Hope2SleepGuide

Sleep Apnoea Forum Bringing Help + Support to the Patient

ok just joined this group like 5mins ago,so just wanna say Hi,to everyone ,iv had my mask 4wks now,and for the first wk it was worse and made me very ill, it was that bad,but i stuck with it and i feel better,not awake r any more alert but better in different ways! gotta have a camera up my nose soon,make sure alls well up there..lol..cause im still snoring mega bad with mask on,its hard to adjust but im getting there,i have servere sleep apnea,pre mask my airway collaspe was once a minute! now once a hour ,but still tired..i'll be sorted soon,im staying positive!! So thats me ,and just wanna say Hello to all x x x

Views: 91

Reply to This

Replies to This Discussion

Hey Paula, Sounds like you're getting the hang of it.   The camera up the nose doesn't sound too pleasant but I can think of worse things but we won't go there....   At least they are trying to make a difference by carrying out some investigative work.   Must admit I used to snore the house down and my hubby says the sounds in the bedroom have now changed from heavy snoring with occassional silence to a hoover  like sound (CPAP pump).  Mind you he snores but doesn't stop breathing which is maybe just as well, it would be quite strange with both of us on CPAP!

Hope you get on ok with the camera inspection and they sort out your problem.

Let us know how you get on.....

 

Julie

xxx

Hi Paula,

 

You beat me by a few minuets in signing up. "Hope you get some sleep" from one newbie to another.

 

Graeme

Hi Graeme

 

Welcome, welcome, welcome!  Hope you find this forum as good as I do.  There are some very knowledgable people on here and friendly too so post any queries you might have and hopefully someone can help you out. 

 

Kind regards

 

Julie

Hi Paula and Graeme.  It seems you both found us around the same time, and so pleased you did :)  Everyone on here are keen to help and support each other.

Look forward to getting to know you.

Kath

Aww thanks,and will keep u all posted,cause i will proberly want the support/advice...im learning,and im getting used to the mask,iv woke up and thought it wasnt working a few times,but it has so i guess im just used to it and dont feel it r the pressure anymore,b4 the build up ,im on Auto, lots goin on but i will be ok,my hubby says he doesnt need a fan in the bedroom hes getting blown away with the valve hahaha,its either in his eye r back of neck.hahahahahaha x x

Julie said:

Hey Paula, Sounds like you're getting the hang of it.   The camera up the nose doesn't sound too pleasant but I can think of worse things but we won't go there....   At least they are trying to make a difference by carrying out some investigative work.   Must admit I used to snore the house down and my hubby says the sounds in the bedroom have now changed from heavy snoring with occassional silence to a hoover  like sound (CPAP pump).  Mind you he snores but doesn't stop breathing which is maybe just as well, it would be quite strange with both of us on CPAP!

Hope you get on ok with the camera inspection and they sort out your problem.

Let us know how you get on.....

 

Julie

xxx

Thanks Kath,glad iv joined this site!! when i first got diagnosed and got my mask i thought i was a freak,i hated it,but im ok now! but nice to meet people alike x x x

Kath Hope said:

Hi Paula and Graeme.  It seems you both found us around the same time, and so pleased you did :)  Everyone on here are keen to help and support each other.

Look forward to getting to know you.

Kath

Thanks im getting there,hope u do to,staying postive is vital,as in the first 2wks of mask i became very negative,but had to turn it around,now im better!! nice to meet u x x

Graeme Joy said:

Hi Paula,

 

You beat me by a few minuets in signing up. "Hope you get some sleep" from one newbie to another.

 

Graeme

Hey you did well Paula, it took me a couple of months to get used to the mask.  I used to get so frustrated with it and on occassions I felt like I couldn't breath so reckon that must have been a slight panic attack.   Now I can't sleep without it, just a pity I have to drag it with me whenever I'm staying overnight with family of friends.   Great that you are staying positive, sounds like you are coping well.
Aww thanks,i have good and not so good days but more good as the wks go by,so im hopefull...still got a few tests to go,but i will be ok,the first 6 days was the worst,total meltdown,but im through it and i can  help others that r goin through the same,iv learn't so much info,just trying to understand why and how! but its a way of life now,so grin and bear it as they say,Fight r Flight..thanks for the encouragement ,means a lot, i know wot u mean by the slight panic attack,it takes me 5mins to regulate my breathing when i first go bed,then im ok,sometimes i feel like im suffercating,but im only 4wks into it,so i will get there...nice to meet u x x

Julie said:
Hey you did well Paula, it took me a couple of months to get used to the mask.  I used to get so frustrated with it and on occassions I felt like I couldn't breath so reckon that must have been a slight panic attack.   Now I can't sleep without it, just a pity I have to drag it with me whenever I'm staying overnight with family of friends.   Great that you are staying positive, sounds like you are coping well.

