Hope2SleepGuide

Sleep Apnoea Forum Bringing Help + Support to the Patient

Forum Discussions (849)

Discussions Replies Latest Activity

Hair loss

Hi has anyone noticed hair loss from headgear straps rubbing?

Started by Maureen C in Sleep Apnoea

0 Aug 14, 2022

Weight gain on CPAP?

I have been successfully using CPAP for moderate to severe OSA for nearly 3 years. I have always been slim and never had to watch my weight…

Started by JES SINGLE in Sleep Apnoea

1 Aug 13, 2022
Reply by Will Clifford

USED Resmed F20 Medium headgear and mask

Free to someone who wants to try or has to pay for themselves. It has been used but no longer needed as I now use F30. Obviously, I can spl…

Started by Catherine MacLean in Sleep Apnoea

0 Jun 25, 2022

Hope2Sleep Charity Raffle

Only 24 hours to purchase Raffle Tickets as the draw is tomorrow (Monday 4th April), and we're looking forward to giving good news to 20 lu…

Started by Kath Hope in Sleep Apnoea

0 Apr 3, 2022

Spare unused nasal pillows

Is there a swap section on here, please? I have some Large Nuance nasal pillows, still in their package, that I won't be using, and wondere…

Started by Glenys Everest in Sleep Apnoea

2 Mar 25, 2022
Reply by Glenys Everest

Where do you got your distilled water for humidifier

I have just bought a Transcend 365 machine for travelling however it says distilled water MUST be used in the humidifier or it could cause…

Started by David in Sleep Apnoea

1 Mar 22, 2022
Reply by Kath Hope

First night with Lowenstein Prisma Smart Max and ResMed Airfit F 20. Talk to me- please!

First night ever, using my APAP Prisma machine. 2 1/2 hours at bedtime. Then another hour or so early morning? Both times with 30 mins so…

Started by Sewing1 in Sleep Apnoea

1 Feb 5, 2022
Reply by Kath Hope

Consultant recommendation please?

Hi there, I was diagnosed with OSA through a sleep study and have been using CPAP for a year. However I still don't feel rested after sleep…

Started by Dave Jones in Sleep Apnoea

2 Jan 21, 2022
Reply by Dave Jones

Choosing The Right CPAP or BiPAP Mask For You

Have just completed my latest Blog on getting the right kind of mask, so hope you find it helpful.  With so many types of masks available,…

Started by Kath Hope in Sleep Apnoea

5 Dec 31, 2021
Reply by Fran Hiam

Do tongue exercises work ?

Hi,I saw a study on the internet in which OSA was alleviated with tongue exercises, and some UK medics recommend exercises - thinking of Mi…

Started by John in Sleep Apnoea

3 Dec 3, 2021
Reply by John

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Latest Activity

Jonathan replied to Jim Scullion's discussion UK Attendance Allowance
"My sleep apnoea just requires me to pop a mask on before I go to bed.  But your circumstances may be different."
Monday
Jim Scullion posted a discussion

UK Attendance Allowance

Does anyone know if Obstructive Sleep Apnoea can be the basis for a claim for attendance allowance in the UK?See More
Sep 14
Anthony N is now a member of Hope2SleepGuide
Sep 11
Amanda Lucas is now a member of Hope2SleepGuide
Sep 10
Profile IconHeidi Castro Ledwych and marion Edwards joined Hope2SleepGuide
Sep 9
Profile IconNiki tillson, Canyon and T-Bone joined Hope2SleepGuide
Sep 5
Sarah Kirton is now a member of Hope2SleepGuide
Aug 25
Kath Hope replied to Antony Warren's discussion CPAP machine as cabin baggage on aeroplane
"Yes I empathise, as it was a similar story to mine with Virgin (not chasing them for my official confirmation). Even worse though was they said I couldn't use it and therefore couldn't fly due to my fit-to-fly letter stipulating I need it…"
Aug 25
Jonathan replied to Antony Warren's discussion CPAP machine as cabin baggage on aeroplane
"Ah, yes, I hadn't spotted Vueling's statement.  Thank you.  And your tags are very similar to the one I purchased at the start of my CPAP journey in the 15+ years ago. My only bad experience (as I have written about here) was…"
Aug 25
Kath Hope replied to Antony Warren's discussion CPAP machine as cabin baggage on aeroplane
"The link I provided to Vueling had sub-links Jonathan and this is from one of them about carrying medication onboard, and clearly states you can carry CPAP at no extra charge. I was impressed at the info provided from a flight company I'd not…"
Aug 25
Jonathan replied to Antony Warren's discussion CPAP machine as cabin baggage on aeroplane
"I have a large swing-tag attached to mine.  This appears to be an up-to-date equivalent https://www.cpap.com/productpage/medical-identification-luggage-tag-cpap-equipment The only short-haul flight I have taken was with British Airways, and it…"
Aug 25
Kath Hope replied to The SleepGuide Crew's discussion Welcome to our Forum - Feel Free to Introduce Yourself Here.
"Glad you found us Antony. I had a sleep endoscopy by Bhik Kotecha many years ago but I told him he was coming nowhere near me with his scalpel lol, as I have too many reasons for my severe sleep apnoea. We have Dr Vik Veer now who runs the UCLH…"
Aug 24
Kath Hope replied to Antony Warren's discussion Reporting to DVLA
"DVLA just create problems by not being clear about things. At least you won't need to tick the box next time as it says 'a condition you haven't reported before.' Glad this came up though as we get lots of DVLA queries at the…"
Aug 24
Antony Warren replied to Antony Warren's discussion Reporting to DVLA
"Thanks Kath, I'll hope that they don't pick up on it if I don't tick that box in three years time! I'll apply in good time just in case."
Aug 24
Antony Warren replied to The SleepGuide Crew's discussion Welcome to our Forum - Feel Free to Introduce Yourself Here.
"So pleased to have found this site, thank you. I'm a retired doctor and have had OSA for about 20 years despite having a BMI of 23, only ever sleeping on my side and not smoking. Over that time I have had five successful procedures of…"
Aug 24
Antony Warren replied to Antony Warren's discussion CPAP machine as cabin baggage on aeroplane
"Thanks Kath, I had tried to contact Vueling about this but hadn't found the web page so that's really helpful."
Aug 24
Kath Hope replied to Antony Warren's discussion CPAP machine as cabin baggage on aeroplane
"I had to check out Vueling as it's not a flight company we've been asked about before (perhaps they're newish). If you go to this page on their website you'll see it states you can take the CPAP in its bag and store it under the…"
Aug 23
Kath Hope replied to Antony Warren's discussion Reporting to DVLA
"Thanks for bringing this up Antony as it's going to cause confusion like it did with you. The most important word when completing the form is 'Syndrome,' ie Sleep Apnoea 'Syndrome.' The DVLA call it Sleep Apnoea…"
Aug 23
Antony Warren posted discussions
Aug 23
Antony Warren is now a member of Hope2SleepGuide
Aug 22

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