Hope2SleepGuide

Sleep Apnoea Forum Bringing Help + Support to the Patient

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Discussions Replies Latest Activity

What does CSR mean

Can anyone tell me what CSR on the resiponics one system means? It says AHI, well I know that one, and the next box down says CSR or CSI. 

Started by Carolyn Tipping in Sleep Apnoea

1 Nov 30, 2011
Reply by Kath Hope

BREATHING PROBLEMS AND VENTILATOR

I have ehlers danlos which has caused scoliosis since birth.  I have been checked at Brompton Hospital since very young due to my condition…

Started by Graham Twine in Sleep Apnoea

2 Nov 28, 2011
Reply by Marion@As I Live and Breathe

NIPPY AND OXYGEN

Not sure if this came out on my original post, as no record of it.   I am 45 years old and have scoliosis with respiratory failure.  I have…

Started by Elizabeth Howard in Sleep Apnoea

1 Nov 28, 2011
Reply by Kath Hope

Please sign this Petition calling for Sleep Apnoea Testing on Lorry Drivers - Yet Another Tragedy!

Link directly to Sign the Petition is epetitions.direct.gov.uk/petitions/5851   A MUM is campaigning to raise awareness of a sleep disorde…

Started by Kath Hope in Sleep Apnoea

21 Nov 24, 2011
Reply by Kath Hope

Type of device

Does anyone use a AVP machine? Has it helped at all?

Started by Carolyn Tipping in Sleep Apnoea

5 Nov 22, 2011
Reply by RockRpsgt

Stand for CPAP mask.

Recently bought Hope2sleep's advertised mask stand, after trying one lent by Helen Myers, the respiratory physiologist who does my annual r…

Started by Philip Thicknes in Sleep Apnoea

4 Nov 20, 2011
Reply by symmit

One year on!

One year ago I started using CPAP, now it's just a normal part of my routine.   One year ago I struggled to work for 4 hrs a day, today I'v…

Started by symmit in Sleep Apnoea

1 Nov 16, 2011
Reply by Kath Hope

Can We Really Throw Our CPAPs Away + Rely On This Polar Bear?

I just had to share this with you from the Mail Online....... a new way to be alerted to snoring/apnoeas......well, it's a cuter contraptio…

Started by Kath Hope in Sleep Apnoea

0 Nov 16, 2011

Grrr My first cold and snotty nose,with the dreaded full nasal mask!! im having a Pity Party!!

Ohhhh i feel ill,,iv been dreading getting ill every since i got my equipment...only cause i read someones page and its all true!! it reall…

Started by paula jones in Sleep Apnoea

2 Nov 15, 2011
Reply by paula jones

Quattro FX Mask

Hi   I have the Quattro FX Mask I have found it to be the best out of the three masks I have tried.  The first mask was a Fisher & Payk…

Started by Martin Parry in Sleep Apnoea

2 Nov 13, 2011
Reply by RockRpsgt

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Latest Activity

Jonathan replied to John's discussion Wellu O2 Ring - is it accurate enough for the medics?
"Hi The SleepCube was a private purchase, as way back then my local sleep clinic assessed patients by filming them overnight, whilst wearing an oximeter, and only issued CPAP machines without humidifiers.  There was no remote monitoring and…"
Oct 25
John replied to John's discussion Wellu O2 Ring - is it accurate enough for the medics?
"Yeah I was wondering about email address. I thought probably if they wanted me to mail them they would have given out an address. I can imagine heart data is considered more acute than sleep data, so it would make more sense to have that…"
Oct 24
Jonathan replied to John's discussion Wellu O2 Ring - is it accurate enough for the medics?
"Hi. I didn't use PatientsKnowBest (ironic name), but I have an email address for my heart department for sending in ECGs.  I was just saying that they may be able to review a PDF when then cannot review a data file from your O2 ring. I am…"
Oct 24
John replied to John's discussion Wellu O2 Ring - is it accurate enough for the medics?
"Hi Jonathan, did you do that through PatientKnowsBest?"
Oct 24
Jonathan replied to John's discussion Wellu O2 Ring - is it accurate enough for the medics?
"On an unrelated topic, I've been able to send ECGs by PDF to my heart clinic. On the subject of Resmed and apnoeas, take a look at https://youtu.be/ufOOAfyzZso?si=Tpdl4EEiCQBZR4iD&t=276 Your machine may be under-reporting. Good…"
Oct 24
John posted a discussion

Wellu O2 Ring - is it accurate enough for the medics?