Reply to Discussion

RSS

Sleep Apnoea Forum

New to the Sleep Apnoea Forum? 

1. Stop by our Sleep Apnoea Welcome Center to introduce yourself to the SleepGuide community.
2. Start a New Topic of Conversation.
3. Post your photos - of yourself, your old CPAP machine, your new CPAP machine, your pet, something about you!

Interested in advertising, have a problem or need to contact us? Click the Report an Issue page.

 

Latest Activity

Jonathan replied to Jonathan's discussion ResMed AirSense 10 getting noisy
"Just to tidy this up, I finally had an in-person review by my sleep clinic yesterday, who agreed the ResMed AirSense 10 was "wheezy" and replaced the machine."
Nov 9
Collette rose replied to Collette rose's discussion 1st time and I’ve failed the mask leak test
"thank you jonathan,i did get the it pack so tried the small and still struggled but i was sat up in bed so will try lying down great suggestion "
Nov 3
Jonathan replied to Collette rose's discussion 1st time and I’ve failed the mask leak test
"Hi My first thought is "don't panic"!  We're all a bit different, and there are many things that can be tweaked.  I took to CPAP therapy like a duck to water, but I've had friends who say they can't cope, but…"
Nov 2
Collette rose posted a discussion

1st time and I’ve failed the mask leak test

Hi everyone, today I received my rental kit - prisma smart max, plus a Philips dreamwear mask which I’ve been wearing unconnected to try and get used to it. I just did a mask fit test using a medium mask and got a constant red/orange leak warning…See More
Nov 2
Collette rose is now a member of Hope2SleepGuide
Oct 31
John posted a discussion
Oct 30
Profile IconBill Wright, Nicole Watson, TJ Bennett and 2 more joined Hope2SleepGuide
Oct 29
John replied to John's discussion evil mask noise
"Ha well it lasted a couple of days but started howling again. But it's a step in the right direction, just needs a bit more work."
Oct 24
Jonathan replied to John's discussion Has anyone been told root cause of their OSA?
"Nope, I just accept that some people's throats tend to close when they sleep, due to a loss of muscle tone during deeper sleep.  Back when I was diagnosed, the sleep lab just filmed you whilst you slept, stuck an O2 meter on your finger,…"
Oct 24
Jonathan replied to John's discussion evil mask noise
"Good to know you found a solution!"
Oct 24
John replied to John's discussion Has anyone been told root cause of their OSA?
"Did anyone tell you exactly what the anatomical issue is, Jonathan?"
Oct 21
John replied to Jonathan's discussion ResMed AirSense 10 getting noisy
"Can't say I know about this."
Oct 20
John replied to John's discussion evil mask noise
"So I tore some fabric from one of the filters and glued it over the holes - and it worked!It was dead quiet, and the air was still flowing freely.It was quiet all night then after a few hours a bit of whistling until I gave it a wipe.Vast…"
Oct 19
John replied to John's discussion evil mask noise
"Hi Jonathan, well see my nose is blocked a lot, so I mouth breath which really sucks a lot more moisture and makes my mouth dry. So I put humidity on maximum, which makes for condensation at the mask end, which becomes a demonic reed instrument.Now…"
Oct 17
Jonathan posted a discussion

ResMed AirSense 10 getting noisy

HelloI have an NHS issued ResMed AirSense 10 with heated humidifier.  In the last couple of weeks, it's developed an annoying noise, when I inhale. It bothers me a little and my partner a lot! I sometimes get problems if the water container in the…See More
Oct 16
Jonathan replied to John's discussion evil mask noise
"Hi My first question is why is condensation forming?  I very occasionally get some condensation, may be once a month, but I can quickly run a finger around the inside of the mask, and wipe it away.  I use a nasal mask, with the humidifier…"
Oct 16
John replied to John's discussion What's a good Apnea forum?
"11K+? Ok that's probably where I should look then :-)"
Oct 16
Kath Hope replied to John's discussion What's a good Apnea forum?
"Hi John. Thanks for the compliment as I do my best popping on here, but it's difficult due to us now supporting 25k+ patients at the charity. To be honest, the forum is quiet because most people seem to prefer Facebook and forums aren't as…"
Oct 16
John posted discussions
Oct 16
Jonathan replied to John's discussion Has anyone been told root cause of their OSA?
"There's some information here, but generally it's very common and likely due to our anatomy."
Oct 12

© 2024   Created by The SleepGuide Crew.   Powered by

Badges  |  Report an Issue  |  Terms of Service