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Discussions Replies Latest Activity

itching scalp

Having used a full face mask for about 6 months I have recently developed a rash above my left ear and in a line across my scalp . I have j…

Started by Tony Westcott in Sleep Apnoea

12 Dec 4, 2011
Reply by Kath Hope

Discussion for Robert W Daly.

I am interested in the different ways that you are dealing with complex apnea. Here in the colonies the current treatment for Complex Apnea…

Started by RockRpsgt in Sleep Apnoea

10 Dec 2, 2011
Reply by RockRpsgt

Hose huggies (Kath)

Do you have any bright coloured hose huggie things?just want something bright and attractive for emil!

Started by Rachel Dickinson in Sleep Apnoea

6 Dec 1, 2011
Reply by Marion@As I Live and Breathe

What does CSR mean

Can anyone tell me what CSR on the resiponics one system means? It says AHI, well I know that one, and the next box down says CSR or CSI. 

Started by Carolyn Tipping in Sleep Apnoea

1 Nov 30, 2011
Reply by Kath Hope

BREATHING PROBLEMS AND VENTILATOR

I have ehlers danlos which has caused scoliosis since birth.  I have been checked at Brompton Hospital since very young due to my condition…

Started by Graham Twine in Sleep Apnoea

2 Nov 28, 2011
Reply by Marion@As I Live and Breathe

NIPPY AND OXYGEN

Not sure if this came out on my original post, as no record of it.   I am 45 years old and have scoliosis with respiratory failure.  I have…

Started by Elizabeth Howard in Sleep Apnoea

1 Nov 28, 2011
Reply by Kath Hope

Please sign this Petition calling for Sleep Apnoea Testing on Lorry Drivers - Yet Another Tragedy!

Link directly to Sign the Petition is epetitions.direct.gov.uk/petitions/5851   A MUM is campaigning to raise awareness of a sleep disorde…

Started by Kath Hope in Sleep Apnoea

21 Nov 24, 2011
Reply by Kath Hope

Type of device

Does anyone use a AVP machine? Has it helped at all?

Started by Carolyn Tipping in Sleep Apnoea

5 Nov 22, 2011
Reply by RockRpsgt

Stand for CPAP mask.

Recently bought Hope2sleep's advertised mask stand, after trying one lent by Helen Myers, the respiratory physiologist who does my annual r…

Started by Philip Thicknes in Sleep Apnoea

4 Nov 20, 2011
Reply by symmit

One year on!

One year ago I started using CPAP, now it's just a normal part of my routine.   One year ago I struggled to work for 4 hrs a day, today I'v…

Started by symmit in Sleep Apnoea

1 Nov 16, 2011
Reply by Kath Hope

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Latest Activity

Nick Daniel replied to John's discussion Are every small CPAP machines any good?
"Yes, it does the job. I use a Powapacs Atom for portable power "
Wednesday
John replied to John's discussion Are every small CPAP machines any good?
"Hi Nick thanks. Does it do the job and could you camp with it?"
Wednesday
Nick Daniel posted a discussion

CPAP Total Face Mask

I was curious whether anyone has used the CPAP Total Face Masks and could pass on their observations? I've been using an Airfit F20 for years which is fine apart from the permanent red mark on the bridge of my nose, and have recently tried the…See More
Tuesday
Nick Daniel replied to John's discussion Are every small CPAP machines any good?
"I've been using the Resmed Airmini for about 5 years when travelling - overall lightweight and small and can be controlled by an App, but it does produce a loud whistling/wind sound for me which hasn't been reduced by an inline filter or…"
Tuesday
Greg Lloyd is now a member of Hope2SleepGuide
Dec 6
Jonathan replied to David Hudson's discussion Pressure waking me up. Belching and wind
"Hi It sounds like you need to have more conversations with your sleep clinic.  There's little point in having a high pressure if it means you cannot tolerate the machine.  There's an interesting video here…"
Dec 1
David Hudson posted a discussion

Pressure waking me up. Belching and wind

HiI'm using the prisma smart max machine. Initially I was just on a nasal mask, this changed as I was sleeping with my mouth open. I then went to face and nose mask and complained of bad wind and belching. Sometimes the pressure in the night was…See More
Nov 28
Jonathan replied to Jonathan's discussion ResMed AirSense 10 getting noisy
"Just to tidy this up, I finally had an in-person review by my sleep clinic yesterday, who agreed the ResMed AirSense 10 was "wheezy" and replaced the machine."
Nov 9
Collette rose replied to Collette rose's discussion 1st time and I’ve failed the mask leak test
"thank you jonathan,i did get the it pack so tried the small and still struggled but i was sat up in bed so will try lying down great suggestion "
Nov 3
Jonathan replied to Collette rose's discussion 1st time and I’ve failed the mask leak test
"Hi My first thought is "don't panic"!  We're all a bit different, and there are many things that can be tweaked.  I took to CPAP therapy like a duck to water, but I've had friends who say they can't cope, but…"
Nov 2
Collette rose posted a discussion

1st time and I’ve failed the mask leak test

Hi everyone, today I received my rental kit - prisma smart max, plus a Philips dreamwear mask which I’ve been wearing unconnected to try and get used to it. I just did a mask fit test using a medium mask and got a constant red/orange leak warning…See More
Nov 2
Collette rose is now a member of Hope2SleepGuide
Oct 31
John posted a discussion
Oct 30
Profile IconBill Wright, Nicole Watson, TJ Bennett and 2 more joined Hope2SleepGuide
Oct 29
John replied to John's discussion evil mask noise
"Ha well it lasted a couple of days but started howling again. But it's a step in the right direction, just needs a bit more work."
Oct 24
Jonathan replied to John's discussion Has anyone been told root cause of their OSA?
"Nope, I just accept that some people's throats tend to close when they sleep, due to a loss of muscle tone during deeper sleep.  Back when I was diagnosed, the sleep lab just filmed you whilst you slept, stuck an O2 meter on your finger,…"
Oct 24
Jonathan replied to John's discussion evil mask noise
"Good to know you found a solution!"
Oct 24
John replied to John's discussion Has anyone been told root cause of their OSA?
"Did anyone tell you exactly what the anatomical issue is, Jonathan?"
Oct 21
John replied to Jonathan's discussion ResMed AirSense 10 getting noisy
"Can't say I know about this."
Oct 20
John replied to John's discussion evil mask noise
"So I tore some fabric from one of the filters and glued it over the holes - and it worked!It was dead quiet, and the air was still flowing freely.It was quiet all night then after a few hours a bit of whistling until I gave it a wipe.Vast…"
Oct 19

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