Hope2SleepGuide

Sleep Apnoea Forum Bringing Help + Support to the Patient

Forum Discussions (863)

Discussions Replies Latest Activity

advice on sleeping better with sleep apnoea

My 12yr old son has sleep apnoea and is complaing of feeling tied worst in the mornings even he uses the cpac at night, early nights don't…

Started by karen bennett in Sleep Apnoea

16 May 17, 2013
Reply by RockRpsgt

new machine

i am due to get a new machine next week as i dont think mine is working as well as it used to.    i think i've done well keeping it for ten…

Started by diane lester in Sleep Apnoea

4 May 15, 2013
Reply by Mary Zimlich

pillow

can you tell me if any one hs bought apneoa pillow and what you think of it mac

Started by roy mackenzie in Sleep Apnoea

7 May 11, 2013
Reply by RockRpsgt

Muscle Cramps Bladder, Gerd + Body Temperature

This is another post from Dr. Calilung (the dentist who is a fellow CPAP user and treats his mild sleep apnoea sufferer patients with mou…

Started by Kath Hope in Sleep Apnoea

3 May 11, 2013
Reply by RockRpsgt

Dentist's Perspective of Sleep Apnoea

Here's some information shared by a lovely US Dentist friend, Dr. Xerxez Calilung, who has sleep apnoea himself and so does his mother.  He…

Started by Kath Hope in Sleep Apnoea

1 May 11, 2013
Reply by RockRpsgt

Gday

Hi Terry,  Kath and fellow sufferers. . I hope you have been well.. I bought the new CPAP machine yesterday . so im now $ 2500 poorer !!. i…

Started by Kathryn Chapman, in Sleep Apnoea

2 May 10, 2013
Reply by Terry Vella

Quick Vote to help Australians NOT Axe Tonsillectomies

Cunningham MP Sharon Bird has vowed to take up the concerns of Illawarra specialists who fear tonsillectomies will be axed from the Medicar…

Started by Kath Hope in Sleep Apnoea

0 May 1, 2013

New full face mask! Yikes!

Hi, I'm back. I went to my sleep doc today and got switched to the mask that covers my nose and mouth because I wake up with a dry mouth an…

Started by Sandy K. King in Sleep Apnoea

19 May 1, 2013
Reply by Terry Vella

British Lung Foundation - MP's Survey

Hi All, Following a questionnaire and request for action by the British Lung Foundation I sent the prepared question letter about OSAS to…

Started by Graeme Joy in Sleep Apnoea

4 Apr 26, 2013
Reply by Kath Hope

Cleaning equipment!! and Distilled Water??

i got told at hospital just use warm water and a drop of washing up liquid,but iv heard white vinegar is good as well,is there like somet m…

Started by paula jones in Sleep Apnoea

22 Apr 23, 2013
Reply by diane lester

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Latest Activity

Jonathan replied to Richard Smith's discussion air bubbles after weight loss
"Hi My sleep clinic discharged me, saying they were happy I was self-managing.  Roll on a decade and the cardiologists taking care of me were very unimpressed and I was re-enrolled.  I expect remote monitoring with current generation Resmed…"
Sep 1
Richard Smith replied to Richard Smith's discussion air bubbles after weight loss
"Hi Jonathan, Thanks again for the info.  My cpap *should* be monitored by the NHS though I haven’t had any contact from them since pre-covid.  I checked out the link you gave to access extra data and I think that’s going to be…"
Aug 31
Jonathan replied to Richard Smith's discussion air bubbles after weight loss
"Hi I have the ResMed Airsense 10 Autoset (APAP).  It's monitored remotely by my NHS sleep clinic and I believe they can make changes to the settings.  I don't know whether they are notified if I make changes, nor whether they…"
Aug 31
Richard Smith replied to Richard Smith's discussion air bubbles after weight loss
"Hi Jonathan, Thanks for the reply.  I'd say that I'm fairly technical.  I have the ResMed Airsense 10 Elite machine.  I've discovered that I can upload data wirelessly from my machine and having lowered the pressure by…"
Aug 30
Jonathan replied to Richard Smith's discussion air bubbles after weight loss
"Hi You don't say how technical you are, or what sort of machine you use.  However https://www.sleephq.com/ has software which allows you to upload data from compatible machines, and analyse your sleep "score", including a…"
Aug 29
Richard Smith posted a discussion

air bubbles after weight loss

Hi,I've been on Mounjaro for about 3 months now, not primarily for weight loss, but I have lost weight around my face and neck.  I've noticed that I am increasingly getting air bubbles in my mouth which of course is disturbing my sleep (and my…See More
Aug 28
Sally Gray posted a discussion

Micro plastics risks

I was reading an article in the I newspaper today written by a journalist who had her blood tested for micro plastics and was shocked by the results.…See More
Aug 3
Alison Mitchell is now a member of Hope2SleepGuide
Jul 2
John posted a discussion

job with the charity

Was wondering if there might be a job for me with Hope2Sleep?(I also just asked this of a group by mistake)See More
Jun 27
Tracey Tilley updated their profile
May 22
Sharon Sullivan posted a discussion

For Sale - Ventura Full Total Face CPAP Mask

I’m selling an Ventura Full Total Face CPAP Mask Large and two spare liners.  I bought it new from the Hope2Sleep shop, but it is not suitable for me.  Only used for about two weeks so I have washed it thoroughly.   Because of this, it is very much…See More
May 17
Tracey Tilley replied to Jim Scullion's discussion UK Attendance Allowance
"I put in a claim for PIP which was denied and now I am over 66 and on pension I tried for AA. Denied again.I have other health conditions ( Diverticular disease and Bile Acid Malabsorbtion ) which I consider hard to live with and they refused all of…"
May 14
Jonathan replied to Sally Gray's discussion ResMed AirMini for travel
"No personal experience, but CPAP.com review of AirMini The AirMini runs at about 30 decibels, which is about the same sound level as a whispered conversation. For comparison, full-sized CPAPs tend to run around 26-28 decibels. Due to their…"
May 5
Sally Gray posted a discussion

ResMed AirMini for travel

I am considering either buying or renting an AirMini for a forthcoming holiday this month where I will be sharing a twin room. I have read that they’re quite noisy and I don’t want to waste my money on either rental or purchase if the noise level…See More
May 3
Sally Gray replied to Nick Daniel's discussion CPAP Total Face Mask
"Hi, I use a ResMed F20 and had the same issue with the silicone full face mask causing red marks and soreness on my nose bridge. I switched over to the Airtouch memory foam full face masks which are expensive and not supplied by the NHS, but the…"
May 3
Kath Hope replied to Glassdaisy's discussion Soft Cap
"It's very much still relevant and we're getting closer to have them manufactured and has been no easy challenge. In fact we were speaking with the company working with us on this only yesterday. If you're not on our newsletter list…"
Mar 27
Glassdaisy posted a discussion

Soft Cap

some time ago I was told that Hope2Sleep was researching a replacement for the discontinued Soft Cap.. as I have seen nothing to indicate moving forward on this, would I be right in assuming you decided it is no longer relevant?See More
Mar 27
Glassdaisy replied to Nick Daniel's discussion CPAP Total Face Mask
"I expect others may have responded by now, but I use the Fitlife full face mask. I kept getting a hard lump on my nose when first starting out & it got so bad that I ended up buying my own masks as my clinic would only give the Fitlife to new…"
Mar 27
Wendy Anthony is now a member of Hope2SleepGuide
Mar 25
David McDade is now a member of Hope2SleepGuide
Jan 3

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