"Hi
The SleepCube was a private purchase, as way back then my local sleep clinic assessed patients by filming them overnight, whilst wearing an oximeter, and only issued CPAP machines without humidifiers. There was no remote monitoring and…"
Sleep Apnoea Forum Bringing Help + Support to the Patient
Forum Discussions (864)
| Discussions | Replies | Latest Activity |
|---|---|---|
Ebay and Sale of Masks + AccessoriesI am constantly asked why people can't buy and sell their masks on Ebay, and have had many discussions with them about this fact. Tonight… Started by Kath Hope in Sleep Apnoea |
12 |
Mar 21, 2013 Reply by Kath Hope |
Need Help with Keeping Mask OnHi Everyone, I am fairly new to using CPAP. I have been wearing it at night and with taking naps but I wake up with it on the floor. I do… Started by Nancy Dugdale in Sleep Apnoea |
2 |
Mar 19, 2013 Reply by Terry Vella |
Family GP's Could Take More Active Role With Sleep ApnoeaHere's an interesting article about how our GP's could treat uncomplicated Sleep Apnoea:- Family Doc's Can Treat Simple Sleep Apnoea With… Started by Kath Hope in Sleep Apnoea |
6 |
Mar 17, 2013 Reply by Terry Vella |
Advice for school? Son with OSA awaiting surgery...Hi all, hoping you can help, my son has been diagnosed with OSA and is awaiting surgery, tonsillectomy and turbinates shrunk, has had adeno… Started by Laura in Sleep Apnoea |
5 |
Mar 16, 2013 Reply by Kath Hope |
World Sleep Day 2013Well, it's been a very busy day today for World Sleep Day, and of all days I was reminded of how life used to be for me in the days before… Started by Kath Hope in Sleep Apnoea |
1 |
Mar 16, 2013 Reply by Terry Vella |
Pilairo full reviewFisher and Paykel Pilairo full review. Well this is going to be interesting. The Pilairo is F&Ps latest nasal pillows mask, it has be… Started by symmit in Sleep Apnoea |
3 |
Mar 9, 2013 Reply by Deborah Wainwright |
New (to me) sealant for mask leaksHello to my friends across the water. I read in a forum about using the silicone that divers use to seal their scuba masks to seal CPAP ma… Started by Mary Zimlich in Sleep Apnoea |
6 |
Mar 9, 2013 Reply by Kath Hope |
Still SnoringMy Husband tells me that, despite wearing a nasal mask, I still snore quite a bit. Has anyone had this problem and if so what did they do… Started by Sally Gould in Sleep Apnoea |
2 |
Mar 8, 2013 Reply by Marion@As I Live and Breathe |
Diagnosis informationI was diagnosed as suffering from sleep apnoea last November after going to my local hospital overnight for a sleep study; however, despite… Started by Linda in Sleep Apnoea |
3 |
Feb 24, 2013 Reply by Kath Hope |
PilairoF&Ps new pillows mask is now available in the UK - mine's ordered, so I'll post a review soon! Started by symmit in Sleep Apnoea |
2 |
Feb 23, 2013 Reply by symmit |
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Latest Activity
"Yeah I was wondering about email address. I thought probably if they wanted me to mail them they would have given out an address. I can imagine heart data is considered more acute than sleep data, so it would make more sense to have that…"
"Hi.
I didn't use PatientsKnowBest (ironic name), but I have an email address for my heart department for sending in ECGs. I was just saying that they may be able to review a PDF when then cannot review a data file from your O2 ring.
I am…"
"Hi Jonathan, did you do that through PatientKnowsBest?"
"On an unrelated topic, I've been able to send ECGs by PDF to my heart clinic.
On the subject of Resmed and apnoeas, take a look at https://youtu.be/ufOOAfyzZso?si=Tpdl4EEiCQBZR4iD&t=276
Your machine may be under-reporting.
Good…"
Wellu O2 Ring - is it accurate enough for the medics?
Moving some furniture my long lost O2 ring continuous oxygen saturation monitor turned up. So I've been wearing it and it tells me I have loads of saturation drops during the night even though my Airsense 10 says I have very few apneas.So I get two…See More
"Hi,
Just thought I'd give an update. So, I had my appointment with the NHS sleep clinic which was much quicker than I anticipated and I've now had the overnight sleep study. My AHI is now 6, down from over 30, so I'm…"
"Hi Sally from what I read the airsense doesn't suffer the same foam degredation issues as the infamous Phillips machine.I can conceive it's possible that microplastics may be shed from the flexible main tube.What worries me more about the…"
"Hi
My sleep clinic discharged me, saying they were happy I was self-managing. Roll on a decade and the cardiologists taking care of me were very unimpressed and I was re-enrolled. I expect remote monitoring with current generation Resmed…"
"Hi Jonathan,
Thanks again for the info. My cpap *should* be monitored by the NHS though I haven’t had any contact from them since pre-covid. I checked out the link you gave to access extra data and I think that’s going to be…"
"Hi
I have the ResMed Airsense 10 Autoset (APAP). It's monitored remotely by my NHS sleep clinic and I believe they can make changes to the settings. I don't know whether they are notified if I make changes, nor whether they…"
"Hi Jonathan,
Thanks for the reply. I'd say that I'm fairly technical. I have the ResMed Airsense 10 Elite machine. I've discovered that I can upload data wirelessly from my machine and having lowered the pressure by…"
"Hi
You don't say how technical you are, or what sort of machine you use. However https://www.sleephq.com/ has software which allows you to upload data from compatible machines, and analyse your sleep "score", including a…"
air bubbles after weight loss
Hi,I've been on Mounjaro for about 3 months now, not primarily for weight loss, but I have lost weight around my face and neck. I've noticed that I am increasingly getting air bubbles in my mouth which of course is disturbing my sleep (and my…See More
Micro plastics risks
I was reading an article in the I newspaper today written by a journalist who had her blood tested for micro plastics and was shocked by the results.…See More
job with the charity
Was wondering if there might be a job for me with Hope2Sleep?(I also just asked this of a group by mistake)See More
For Sale - Ventura Full Total Face CPAP Mask
I’m selling an Ventura Full Total Face CPAP Mask Large and two spare liners. I bought it new from the Hope2Sleep shop, but it is not suitable for me. Only used for about two weeks so I have washed it thoroughly. Because of this, it is very much…See More
"I put in a claim for PIP which was denied and now I am over 66 and on pension I tried for AA. Denied again.I have other health conditions ( Diverticular disease and Bile Acid Malabsorbtion ) which I consider hard to live with and they refused all of…"
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