard Smith replied to Richard Smith's discussion air bubbles after weight loss
"Hi Jonathan, Thanks again for the info.  My cpap *should* be monitored by the NHS though I haven’t had any contact from them since pre-covid.  I checked out the link you gave to access extra data and I think that’s going to be…"
Aug 31
Jonathan replied to Richard Smith's discussion air bubbles after weight loss
"Hi I have the ResMed Airsense 10 Autoset (APAP).  It's monitored remotely by my NHS sleep clinic and I believe they can make changes to the settings.  I don't know whether they are notified if I make changes, nor whether they…"
Aug 31
Richard Smith replied to Richard Smith's discussion air bubbles after weight loss
"Hi Jonathan, Thanks for the reply.  I'd say that I'm fairly technical.  I have the ResMed Airsense 10 Elite machine.  I've discovered that I can upload data wirelessly from my machine and having lowered the pressure by…"
Aug 30
Jonathan replied to Richard Smith's discussion air bubbles after weight loss
"Hi You don't say how technical you are, or what sort of machine you use.  However https://www.sleephq.com/ has software which allows you to upload data from compatible machines, and analyse your sleep "score", including a…"
Aug 29
Richard Smith posted a discussion

air bubbles after weight loss

Hi,I've been on Mounjaro for about 3 months now, not primarily for weight loss, but I have lost weight around my face and neck.  I've noticed that I am increasingly getting air bubbles in my mouth which of course is disturbing my sleep (and my…See More
Aug 28
Sally Gray posted a discussion

Micro plastics risks

I was reading an article in the I newspaper today written by a journalist who had her blood tested for micro plastics and was shocked by the results.…See More
Aug 3
Alison Mitchell is now a member of Hope2SleepGuide
Jul 2
John posted a discussion

job with the charity

Was wondering if there might be a job for me with Hope2Sleep?(I also just asked this of a group by mistake)See More
Jun 27
Tracey Tilley updated their profile
May 22
Sharon Sullivan posted a discussion

For Sale - Ventura Full Total Face CPAP Mask

I’m selling an Ventura Full Total Face CPAP Mask Large and two spare liners.  I bought it new from the Hope2Sleep shop, but it is not suitable for me.  Only used for about two weeks so I have washed it thoroughly.   Because of this, it is very much…See More
May 17
Tracey Tilley replied to Jim Scullion's discussion UK Attendance Allowance
"I put in a claim for PIP which was denied and now I am over 66 and on pension I tried for AA. Denied again.I have other health conditions ( Diverticular disease and Bile Acid Malabsorbtion ) which I consider hard to live with and they refused all of…"
May 14

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