Moving some furniture my long lost O2 ring continuous oxygen saturation monitor turned up. So I've been wearing it and it tells me I have loads of saturation drops during the night even though my Airsense 10 says I have very few apneas.So I get two…See More
Oct 21
Richard Smith replied to Richard Smith's discussion air bubbles after weight loss
"Hi, Just thought I'd give an update.  So, I had my appointment with the NHS sleep clinic which was much quicker than I anticipated and I've now had the overnight sleep study.  My AHI is now 6, down from over 30, so I'm…"
Oct 15
John replied to Sally Gray's discussion Microplastics risks
"Hi Sally from what I read the airsense doesn't suffer the same foam degredation issues as the infamous Phillips machine.I can conceive it's possible that microplastics may be shed from the flexible main tube.What worries me more about the…"
Oct 7
Jonathan replied to Richard Smith's discussion air bubbles after weight loss
"Hi My sleep clinic discharged me, saying they were happy I was self-managing.  Roll on a decade and the cardiologists taking care of me were very unimpressed and I was re-enrolled.  I expect remote monitoring with current generation Resmed…"
Sep 1
Richard Smith replied to Richard Smith's discussion air bubbles after weight loss
"Hi Jonathan, Thanks again for the info.  My cpap *should* be monitored by the NHS though I haven’t had any contact from them since pre-covid.  I checked out the link you gave to access extra data and I think that’s going to be…"
Aug 31
Jonathan replied to Richard Smith's discussion air bubbles after weight loss
"Hi I have the ResMed Airsense 10 Autoset (APAP).  It's monitored remotely by my NHS sleep clinic and I believe they can make changes to the settings.  I don't know whether they are notified if I make changes, nor whether they…"
Aug 31
Richard Smith replied to Richard Smith's discussion air bubbles after weight loss
"Hi Jonathan, Thanks for the reply.  I'd say that I'm fairly technical.  I have the ResMed Airsense 10 Elite machine.  I've discovered that I can upload data wirelessly from my machine and having lowered the pressure by…"
Aug 30
Jonathan replied to Richard Smith's discussion air bubbles after weight loss
"Hi You don't say how technical you are, or what sort of machine you use.  However https://www.sleephq.com/ has software which allows you to upload data from compatible machines, and analyse your sleep "score", including a…"
Aug 29
Richard Smith posted a discussion

air bubbles after weight loss

Hi,I've been on Mounjaro for about 3 months now, not primarily for weight loss, but I have lost weight around my face and neck.  I've noticed that I am increasingly getting air bubbles in my mouth which of course is disturbing my sleep (and my…See More
Aug 28
Sally Gray posted a discussion

Micro plastics risks

I was reading an article in the I newspaper today written by a journalist who had her blood tested for micro plastics and was shocked by the results.…See More
Aug 3
Alison Mitchell is now a member of Hope2SleepGuide
Jul 2
John posted a discussion

job with the charity

Was wondering if there might be a job for me with Hope2Sleep?(I also just asked this of a group by mistake)See More
Jun 27
Tracey Tilley updated their profile
May 22
Sharon Sullivan posted a discussion

For Sale - Ventura Full Total Face CPAP Mask

I’m selling an Ventura Full Total Face CPAP Mask Large and two spare liners.  I bought it new from the Hope2Sleep shop, but it is not suitable for me.  Only used for about two weeks so I have washed it thoroughly.   Because of this, it is very much…See More
May 17
Tracey Tilley replied to Jim Scullion's discussion UK Attendance Allowance
"I put in a claim for PIP which was denied and now I am over 66 and on pension I tried for AA. Denied again.I have other health conditions ( Diverticular disease and Bile Acid Malabsorbtion ) which I consider hard to live with and they refused all of…"
May 14

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