"Hi
The SleepCube was a private purchase, as way back then my local sleep clinic assessed patients by filming them overnight, whilst wearing an oximeter, and only issued CPAP machines without humidifiers. There was no remote monitoring and…"
Sleep Apnoea Forum Bringing Help + Support to the Patient
Forum Discussions (864)
| Discussions | Replies | Latest Activity |
|---|---|---|
Been declined Nhs treatmentHi. I did a home sleep study privately which showed I have moderate sleep apnoea. That wasn’t really a surprise as I snore terribly and my… Started by Natalie Gray in Sleep Apnoea |
9 |
May 17, 2023 Reply by Richard King |
Daytime Tiredness on CPAPI have been on CPAP therapy for 3 years, recently I am feeling very tired in the daytime. This morning my machine showed 8 hours 28 minute… Started by Mags in Sleep Apnoea |
10 |
May 15, 2023 Reply by Richard King |
Medistrom Pilot and Devilbiss SleepCubeHi everyone, I've used Hope2Sleep charity several times in the past to buy CPA related stuff, including masks and other things. I was think… Started by halfluke in Sleep Apnoea |
21 |
May 13, 2023 Reply by halfluke |
Pillows that might help - not CPAPI have yet to be doagnosed and am doing all the leg work myself to try and help with me sleep.I think I am veering towards probably having… Started by John Kemp in Sleep Apnoea |
1 |
May 2, 2023 Reply by Kath Hope |
Travelling with CPAPHi everyone Does anyone know of a rucksack/backpack suitable for travelling with a CPAP machine. I do a fair amount of travelling and curr… Started by Maxine Chaplain in Sleep Apnoea |
4 |
Feb 27, 2023 Reply by David Crump |
CPAP in campervanhello, i'm going to be sleeping most night in a campervan so my CPAP will be powered by a leisure battery. Has anyone done this? Any adv… Started by sharon in Sleep Apnoea |
0 | Feb 27, 2023 |
Survey for UK CPAP UsersUK Members on CPAP for Sleep Apnoea Therapy Please consider spending a few minutes completing this survey for research led by the Imperial… Started by Kath Hope in Sleep Apnoea |
1 |
Feb 18, 2023 Reply by Angel Eyes |
Machines from India?Looking to replace my machine, I'm seeing online adverts for machines half the usual price shipped from India. Does anyone know if these ar… Started by Anthony Hilbert in Sleep Apnoea |
1 |
Feb 13, 2023 Reply by Kath Hope |
Wanted medium cushion for Amara viewHi, I have an Amara view mask i got hold of cheap but its a small cushion and its too small for me. Has anyone got a medium size cushion t… Started by Bev in Sleep Apnoea |
3 |
Feb 8, 2023 Reply by Kath Hope |
Chest Implant?Dear Folks I assume we have all read about the new chest implant treatment for OSA? I think I will stick to just putting on my mask! https:… Started by Iain Noble in Sleep Apnoea |
1 |
Feb 1, 2023 Reply by Kath Hope |
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Latest Activity
"Yeah I was wondering about email address. I thought probably if they wanted me to mail them they would have given out an address. I can imagine heart data is considered more acute than sleep data, so it would make more sense to have that…"
"Hi.
I didn't use PatientsKnowBest (ironic name), but I have an email address for my heart department for sending in ECGs. I was just saying that they may be able to review a PDF when then cannot review a data file from your O2 ring.
I am…"
"Hi Jonathan, did you do that through PatientKnowsBest?"
"On an unrelated topic, I've been able to send ECGs by PDF to my heart clinic.
On the subject of Resmed and apnoeas, take a look at https://youtu.be/ufOOAfyzZso?si=Tpdl4EEiCQBZR4iD&t=276
Your machine may be under-reporting.
Good…"
Wellu O2 Ring - is it accurate enough for the medics?
Moving some furniture my long lost O2 ring continuous oxygen saturation monitor turned up. So I've been wearing it and it tells me I have loads of saturation drops during the night even though my Airsense 10 says I have very few apneas.So I get two…See More
"Hi,
Just thought I'd give an update. So, I had my appointment with the NHS sleep clinic which was much quicker than I anticipated and I've now had the overnight sleep study. My AHI is now 6, down from over 30, so I'm…"
"Hi Sally from what I read the airsense doesn't suffer the same foam degredation issues as the infamous Phillips machine.I can conceive it's possible that microplastics may be shed from the flexible main tube.What worries me more about the…"
"Hi
My sleep clinic discharged me, saying they were happy I was self-managing. Roll on a decade and the cardiologists taking care of me were very unimpressed and I was re-enrolled. I expect remote monitoring with current generation Resmed…"
"Hi Jonathan,
Thanks again for the info. My cpap *should* be monitored by the NHS though I haven’t had any contact from them since pre-covid. I checked out the link you gave to access extra data and I think that’s going to be…"
"Hi
I have the ResMed Airsense 10 Autoset (APAP). It's monitored remotely by my NHS sleep clinic and I believe they can make changes to the settings. I don't know whether they are notified if I make changes, nor whether they…"
"Hi Jonathan,
Thanks for the reply. I'd say that I'm fairly technical. I have the ResMed Airsense 10 Elite machine. I've discovered that I can upload data wirelessly from my machine and having lowered the pressure by…"
"Hi
You don't say how technical you are, or what sort of machine you use. However https://www.sleephq.com/ has software which allows you to upload data from compatible machines, and analyse your sleep "score", including a…"
air bubbles after weight loss
Hi,I've been on Mounjaro for about 3 months now, not primarily for weight loss, but I have lost weight around my face and neck. I've noticed that I am increasingly getting air bubbles in my mouth which of course is disturbing my sleep (and my…See More
Micro plastics risks
I was reading an article in the I newspaper today written by a journalist who had her blood tested for micro plastics and was shocked by the results.…See More
job with the charity
Was wondering if there might be a job for me with Hope2Sleep?(I also just asked this of a group by mistake)See More
For Sale - Ventura Full Total Face CPAP Mask
I’m selling an Ventura Full Total Face CPAP Mask Large and two spare liners. I bought it new from the Hope2Sleep shop, but it is not suitable for me. Only used for about two weeks so I have washed it thoroughly. Because of this, it is very much…See More
"I put in a claim for PIP which was denied and now I am over 66 and on pension I tried for AA. Denied again.I have other health conditions ( Diverticular disease and Bile Acid Malabsorbtion ) which I consider hard to live with and they refused all of…"
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