Hope2SleepGuide

Sleep Apnoea Forum Bringing Help + Support to the Patient

Forum Discussions (858)

Discussions Replies Latest Activity

Hope2Sleep Charity Helps with India's COVID-19 Crisis

Sorry the forum hasn't been as active as normal as all of us at the Hope2Sleep Charity have hardly had chance to breathe (except in sleep w…

Started by Kath Hope in Sleep Apnoea

0 May 25, 2021

Help for NHS Research when New to CPAP

We've been asked to help a team of researchers from the NHS (including Professor Joerg Steier from Guy's & St Thomas' who is our charit…

Started by Kath Hope in Sleep Apnoea

0 May 25, 2021

Noisy mask problem

I have had my Fisher and Paykel Simplus mask for about five years and have been very happy with it, until about two weeks ago. I did my usu…

Started by Judith-Ann Wardlaw in Sleep Apnoea

1 May 25, 2021
Reply by Kath Hope

Why does AHI increase with more mask leak?

My AHI increases with nights with increased mask leak.  I am using an Auto CPAP. Is this a detection/flow phenomena? Thanks

Started by Michael Jones in Sleep Apnoea

0 May 19, 2021

Dry Mouth - best humidifier settings advice

Hi I have a PR Dreamstation Auto with integrated humidifier connected to a Amara Viewfull face mask via a heated wire tube. My average pres…

Started by Michael Jones in Sleep Apnoea

2 May 19, 2021
Reply by Michael Jones

Dry Mouth - best humidifier settings advice

Hi I have a PR Dreamstation Auto with integrated humidifier connected to a Amara Viewfull face mask via a heated wire tube. My average pres…

Started by Michael Jones in Sleep Apnoea

0 May 16, 2021

Split mask and hospital not helping.

Any ideas about emergency repair to a split mask? It split on Friday night so I've been with9ut my CPAP since then . Called the hospital…

Started by Amanda Farley in Sleep Apnoea

3 May 4, 2021
Reply by Kath Hope

Using humidifier

All the tips I've read regarding cleaning the humidifier state regularly washing with a gentle soap and water and only using distilled wate…

Started by Maxine Chaplain in Sleep Apnoea

3 Apr 28, 2021
Reply by Kath Hope

Newly diagnosed via Phillips at home test and needing advice

Hi all, I have recently been diagnosed with OSA via home test i paid for privately with Phillips and looking at some advice to get treated…

Started by Damien in Sleep Apnoea

12 Mar 13, 2021
Reply by Judith Wilson

Sleep disorder following mini stroke

Hi Kath and everybody. My name is Raza and am new to this forum. It feels really good to sound out people who have first hand experience of…

Started by Raza silveira in Sleep Apnoea

5 Mar 1, 2021
Reply by Kath Hope

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Latest Activity

Kath Hope replied to Glassdaisy's discussion Soft Cap
"It's very much still relevant and we're getting closer to have them manufactured and has been no easy challenge. In fact we were speaking with the company working with us on this only yesterday. If you're not on our newsletter list…"
Mar 27
Glassdaisy posted a discussion

Soft Cap

some time ago I was told that Hope2Sleep was researching a replacement for the discontinued Soft Cap.. as I have seen nothing to indicate moving forward on this, would I be right in assuming you decided it is no longer relevant?See More
Mar 27
Glassdaisy replied to Nick Daniel's discussion CPAP Total Face Mask
"I expect others may have responded by now, but I use the Fitlife full face mask. I kept getting a hard lump on my nose when first starting out & it got so bad that I ended up buying my own masks as my clinic would only give the Fitlife to new…"
Mar 27
Wendy Anthony is now a member of Hope2SleepGuide
Mar 25
David McDade is now a member of Hope2SleepGuide
Jan 3
Nick Daniel replied to John's discussion Are every small CPAP machines any good?
"Yes, it does the job. I use a Powapacs Atom for portable power "
Dec 18, 2024
John replied to John's discussion Are every small CPAP machines any good?
"Hi Nick thanks. Does it do the job and could you camp with it?"
Dec 18, 2024
Nick Daniel posted a discussion

CPAP Total Face Mask

I was curious whether anyone has used the CPAP Total Face Masks and could pass on their observations? I've been using an Airfit F20 for years which is fine apart from the permanent red mark on the bridge of my nose, and have recently tried the…See More
Dec 17, 2024
Nick Daniel replied to John's discussion Are every small CPAP machines any good?
"I've been using the Resmed Airmini for about 5 years when travelling - overall lightweight and small and can be controlled by an App, but it does produce a loud whistling/wind sound for me which hasn't been reduced by an inline filter or…"
Dec 17, 2024
Greg Lloyd is now a member of Hope2SleepGuide
Dec 6, 2024
Jonathan replied to David Hudson's discussion Pressure waking me up. Belching and wind
"Hi It sounds like you need to have more conversations with your sleep clinic.  There's little point in having a high pressure if it means you cannot tolerate the machine.  There's an interesting video here…"
Dec 1, 2024
David Hudson posted a discussion

Pressure waking me up. Belching and wind

HiI'm using the prisma smart max machine. Initially I was just on a nasal mask, this changed as I was sleeping with my mouth open. I then went to face and nose mask and complained of bad wind and belching. Sometimes the pressure in the night was…See More
Nov 28, 2024
Jonathan replied to Jonathan's discussion ResMed AirSense 10 getting noisy
"Just to tidy this up, I finally had an in-person review by my sleep clinic yesterday, who agreed the ResMed AirSense 10 was "wheezy" and replaced the machine."
Nov 9, 2024
Collette rose replied to Collette rose's discussion 1st time and I’ve failed the mask leak test
"thank you jonathan,i did get the it pack so tried the small and still struggled but i was sat up in bed so will try lying down great suggestion "
Nov 3, 2024
Jonathan replied to Collette rose's discussion 1st time and I’ve failed the mask leak test
"Hi My first thought is "don't panic"!  We're all a bit different, and there are many things that can be tweaked.  I took to CPAP therapy like a duck to water, but I've had friends who say they can't cope, but…"
Nov 2, 2024
Collette rose posted a discussion

1st time and I’ve failed the mask leak test

Hi everyone, today I received my rental kit - prisma smart max, plus a Philips dreamwear mask which I’ve been wearing unconnected to try and get used to it. I just did a mask fit test using a medium mask and got a constant red/orange leak warning…See More
Nov 2, 2024
Collette rose is now a member of Hope2SleepGuide
Oct 31, 2024
John posted a discussion
Oct 30, 2024
Profile IconBill Wright, Nicole Watson, TJ Bennett and 2 more joined Hope2SleepGuide
Oct 29, 2024
John replied to John's discussion evil mask noise
"Ha well it lasted a couple of days but started howling again. But it's a step in the right direction, just needs a bit more work."
Oct 24, 2024

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