"Hi
The SleepCube was a private purchase, as way back then my local sleep clinic assessed patients by filming them overnight, whilst wearing an oximeter, and only issued CPAP machines without humidifiers. There was no remote monitoring and…"
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Nasal sleep endosocopy
I have recently had a small operation for the above.
It involves a small camera going up the nose and then you are sent to sleep.
When you have an Apnea the camera picks up what is causing it.
I returned this week as an out patient and was told that my tounge, soft palate and fat in the throat was the cause.
The consultant said that he operates on a very few patients that he feels sure would benefit but I am not one of them.
He was very fair and said by operating it could help me but I would still need to use a c/pap
and therefore he would not operate.
He also said he felt the throat would be halped by me loosing weight and I said I have tried so hard but find it very difficult.
He said people with osa find it 5 times harder to loose weight.
I asked as my ahi was good and I always use my c/pap would that not reverse that.and he said something about the taste recepter in the throat could have been damaged by the osa and that would stop me loosing weight.
He said I go to many top meeting on this and nobody knows the reason for certain.
I am now on a very very strict diet and going to the gym 6 days per week.
I will not be beat I will get rid on the c/pap!!
Regards Joe
Views: 209
Replies to This Discussion
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Permalink Reply by Pete on
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Hi Joe,
good luck with the weight loss. It must be hard, but I'm sure it wil be worth it.
If the doctor was referring to what they call a UPPP op, it may help to know that the success rate is quite low (65% at best). I've also read that that particular op can reduce the efficacy of cpap therapy. Not that I'm a doctor, but these are things I've read in the medical literature.
Pete
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do you have blood pressure and by extension blood pressure tablets like enalapril
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Permalink Reply by Kath Hope on
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Joe, am so sorry that there's no quick fix for you - I have the same issues:- large tongue base and large soft palate (not sure about fat in the throat though). Fortunately for me, CPAP works a treat - just wish it did for you. Good luck with the diet....
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Permalink Reply by Terry Vella on
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Joe, is the problem that CPAP is not working or you don't want to wear it? If it is working, remember it is saving your life. I assume if you able to go to the gym, CPAP must be doing something. I go 4-5 times a week more for the exercise for my health, I jog 4-5km per visit and do my weights. I'm actually putting weight on, probably muscle. I was well under weight due to lack of sleep because of SA and are now a little over my ideal weight but don't care because due to CPAP I have my life back, keep us updated.
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Permalink Reply by Joe barnes on
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Hi Pete,
I was going to ask him what succes rate he had as I know it is low and would not enter into an op lightly.
Before I asked him he said he would not do it as I was one of the people who would not benefit enough
Regards Joe
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I have spot on blood pressure and do not need to take any tablets for it
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Reply to Kath and Terry,
I use my a/pap 100% everynight and the hospital tells me how pleased they are with the way I use it.
I have a very strong will power and if something is going to save my life I will make sure i use it.
I know it probably saves my life, even more proof I had heart arrythmus but since using the a/pap )3 years regular) I have been checked and they have all gone away, fantastic!!
I have always been heavy even when I was slim I guess I have a lot of muscle and I know that is heavy.
i use an oximeter and software for the a/pap and the figures are very good.
I have spot on blood pressure
So if it's all under control why am I looking for ways to not wear the a/pap?
I do not like waking up and having to fumble around looking for buttons to turn the m/c off.
I do not like sleeping in separate beds and i feel i need to as I would not subject my wife to having air blown in her face all night even though she says that she would tolerate it for me.
I do not like fiddling around putting masks etc back after I take them off to get a
drink of water in the night.
I do like nodding off in the garden or in my arm chair but if I do an apnea wakes me.
I do not like all the trouble unplugging, packing it, carrying it on a plane and replugging in the hotel.
I do not like relying on a life saving piece of aquipment that could brake down any time or have a power cut.
I do not like trying to go sleep and putting head wrong on the pillor means it starts to leak and so I must move just when I was going to sleep.
I could go on but surfice to say I wear it because i feel I must but that does not make me happy to wear it, in is there was an alternative I would jump at it.
Regards Joe
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Joe, it's good that you are feel well with CPAP, I'm sorry you have all the 'do not's' but I suppose that's just the way it is. Personally CPAP saved my life and I can't sleep without it and for me all the things you mentioned ae a minor hassle considering I am lucky to be here. I'm 49 and wish I had been diagnosed soooo years earlier, I would have done anything for CPAP back then. We will just have to agree to disagree, good luck.
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Terry
You say "personally CPAP saved my life and I can't sleep without it"
I say "I totally agree"I think you are missing my point.
I do not want the hassle that goes with the a/pap and so looking for an alternative if possible if not then I will have to carry on with the a/pap.
I do not undertsand what you are agreeing to disagree about.
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I know your biggest issue it the damage that's been done to your ears Joe through CPAP. Perhaps, due to this, you might be a good candidate for the new electrical stimulation treatment if and when it becomes available. Never give up 'hope' - pun intended LOL.
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look's like there's good Hope for the future
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Sorry if I confused the discussion Joe, what I mean't was I don't think it's a hassle living with CPAP and that's what we disagree with, each person is different.
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