"Hi
The SleepCube was a private purchase, as way back then my local sleep clinic assessed patients by filming them overnight, whilst wearing an oximeter, and only issued CPAP machines without humidifiers. There was no remote monitoring and…"
Sleep Apnoea Forum Bringing Help + Support to the Patient
Forum Discussions (864)
| Discussions | Replies | Latest Activity |
|---|---|---|
Cleaning equipment!! and Distilled Water??i got told at hospital just use warm water and a drop of washing up liquid,but iv heard white vinegar is good as well,is there like somet m… Started by paula jones in Sleep Apnoea |
22 |
Apr 23, 2013 Reply by diane lester |
An unusual problemI was diagnosed with severe sleep apnoea middle of last year & although had a few teething problems re feeling claustrophobic using my… Started by Debbie Houghton in Sleep Apnoea |
6 |
Apr 23, 2013 Reply by diane lester |
Help Needed - Please Invite Your MP'sThe British Lung Foundation are hosting a Parliamentary Reception on the 23rd April in the House of Commons to give the MP's the true fact… Started by Kath Hope in Sleep Apnoea |
4 |
Apr 20, 2013 Reply by Kath Hope |
Wake-ups in the nightI was diagnosed with Sleep Apnoea in June, 2011. I'm doing well with the CPAP and mask, etc. but I have a persistent problem: I wake a… Started by ZolliStar in Sleep Apnoea |
15 |
Apr 13, 2013 Reply by Kath Hope |
BiPAP/BiLevel Users - Urgent Request***URGENT*** If anyone is using a BiPap or BiLevel Machine and has spare time this Thursday afternoon (11th April) to travel to London for… Started by Kath Hope in Sleep Apnoea |
2 |
Apr 11, 2013 Reply by Kath Hope |
No need to suffer - If your CPAP treatment for Sleep Apnoea isn't working don't ignore it! - Are you getting the best treatment available?I have been under the care of a Sleep Clinic for a sleep apnoea condition and been treated with a Respironics CPAP machine and humidifier a… Started by snoreyhead in Sleep Apnoea |
8 |
Mar 30, 2013 Reply by Kath Hope |
CPAP BACTERIAL FILTER (One) - For Allergy Sufferers - Also quietens down the noise from CPAPI purchased a CPAP BACTERIAL FILTER (One) - For Allergy Sufferers from the Hope2Sleep Shop as I thought this may help my blocked nose issue… Started by snoreyhead in Sleep Apnoea |
23 |
Mar 30, 2013 Reply by Kath Hope |
CONFUSEDI'm a little confused and wondered if anyone can offer any advice...... At the moment I am SUSPECTED of being a sleep apnoea sufferer, my w… Started by Javed Iqbal in Sleep Apnoea |
12 |
Mar 29, 2013 Reply by Kath Hope |
Edinburgh Doctor to Speak Out of Lack of Investment by NHS into Sleep ApnoeaDoctor: NHS must wake up to ‘deadly’ sleep apnoea Experts will warn that the NHS is not investing enough in services to treat the thousands… Started by Kath Hope in Sleep Apnoea |
0 | Mar 25, 2013 |
CANCELLED EVENT AT HUDDERSFIELD THIS SATURDAYJust making sure everyone who was planning on going to the Sleep Apnoea Event in Huddersfield tomorrow (Saturday, 23rd March) has seen it h… Started by Kath Hope in Sleep Apnoea |
0 | Mar 22, 2013 |
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Latest Activity
"Yeah I was wondering about email address. I thought probably if they wanted me to mail them they would have given out an address. I can imagine heart data is considered more acute than sleep data, so it would make more sense to have that…"
"Hi.
I didn't use PatientsKnowBest (ironic name), but I have an email address for my heart department for sending in ECGs. I was just saying that they may be able to review a PDF when then cannot review a data file from your O2 ring.
I am…"
"Hi Jonathan, did you do that through PatientKnowsBest?"
"On an unrelated topic, I've been able to send ECGs by PDF to my heart clinic.
On the subject of Resmed and apnoeas, take a look at https://youtu.be/ufOOAfyzZso?si=Tpdl4EEiCQBZR4iD&t=276
Your machine may be under-reporting.
Good…"
Wellu O2 Ring - is it accurate enough for the medics?
Moving some furniture my long lost O2 ring continuous oxygen saturation monitor turned up. So I've been wearing it and it tells me I have loads of saturation drops during the night even though my Airsense 10 says I have very few apneas.So I get two…See More
"Hi,
Just thought I'd give an update. So, I had my appointment with the NHS sleep clinic which was much quicker than I anticipated and I've now had the overnight sleep study. My AHI is now 6, down from over 30, so I'm…"
"Hi Sally from what I read the airsense doesn't suffer the same foam degredation issues as the infamous Phillips machine.I can conceive it's possible that microplastics may be shed from the flexible main tube.What worries me more about the…"
"Hi
My sleep clinic discharged me, saying they were happy I was self-managing. Roll on a decade and the cardiologists taking care of me were very unimpressed and I was re-enrolled. I expect remote monitoring with current generation Resmed…"
"Hi Jonathan,
Thanks again for the info. My cpap *should* be monitored by the NHS though I haven’t had any contact from them since pre-covid. I checked out the link you gave to access extra data and I think that’s going to be…"
"Hi
I have the ResMed Airsense 10 Autoset (APAP). It's monitored remotely by my NHS sleep clinic and I believe they can make changes to the settings. I don't know whether they are notified if I make changes, nor whether they…"
"Hi Jonathan,
Thanks for the reply. I'd say that I'm fairly technical. I have the ResMed Airsense 10 Elite machine. I've discovered that I can upload data wirelessly from my machine and having lowered the pressure by…"
"Hi
You don't say how technical you are, or what sort of machine you use. However https://www.sleephq.com/ has software which allows you to upload data from compatible machines, and analyse your sleep "score", including a…"
air bubbles after weight loss
Hi,I've been on Mounjaro for about 3 months now, not primarily for weight loss, but I have lost weight around my face and neck. I've noticed that I am increasingly getting air bubbles in my mouth which of course is disturbing my sleep (and my…See More
Micro plastics risks
I was reading an article in the I newspaper today written by a journalist who had her blood tested for micro plastics and was shocked by the results.…See More
job with the charity
Was wondering if there might be a job for me with Hope2Sleep?(I also just asked this of a group by mistake)See More
For Sale - Ventura Full Total Face CPAP Mask
I’m selling an Ventura Full Total Face CPAP Mask Large and two spare liners. I bought it new from the Hope2Sleep shop, but it is not suitable for me. Only used for about two weeks so I have washed it thoroughly. Because of this, it is very much…See More
"I put in a claim for PIP which was denied and now I am over 66 and on pension I tried for AA. Denied again.I have other health conditions ( Diverticular disease and Bile Acid Malabsorbtion ) which I consider hard to live with and they refused all of…"
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