"Hi
The SleepCube was a private purchase, as way back then my local sleep clinic assessed patients by filming them overnight, whilst wearing an oximeter, and only issued CPAP machines without humidifiers. There was no remote monitoring and…"
Sleep Apnoea Forum Bringing Help + Support to the Patient
Forum Discussions (864)
| Discussions | Replies | Latest Activity |
|---|---|---|
Sleep disturbance - any suggestionsGood morning I have sleep apnea which is treated with Resmed Air 10 Auto and my AHI is less than 1 regularly and under control with 0 leak… Started by David Carrick in Sleep Apnoea |
3 |
Aug 19, 2021 Reply by Kath Hope |
Cpap machine and atom pro power packHello everyone, I purchased a atom pro power pack as we are going off grid for a week. I charged it up and used it last night started at 12… Started by Cheryl Guthrie in Sleep Apnoea |
1 |
Aug 19, 2021 Reply by Kath Hope |
Resmed swift fx for saleFor Sale, resmed swift fx nasal pillow system. Includes 1 small, 1 med, 1 large nasal pillow and a pair of soft wraps. The system has been… Started by Alison in Sleep Apnoea |
0 | Aug 17, 2021 |
Night shift sleep positioner for saleHello everyone. For sale is my night shift sleep positioner. For those of you that have not heard of it, it is a small device produced by A… Started by Alison in Sleep Apnoea |
2 |
Jul 30, 2021 Reply by Alison |
Mandibular MouthguardsI have been diagnosed with Severe Obstructive Sleep Apnoea and the consultant and his team supplied me with a CPAP machine. I had no probl… Started by Christine NICHOLS in Sleep Apnoea |
1 |
Jul 5, 2021 Reply by Kath Hope |
Activated OxygenI have come across a press release from the U.S. Food and Drug Administration published in the US in 2020 stating that no devices that use… Started by Ian in Sleep Apnoea |
3 |
Jun 2, 2021 Reply by Kath Hope |
Hope2Sleep Charity Helps with India's COVID-19 CrisisSorry the forum hasn't been as active as normal as all of us at the Hope2Sleep Charity have hardly had chance to breathe (except in sleep w… Started by Kath Hope in Sleep Apnoea |
0 | May 25, 2021 |
Help for NHS Research when New to CPAPWe've been asked to help a team of researchers from the NHS (including Professor Joerg Steier from Guy's & St Thomas' who is our charit… Started by Kath Hope in Sleep Apnoea |
0 | May 25, 2021 |
Noisy mask problemI have had my Fisher and Paykel Simplus mask for about five years and have been very happy with it, until about two weeks ago. I did my usu… Started by Judith-Ann Wardlaw in Sleep Apnoea |
1 |
May 25, 2021 Reply by Kath Hope |
Why does AHI increase with more mask leak?My AHI increases with nights with increased mask leak. I am using an Auto CPAP. Is this a detection/flow phenomena? Thanks Started by Michael Jones in Sleep Apnoea |
0 | May 19, 2021 |
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Latest Activity
"Yeah I was wondering about email address. I thought probably if they wanted me to mail them they would have given out an address. I can imagine heart data is considered more acute than sleep data, so it would make more sense to have that…"
"Hi.
I didn't use PatientsKnowBest (ironic name), but I have an email address for my heart department for sending in ECGs. I was just saying that they may be able to review a PDF when then cannot review a data file from your O2 ring.
I am…"
"Hi Jonathan, did you do that through PatientKnowsBest?"
"On an unrelated topic, I've been able to send ECGs by PDF to my heart clinic.
On the subject of Resmed and apnoeas, take a look at https://youtu.be/ufOOAfyzZso?si=Tpdl4EEiCQBZR4iD&t=276
Your machine may be under-reporting.
Good…"
Wellu O2 Ring - is it accurate enough for the medics?
Moving some furniture my long lost O2 ring continuous oxygen saturation monitor turned up. So I've been wearing it and it tells me I have loads of saturation drops during the night even though my Airsense 10 says I have very few apneas.So I get two…See More
"Hi,
Just thought I'd give an update. So, I had my appointment with the NHS sleep clinic which was much quicker than I anticipated and I've now had the overnight sleep study. My AHI is now 6, down from over 30, so I'm…"
"Hi Sally from what I read the airsense doesn't suffer the same foam degredation issues as the infamous Phillips machine.I can conceive it's possible that microplastics may be shed from the flexible main tube.What worries me more about the…"
"Hi
My sleep clinic discharged me, saying they were happy I was self-managing. Roll on a decade and the cardiologists taking care of me were very unimpressed and I was re-enrolled. I expect remote monitoring with current generation Resmed…"
"Hi Jonathan,
Thanks again for the info. My cpap *should* be monitored by the NHS though I haven’t had any contact from them since pre-covid. I checked out the link you gave to access extra data and I think that’s going to be…"
"Hi
I have the ResMed Airsense 10 Autoset (APAP). It's monitored remotely by my NHS sleep clinic and I believe they can make changes to the settings. I don't know whether they are notified if I make changes, nor whether they…"
"Hi Jonathan,
Thanks for the reply. I'd say that I'm fairly technical. I have the ResMed Airsense 10 Elite machine. I've discovered that I can upload data wirelessly from my machine and having lowered the pressure by…"
"Hi
You don't say how technical you are, or what sort of machine you use. However https://www.sleephq.com/ has software which allows you to upload data from compatible machines, and analyse your sleep "score", including a…"
air bubbles after weight loss
Hi,I've been on Mounjaro for about 3 months now, not primarily for weight loss, but I have lost weight around my face and neck. I've noticed that I am increasingly getting air bubbles in my mouth which of course is disturbing my sleep (and my…See More
Micro plastics risks
I was reading an article in the I newspaper today written by a journalist who had her blood tested for micro plastics and was shocked by the results.…See More
job with the charity
Was wondering if there might be a job for me with Hope2Sleep?(I also just asked this of a group by mistake)See More
For Sale - Ventura Full Total Face CPAP Mask
I’m selling an Ventura Full Total Face CPAP Mask Large and two spare liners. I bought it new from the Hope2Sleep shop, but it is not suitable for me. Only used for about two weeks so I have washed it thoroughly. Because of this, it is very much…See More
"I put in a claim for PIP which was denied and now I am over 66 and on pension I tried for AA. Denied again.I have other health conditions ( Diverticular disease and Bile Acid Malabsorbtion ) which I consider hard to live with and they refused all of…"
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