"Just to tidy this up, I finally had an in-person review by my sleep clinic yesterday, who agreed the ResMed AirSense 10 was "wheezy" and replaced the machine."
Sleep Apnoea Forum Bringing Help + Support to the Patient
questions?
I feel that I have not been giving enough attention to Hope2SleepGuide. Im off for the next 3 days if anyone has any questions for me. For those of you that have left me messages I promise to answer this week.
Rock
Views: 526
Replies to This Discussion
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Permalink Reply by June Ann Rymer on
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As a newly diagnosed Sleep Apnoea patient I use a CPAP Sleepcube and humidifier with Resmed Swift Nasal Pillows system ( My skin reacted badly to any mask tried but these nasal pillows are good for me) My only problem is that in a morning I have sneezing and runny nose for a couple of hours. Anyone know anything to stop this?
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Permalink Reply by Marg on
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Hi, As I'm a newbie I'm currently quite niave about pressures etc. However I have just commenced using a auto machine. It came with 4 cmh2o as being pressure on the therapy screen. I assumed that this was the 'constant' minimal pressure and because I felt like I was not getting enough air I adjusted the initial pressure to 6cm h2o after 2 nights which is better. The screen that refers to 'info' indicates my 90% pressure is between 11-12 over 7 days average. [ I have been using it for nearly two weeks now. My AHI have dropped to an average of between 8-9 so does this sound like I am on the right track with the machine starting pressure at 6cm? If I was to increase the starting pressure could this conversely lower the AHIs? How is the starting pressure determined exactly? Are the machines all usually set at 4cm initially? Also I don't see any screen that actually gives a reading for a max. set pressure though [ie. range of min to max]. Where might I find this I wonder? And if I can locate it what should be an approx ideal max pressure given my brief history her please Rock? Hope you can help with education here as my dr. is booked out till July 4th so I am unaided medically or with a resp. tech. with this at the moment and would appreciate advice. Thanks Marg
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Permalink Reply by Kath Hope on
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Welcome to the forum June.
It might be worth trying the Bacterial Filters June. See this discussion.... BACTERIAL FILTERS FOR ALLERGIES and you'd need the separate adapter with the Sleep Cube (also called IntelliPAP in the US).
June Ann Rymer said:As a newly diagnosed Sleep Apnoea patient I use a CPAP Sleepcube and humidifier with Resmed Swift Nasal Pillows system ( My skin reacted badly to any mask tried but these nasal pillows are good for me) My only problem is that in a morning I have sneezing and runny nose for a couple of hours. Anyone know anything to stop this?
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Thankyou Kath!! Where can I buy the equipment I need i.e. Bacterial Filters and the separate adapter please??
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Permalink Reply by RockRpsgt on
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It is ppssible that your turbinites are causing problems. Very little if any though. This would be more of an issue with your daytime breathing in my opinion. What mask are you using?
The machines and different softwares read leaks a little diffrently. The manufactures requirements are even more stringent than my own. As a rule of thumb a leak value that is less than 4x the pressure value is acceptable to me. If your pressure is 10cmwp than you would not want your leak any higher than 40 if possible. I do give a little more freedom with Full Face masks as they tend to be leak monsters. Sometime you have to comprimise with a little leak to get a small amount of additional comfort. More importantly to watch is what your AHI is doing at different leak values on the same pressure setting.
snoreyhead said:Two questions if I may?
1) I am awaiting an operation to have by turbinates, reduced is this likely to be the cause of my hypopneas being higher than my restrictive and central sleep apneas? I suffer with one blocked nostril on 98% of nights.
2) As a mask is designed to have some leakage for the purpose of exhaling when breathing what is the leak level that is acceptable?
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Did you have an in lab overnight PSG?
