Hope2SleepGuide

Sleep Apnoea Forum Bringing Help + Support to the Patient

Welcome to our Forum - Feel Free to Introduce Yourself Here.

Welcome to the Hope2SleepGuide Forum, which is a service run by the Hope2Sleep Charity founded by Kath Hope with a marvellous team of trustees and volunteers. 

Kath herself has severe sleep apnoea and hypoventilation/hypercapnia, and has used CPAP for several years and is now on non-invasive ventilation.  Our trustees and volunteers are all either sufferers of sleep disordered breathing or clinicians/medics working in this field, and most importantly, we are all passionate in supporting (with empathy) others and raising awareness to help people live healthier and more energised lives.

 

Whilst we do not give medical advice, more often than not, with support, tips and knowledge, people can overcome any problems experienced with our therapy, and there is a whole page dedicated to this on the website http://www.hope2sleep.co.uk/tips-for-problems-sleeping-with-cpap-or...

 

Please come and join us, and don’t feel obligated to use your ‘real’ name if you prefer to remain anonymous as this is a public forum.  Don’t be shy in posting and sharing, as we’re all in this together and to help each other.

Best Wishes for good sleep!

Kath

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Hi

I was looking something up on the internet about Philips Dreamstations and came across a recall announcement 

https://www.cpap.com/blog/philips-recall/  and I wondered if any body has had their machine repaired / replaced

duplcate

Hi John. We've known about this since June which is causing a tremendous backlog at the clinics and we're inundated about this safety issue at the charity. We're keeping everyone updated both in our Private Facebook Group and on the website on this link https://www.hope2sleep.co.uk/dreamstation-cpap-pro-or-auto-apap-mac...

Many thanks , I have applied to join the Facebook Group and will see what happens about a replacement

Thanks for accepting me. I've been a long stime sufferer of sleep apnoea and have been on auto cpap for 16 years. I never even knew this site existed until today I'm hoping a get some piece of mind here as I don't get any with my gp 

Welcome.  I was diagnosed in 2009 at 80+ events per hour, but was discharged by the sleep clinic many years ago, on the basis that I was "self managing".  I bought an APAP machine, which allows me to see how well I am doing, and I buy my own masks as the clinic masks were very cumbersome.  I haven't mentioned CPAP to my GP since he first referred me for a sleep study.  Having said that, I'm quite happy with the arrangement :)

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halfluke replied to halfluke's discussion Medistrom Pilot and Devilbiss SleepCube
"yes, it is a picture I found for the  DV63D-613 which is for the DeVilbiss Blue (IntelliPAP 2). What I'm thinking is that perhaps owners of the IntelliPAP 1 should use the IntelliPAP1 cable + the DV63D-613 for the IntelliPAP 2…"
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Kath Hope replied to halfluke's discussion Medistrom Pilot and Devilbiss SleepCube
"I've sent an email Halfluke so we should hear back soon to solve this issue. I can't see the product code on the back of your image, but is it DV63D-613 which is for the DeVilbiss Blue (IntelliPAP 2). To my knowledge all…"
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halfluke replied to halfluke's discussion Medistrom Pilot and Devilbiss SleepCube
"Thank you. I have a feeling that the answer will be that the owners of the first model of the SleepCube will have to buy the power supply of the Blue (newer model). I found the following picture that makes me think that the cable provided with the…"
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Kath Hope replied to halfluke's discussion Medistrom Pilot and Devilbiss SleepCube
"Ah that's interesting Halfluke. I was only at the charity when it was being charged, and for that we used the power supply that I posted an image of a day or so ago from the DeVilbiss Blue (IntelliPAP 2), but I'd left when it was time to…"
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halfluke replied to halfluke's discussion Medistrom Pilot and Devilbiss SleepCube
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Kath Hope replied to halfluke's discussion Medistrom Pilot and Devilbiss SleepCube
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halfluke replied to halfluke's discussion Medistrom Pilot and Devilbiss SleepCube
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Jun 21
Kath Hope replied to halfluke's discussion Medistrom Pilot and Devilbiss SleepCube
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Jun 20

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