Hope2SleepGuide

Sleep Apnoea Forum Bringing Help + Support to the Patient

Forum Discussions (861)

Discussions Replies Latest Activity

pillow

can you tell me if any one hs bought apneoa pillow and what you think of it mac

Started by roy mackenzie in Sleep Apnoea

7 May 11, 2013
Reply by RockRpsgt

Muscle Cramps Bladder, Gerd + Body Temperature

This is another post from Dr. Calilung (the dentist who is a fellow CPAP user and treats his mild sleep apnoea sufferer patients with mou…

Started by Kath Hope in Sleep Apnoea

3 May 11, 2013
Reply by RockRpsgt

Dentist's Perspective of Sleep Apnoea

Here's some information shared by a lovely US Dentist friend, Dr. Xerxez Calilung, who has sleep apnoea himself and so does his mother.  He…

Started by Kath Hope in Sleep Apnoea

1 May 11, 2013
Reply by RockRpsgt

Gday

Hi Terry,  Kath and fellow sufferers. . I hope you have been well.. I bought the new CPAP machine yesterday . so im now $ 2500 poorer !!. i…

Started by Kathryn Chapman, in Sleep Apnoea

2 May 10, 2013
Reply by Terry Vella

Quick Vote to help Australians NOT Axe Tonsillectomies

Cunningham MP Sharon Bird has vowed to take up the concerns of Illawarra specialists who fear tonsillectomies will be axed from the Medicar…

Started by Kath Hope in Sleep Apnoea

0 May 1, 2013

New full face mask! Yikes!

Hi, I'm back. I went to my sleep doc today and got switched to the mask that covers my nose and mouth because I wake up with a dry mouth an…

Started by Sandy K. King in Sleep Apnoea

19 May 1, 2013
Reply by Terry Vella

British Lung Foundation - MP's Survey

Hi All, Following a questionnaire and request for action by the British Lung Foundation I sent the prepared question letter about OSAS to…

Started by Graeme Joy in Sleep Apnoea

4 Apr 26, 2013
Reply by Kath Hope

Cleaning equipment!! and Distilled Water??

i got told at hospital just use warm water and a drop of washing up liquid,but iv heard white vinegar is good as well,is there like somet m…

Started by paula jones in Sleep Apnoea

22 Apr 23, 2013
Reply by diane lester

An unusual problem

I was diagnosed with severe sleep apnoea middle of last year & although had a few teething problems re feeling claustrophobic using my…

Started by Debbie Houghton in Sleep Apnoea

6 Apr 23, 2013
Reply by diane lester

Help Needed - Please Invite Your MP's

The British Lung Foundation are hosting a Parliamentary Reception on the 23rd April in the House of Commons to give the MP's the true fact…

Started by Kath Hope in Sleep Apnoea

4 Apr 20, 2013
Reply by Kath Hope

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Latest Activity

Alison Mitchell is now a member of Hope2SleepGuide
Jul 2
John posted a discussion

job with the charity

Was wondering if there might be a job for me with Hope2Sleep?(I also just asked this of a group by mistake)See More
Jun 27
Tracey Tilley updated their profile
May 22
Sharon Sullivan posted a discussion

For Sale - Ventura Full Total Face CPAP Mask

I’m selling an Ventura Full Total Face CPAP Mask Large and two spare liners.  I bought it new from the Hope2Sleep shop, but it is not suitable for me.  Only used for about two weeks so I have washed it thoroughly.   Because of this, it is very much…See More
May 17
Tracey Tilley replied to Jim Scullion's discussion UK Attendance Allowance
"I put in a claim for PIP which was denied and now I am over 66 and on pension I tried for AA. Denied again.I have other health conditions ( Diverticular disease and Bile Acid Malabsorbtion ) which I consider hard to live with and they refused all of…"
May 14
Jonathan replied to Sally Gray's discussion ResMed AirMini for travel
"No personal experience, but CPAP.com review of AirMini The AirMini runs at about 30 decibels, which is about the same sound level as a whispered conversation. For comparison, full-sized CPAPs tend to run around 26-28 decibels. Due to their…"
May 5
Sally Gray posted a discussion

ResMed AirMini for travel

I am considering either buying or renting an AirMini for a forthcoming holiday this month where I will be sharing a twin room. I have read that they’re quite noisy and I don’t want to waste my money on either rental or purchase if the noise level…See More
May 3
Sally Gray replied to Nick Daniel's discussion CPAP Total Face Mask
"Hi, I use a ResMed F20 and had the same issue with the silicone full face mask causing red marks and soreness on my nose bridge. I switched over to the Airtouch memory foam full face masks which are expensive and not supplied by the NHS, but the…"
May 3
Kath Hope replied to Glassdaisy's discussion Soft Cap
"It's very much still relevant and we're getting closer to have them manufactured and has been no easy challenge. In fact we were speaking with the company working with us on this only yesterday. If you're not on our newsletter list…"
Mar 27
Glassdaisy posted a discussion

Soft Cap

some time ago I was told that Hope2Sleep was researching a replacement for the discontinued Soft Cap.. as I have seen nothing to indicate moving forward on this, would I be right in assuming you decided it is no longer relevant?See More
Mar 27
Glassdaisy replied to Nick Daniel's discussion CPAP Total Face Mask
"I expect others may have responded by now, but I use the Fitlife full face mask. I kept getting a hard lump on my nose when first starting out & it got so bad that I ended up buying my own masks as my clinic would only give the Fitlife to new…"
Mar 27
Wendy Anthony is now a member of Hope2SleepGuide
Mar 25
David McDade is now a member of Hope2SleepGuide
Jan 3
Nick Daniel replied to John's discussion Are every small CPAP machines any good?
"Yes, it does the job. I use a Powapacs Atom for portable power "
Dec 18, 2024
John replied to John's discussion Are every small CPAP machines any good?
"Hi Nick thanks. Does it do the job and could you camp with it?"
Dec 18, 2024
Nick Daniel posted a discussion

CPAP Total Face Mask

I was curious whether anyone has used the CPAP Total Face Masks and could pass on their observations? I've been using an Airfit F20 for years which is fine apart from the permanent red mark on the bridge of my nose, and have recently tried the…See More
Dec 17, 2024
Nick Daniel replied to John's discussion Are every small CPAP machines any good?
"I've been using the Resmed Airmini for about 5 years when travelling - overall lightweight and small and can be controlled by an App, but it does produce a loud whistling/wind sound for me which hasn't been reduced by an inline filter or…"
Dec 17, 2024
Greg Lloyd is now a member of Hope2SleepGuide
Dec 6, 2024
Jonathan replied to David Hudson's discussion Pressure waking me up. Belching and wind
"Hi It sounds like you need to have more conversations with your sleep clinic.  There's little point in having a high pressure if it means you cannot tolerate the machine.  There's an interesting video here…"
Dec 1, 2024
David Hudson posted a discussion

Pressure waking me up. Belching and wind

HiI'm using the prisma smart max machine. Initially I was just on a nasal mask, this changed as I was sleeping with my mouth open. I then went to face and nose mask and complained of bad wind and belching. Sometimes the pressure in the night was…See More
Nov 28, 2024

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