Sandy said:Thank you Rock. The average I sleep is about 7.5 hours, I have tried sleeping longer by half an hour and an hour I have even had 9+ hours on the machine, but the longer I am on it the worse I feel. Very recently I wake in the night when I turn over and the room spins and I feel sick. I was taken to hospital on Friday as this was happening during the day too,( this was because I have other medical conditions) and making me very unwell. I have been waiting months to see a neorologist, as my GP suspects there is a problem with my central nervous system (I have already been diagnosed with carpel tunnel syndrome but my GP thinks the problem is in my spine!) and my appointment is on Thursday so I am hoping some of my questions can be answered then.
RockRpsgt said:The machine almost always works. Honestly rarely does it fail to provide you with the prescribed air. Do you have an average of how many hours you sleep? Try adding an extra half hour of sleep to your schedule.....15 minutes at least. Your body requires a minimum amount of sleep. In the beginning of PAP treatment just getting that amount of QUALITY sleep can be enough to show a benefit on treatment. Educate yourself on sleep debt. Sleep can and will have to be made up to a certain extent. An extra 30 minutes a day on PAP will go a long way to doing that. Listen to your body, try sleeoing until you wake up a day or two. No alarms!
Talk to your doc about the tingling hands immediately. This could or could not be something of major importance. I am not qualified to answer this question,
Sandy said:
Sandy said:I have been diagnosed with OSA since October 2011, and started on CPAP immediately, for the first few weeks I felt refreshed and had a new life. But since about Christmas time I have started to have tingling in my hands and arms, and feeling very tired again, and my whole body joints and muscles just ache. In fact when I go to sleep with my mask I now wake up feeling I have run a marathon and had no sleep at all, even though the machine appears to be working according to my sleep clinic. I am at the point where I am tired but don't want to go to sleep as it seems the longer I sleep the more tired I feel. Has anyone else experienced this, any advice please?
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Sandy, I just read all of your posts as one. Given the "other" aliments you talk about and your docs prognosis of a central nervous sytem(CNS) source I would ask for an overnight sleep study. If you do have a CNS issue you could be having central sleep apneas. It is possible that normal CPAP could be excacerabating this issue. The only way to know is to have a PSG.
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Permalink Reply by gina on
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gina said:i had a sleep test and that showed i had sleep apnea with low oxygen (can't remember what that was) and AHI of 33. I then used CPAP for about 18 weeks but i struggled with this, but i kept trying every night for at least 4 to 6 hours, but i was so sleep deprived i ended up off sick from work. I still continued then i got an appointment for seeing the specialist, and i was so down with it all i stopped using CPAP for 3 weeks before i went to see him . I visited the specialist who was cross with me, and think i got him on a bad day !! He looked in my mouth and said large tonsils and large tongue so nothing could be done as too much fat in that area ! I said my epworth score was only 6 so he discharged me and insisted it was no good continuing with CPAP, then discharge letter came saying i had sleep related breathing not sleep apnea?!!!!
RockRpsgt said:How was it that "they" determined you have sleep related breathing issues?
gina said:you may be able to help i am not sure its a long story but the thing i am a bit lost with is ive been told ive sleep disorerdered breathing and not sleep apneoa with AHI of 33 events per hour but i may be mistaken are thay not both the same ???cos ive been discharged from my specalist cos nothing can be done apart from psychology . ive asked for a second oppion cos i think there may be some thing more that could be done but hubby and some friends saying dont bother to see the other specaliust so i am so muddled up
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Im not sure what to say without knowing for sure what types of events you are having. Without having an actual overnight sleep study there is no way that anyone can tell you for sure that your events are OSA, CSA, or Respiratory effort related arousals. If it is not true apnea then most likely it is being caused by RERAS. Low PAP pressures have been seen to best treat these.
gina said:
gina said:i had a sleep test and that showed i had sleep apnea with low oxygen (can't remember what that was) and AHI of 33. I then used CPAP for about 18 weeks but i struggled with this, but i kept trying every night for at least 4 to 6 hours, but i was so sleep deprived i ended up off sick from work. I still continued then i got an appointment for seeing the specialist, and i was so down with it all i stopped using CPAP for 3 weeks before i went to see him . I visited the specialist who was cross with me, and think i got him on a bad day !! He looked in my mouth and said large tonsils and large tongue so nothing could be done as too much fat in that area ! I said my epworth score was only 6 so he discharged me and insisted it was no good continuing with CPAP, then discharge letter came saying i had sleep related breathing not sleep apnea?!!!!
