Hope2SleepGuide

Sleep Apnoea Forum Bringing Help + Support to the Patient

Forum Discussions (863)

Discussions Replies Latest Activity

'Rainout' - Water in the Hose and/or Mask from the CPAP Humidifier

We're having lots more queries this winter than normal at the Charity about rainout (water in the mask and hose, which is probably due to…

Started by Kath Hope in Sleep Apnoea

0 Jan 15, 2023

M/W & L AVAILABLE-REDUCED PRICE £10 each-Philips Respironics - Dreamwear Full Face Mask Cushions

Hi there!  I am selling some Full Face Mask Cushions I bought the FitPack of the Philips Respironics Dreamwear Full Face CPAP Mask which I…

Started by Sharon Sullivan in Sleep Apnoea

6 Dec 7, 2022
Reply by Mair

Potential spam

Got this message in my inbox looks dodgy  Good Day, How is everything with you, I picked interest on you after going through your short p…

Started by RobT in Sleep Apnoea

7 Oct 19, 2022
Reply by Kath Hope

Mask seal, the endless roller coaster

I have an F20 mask and have tried the memory foam cushions airTouch... I seem to get inconsistent seal scores from 20/20 to 0/20.. drives m…

Started by RobT in Sleep Apnoea

1 Oct 9, 2022
Reply by Kath Hope

Hair loss

Hi has anyone noticed hair loss from headgear straps rubbing?

Started by Maureen C in Sleep Apnoea

0 Aug 14, 2022

Weight gain on CPAP?

I have been successfully using CPAP for moderate to severe OSA for nearly 3 years. I have always been slim and never had to watch my weight…

Started by JES SINGLE in Sleep Apnoea

1 Aug 13, 2022
Reply by Will Clifford

USED Resmed F20 Medium headgear and mask

Free to someone who wants to try or has to pay for themselves. It has been used but no longer needed as I now use F30. Obviously, I can spl…

Started by Catherine MacLean in Sleep Apnoea

0 Jun 25, 2022

Hope2Sleep Charity Raffle

Only 24 hours to purchase Raffle Tickets as the draw is tomorrow (Monday 4th April), and we're looking forward to giving good news to 20 lu…

Started by Kath Hope in Sleep Apnoea

0 Apr 3, 2022

Spare unused nasal pillows

Is there a swap section on here, please? I have some Large Nuance nasal pillows, still in their package, that I won't be using, and wondere…

Started by Glenys Everest in Sleep Apnoea

2 Mar 25, 2022
Reply by Glenys Everest

Where do you got your distilled water for humidifier

I have just bought a Transcend 365 machine for travelling however it says distilled water MUST be used in the humidifier or it could cause…

Started by David in Sleep Apnoea

1 Mar 22, 2022
Reply by Kath Hope

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Latest Activity

Jonathan replied to Richard Smith's discussion air bubbles after weight loss
"Hi My sleep clinic discharged me, saying they were happy I was self-managing.  Roll on a decade and the cardiologists taking care of me were very unimpressed and I was re-enrolled.  I expect remote monitoring with current generation Resmed…"
Sep 1
Richard Smith replied to Richard Smith's discussion air bubbles after weight loss
"Hi Jonathan, Thanks again for the info.  My cpap *should* be monitored by the NHS though I haven’t had any contact from them since pre-covid.  I checked out the link you gave to access extra data and I think that’s going to be…"
Aug 31
Jonathan replied to Richard Smith's discussion air bubbles after weight loss
"Hi I have the ResMed Airsense 10 Autoset (APAP).  It's monitored remotely by my NHS sleep clinic and I believe they can make changes to the settings.  I don't know whether they are notified if I make changes, nor whether they…"
Aug 31
Richard Smith replied to Richard Smith's discussion air bubbles after weight loss
"Hi Jonathan, Thanks for the reply.  I'd say that I'm fairly technical.  I have the ResMed Airsense 10 Elite machine.  I've discovered that I can upload data wirelessly from my machine and having lowered the pressure by…"
Aug 30
Jonathan replied to Richard Smith's discussion air bubbles after weight loss
"Hi You don't say how technical you are, or what sort of machine you use.  However https://www.sleephq.com/ has software which allows you to upload data from compatible machines, and analyse your sleep "score", including a…"
Aug 29
Richard Smith posted a discussion

air bubbles after weight loss

Hi,I've been on Mounjaro for about 3 months now, not primarily for weight loss, but I have lost weight around my face and neck.  I've noticed that I am increasingly getting air bubbles in my mouth which of course is disturbing my sleep (and my…See More
Aug 28
Sally Gray posted a discussion

Micro plastics risks

I was reading an article in the I newspaper today written by a journalist who had her blood tested for micro plastics and was shocked by the results.…See More
Aug 3
Alison Mitchell is now a member of Hope2SleepGuide
Jul 2
John posted a discussion

job with the charity

Was wondering if there might be a job for me with Hope2Sleep?(I also just asked this of a group by mistake)See More
Jun 27
Tracey Tilley updated their profile
May 22
Sharon Sullivan posted a discussion

For Sale - Ventura Full Total Face CPAP Mask

I’m selling an Ventura Full Total Face CPAP Mask Large and two spare liners.  I bought it new from the Hope2Sleep shop, but it is not suitable for me.  Only used for about two weeks so I have washed it thoroughly.   Because of this, it is very much…See More
May 17
Tracey Tilley replied to Jim Scullion's discussion UK Attendance Allowance
"I put in a claim for PIP which was denied and now I am over 66 and on pension I tried for AA. Denied again.I have other health conditions ( Diverticular disease and Bile Acid Malabsorbtion ) which I consider hard to live with and they refused all of…"
May 14
Jonathan replied to Sally Gray's discussion ResMed AirMini for travel
"No personal experience, but CPAP.com review of AirMini The AirMini runs at about 30 decibels, which is about the same sound level as a whispered conversation. For comparison, full-sized CPAPs tend to run around 26-28 decibels. Due to their…"
May 5
Sally Gray posted a discussion

ResMed AirMini for travel

I am considering either buying or renting an AirMini for a forthcoming holiday this month where I will be sharing a twin room. I have read that they’re quite noisy and I don’t want to waste my money on either rental or purchase if the noise level…See More
May 3
Sally Gray replied to Nick Daniel's discussion CPAP Total Face Mask
"Hi, I use a ResMed F20 and had the same issue with the silicone full face mask causing red marks and soreness on my nose bridge. I switched over to the Airtouch memory foam full face masks which are expensive and not supplied by the NHS, but the…"
May 3
Kath Hope replied to Glassdaisy's discussion Soft Cap
"It's very much still relevant and we're getting closer to have them manufactured and has been no easy challenge. In fact we were speaking with the company working with us on this only yesterday. If you're not on our newsletter list…"
Mar 27
Glassdaisy posted a discussion

Soft Cap

some time ago I was told that Hope2Sleep was researching a replacement for the discontinued Soft Cap.. as I have seen nothing to indicate moving forward on this, would I be right in assuming you decided it is no longer relevant?See More
Mar 27
Glassdaisy replied to Nick Daniel's discussion CPAP Total Face Mask
"I expect others may have responded by now, but I use the Fitlife full face mask. I kept getting a hard lump on my nose when first starting out & it got so bad that I ended up buying my own masks as my clinic would only give the Fitlife to new…"
Mar 27
Wendy Anthony is now a member of Hope2SleepGuide
Mar 25
David McDade is now a member of Hope2SleepGuide
Jan 3

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