"Hi
The SleepCube was a private purchase, as way back then my local sleep clinic assessed patients by filming them overnight, whilst wearing an oximeter, and only issued CPAP machines without humidifiers. There was no remote monitoring and…"
Sleep Apnoea Forum Bringing Help + Support to the Patient
Hi
ok just joined this group like 5mins ago,so just wanna say Hi,to everyone ,iv had my mask 4wks now,and for the first wk it was worse and made me very ill, it was that bad,but i stuck with it and i feel better,not awake r any more alert but better in different ways! gotta have a camera up my nose soon,make sure alls well up there..lol..cause im still snoring mega bad with mask on,its hard to adjust but im getting there,i have servere sleep apnea,pre mask my airway collaspe was once a minute! now once a hour ,but still tired..i'll be sorted soon,im staying positive!! So thats me ,and just wanna say Hello to all x x x
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Replies to This Discussion
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Permalink Reply by Julie on
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Hey Paula, Sounds like you're getting the hang of it. The camera up the nose doesn't sound too pleasant but I can think of worse things but we won't go there.... At least they are trying to make a difference by carrying out some investigative work. Must admit I used to snore the house down and my hubby says the sounds in the bedroom have now changed from heavy snoring with occassional silence to a hoover like sound (CPAP pump). Mind you he snores but doesn't stop breathing which is maybe just as well, it would be quite strange with both of us on CPAP!
Hope you get on ok with the camera inspection and they sort out your problem.
Let us know how you get on.....
Julie
xxx
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Permalink Reply by Graeme Joy on
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Hi Paula,
You beat me by a few minuets in signing up. "Hope you get some sleep" from one newbie to another.
Graeme
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Hi Graeme
Welcome, welcome, welcome! Hope you find this forum as good as I do. There are some very knowledgable people on here and friendly too so post any queries you might have and hopefully someone can help you out.
Kind regards
Julie
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Permalink Reply by Kath Hope on
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Hi Paula and Graeme. It seems you both found us around the same time, and so pleased you did :) Everyone on here are keen to help and support each other.
Look forward to getting to know you.
Kath
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Permalink Reply by paula jones on
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Aww thanks,and will keep u all posted,cause i will proberly want the support/advice...im learning,and im getting used to the mask,iv woke up and thought it wasnt working a few times,but it has so i guess im just used to it and dont feel it r the pressure anymore,b4 the build up ,im on Auto, lots goin on but i will be ok,my hubby says he doesnt need a fan in the bedroom hes getting blown away with the valve hahaha,its either in his eye r back of neck.hahahahahaha x x
Julie said:Hey Paula, Sounds like you're getting the hang of it. The camera up the nose doesn't sound too pleasant but I can think of worse things but we won't go there.... At least they are trying to make a difference by carrying out some investigative work. Must admit I used to snore the house down and my hubby says the sounds in the bedroom have now changed from heavy snoring with occassional silence to a hoover like sound (CPAP pump). Mind you he snores but doesn't stop breathing which is maybe just as well, it would be quite strange with both of us on CPAP!
Hope you get on ok with the camera inspection and they sort out your problem.
Let us know how you get on.....
Julie
xxx
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Thanks Kath,glad iv joined this site!! when i first got diagnosed and got my mask i thought i was a freak,i hated it,but im ok now! but nice to meet people alike x x x
Kath Hope said:Hi Paula and Graeme. It seems you both found us around the same time, and so pleased you did :) Everyone on here are keen to help and support each other.
Look forward to getting to know you.
Kath
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Thanks im getting there,hope u do to,staying postive is vital,as in the first 2wks of mask i became very negative,but had to turn it around,now im better!! nice to meet u x x
Graeme Joy said:Hi Paula,
You beat me by a few minuets in signing up. "Hope you get some sleep" from one newbie to another.
Graeme
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Hey you did well Paula, it took me a couple of months to get used to the mask. I used to get so frustrated with it and on occassions I felt like I couldn't breath so reckon that must have been a slight panic attack. Now I can't sleep without it, just a pity I have to drag it with me whenever I'm staying overnight with family of friends. Great that you are staying positive, sounds like you are coping well.
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Aww thanks,i have good and not so good days but more good as the wks go by,so im hopefull...still got a few tests to go,but i will be ok,the first 6 days was the worst,total meltdown,but im through it and i can help others that r goin through the same,iv learn't so much info,just trying to understand why and how! but its a way of life now,so grin and bear it as they say,Fight r Flight..thanks for the encouragement ,means a lot, i know wot u mean by the slight panic attack,it takes me 5mins to regulate my breathing when i first go bed,then im ok,sometimes i feel like im suffercating,but im only 4wks into it,so i will get there...nice to meet u x x
Julie said:Hey you did well Paula, it took me a couple of months to get used to the mask. I used to get so frustrated with it and on occassions I felt like I couldn't breath so reckon that must have been a slight panic attack. Now I can't sleep without it, just a pity I have to drag it with me whenever I'm staying overnight with family of friends. Great that you are staying positive, sounds like you are coping well.
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