RockRpsgt said:How was it that "they" determined you have sleep related breathing issues?
gina said:you may be able to help i am not sure its a long story but the thing i am a bit lost with is ive been told ive sleep disorerdered breathing and not sleep apneoa with AHI of 33 events per hour but i may be mistaken are thay not both the same ???cos ive been discharged from my specalist cos nothing can be done apart from psychology . ive asked for a second oppion cos i think there may be some thing more that could be done but hubby and some friends saying dont bother to see the other specaliust so i am so muddled up
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I believe the way the system works over there is to start autos on 4-20cmwp. This system should be evaluated weekly in order to find your specific pressure needs. Unfortunately very few in the world run this program correctly. The 90th percentile is where your machine spends the majority of the time. If this were my machine I would find a way to reduce the range difference even more. To say 8-14cm and see what happens. As I am not a doc and confined by U.S. law I can't tell you how to do this.
Marg said:Hi, As I'm a newbie I'm currently quite niave about pressures etc. However I have just commenced using a auto machine. It came with 4 cmh2o as being pressure on the therapy screen. I assumed that this was the 'constant' minimal pressure and because I felt like I was not getting enough air I adjusted the initial pressure to 6cm h2o after 2 nights which is better. The screen that refers to 'info' indicates my 90% pressure is between 11-12 over 7 days average. [ I have been using it for nearly two weeks now. My AHI have dropped to an average of between 8-9 so does this sound like I am on the right track with the machine starting pressure at 6cm? If I was to increase the starting pressure could this conversely lower the AHIs? How is the starting pressure determined exactly? Are the machines all usually set at 4cm initially? Also I don't see any screen that actually gives a reading for a max. set pressure though [ie. range of min to max]. Where might I find this I wonder? And if I can locate it what should be an approx ideal max pressure given my brief history her please Rock? Hope you can help with education here as my dr. is booked out till July 4th so I am unaided medically or with a resp. tech. with this at the moment and would appreciate advice. Thanks Marg
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Ideally you would wnat a 3cm difference in your range on an auto machine. The way they are supposed to do this is to slowly move the ranges towards your 90th percentile pressure on a weekly basis. As you reel in the range this number may fluctuate slightly bringing you to your specific needs.
RockRpsgt said:I believe the way the system works over there is to start autos on 4-20cmwp. This system should be evaluated weekly in order to find your specific pressure needs. Unfortunately very few in the world run this program correctly. The 90th percentile is where your machine spends the majority of the time. If this were my machine I would find a way to reduce the range difference even more. To say 8-14cm and see what happens. As I am not a doc and confined by U.S. law I can't tell you how to do this.
Marg said:Hi, As I'm a newbie I'm currently quite niave about pressures etc. However I have just commenced using a auto machine. It came with 4 cmh2o as being pressure on the therapy screen. I assumed that this was the 'constant' minimal pressure and because I felt like I was not getting enough air I adjusted the initial pressure to 6cm h2o after 2 nights which is better. The screen that refers to 'info' indicates my 90% pressure is between 11-12 over 7 days average. [ I have been using it for nearly two weeks now. My AHI have dropped to an average of between 8-9 so does this sound like I am on the right track with the machine starting pressure at 6cm? If I was to increase the starting pressure could this conversely lower the AHIs? How is the starting pressure determined exactly? Are the machines all usually set at 4cm initially? Also I don't see any screen that actually gives a reading for a max. set pressure though [ie. range of min to max]. Where might I find this I wonder? And if I can locate it what should be an approx ideal max pressure given my brief history her please Rock? Hope you can help with education here as my dr. is booked out till July 4th so I am unaided medically or with a resp. tech. with this at the moment and would appreciate advice. Thanks Marg
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