"Hi
The SleepCube was a private purchase, as way back then my local sleep clinic assessed patients by filming them overnight, whilst wearing an oximeter, and only issued CPAP machines without humidifiers. There was no remote monitoring and…"
Sleep Apnoea Forum Bringing Help + Support to the Patient
Forum Discussions (864)
| Discussions | Replies | Latest Activity |
|---|---|---|
Night Sweats?Hi, I am new to this forum. My husband has had sleep apnoea since his early 30s, he is now 50. He is not overweight, does not drink or sm… Started by sharon pestell in Sleep Apnoea |
2 |
Oct 10, 2014 Reply by Pete |
Chin strapsa chin strap without a cpap may work What Are Chin Straps? Chin straps or chin up straps as they are also called are made of fabric and so… Started by 99 in Sleep Apnoea |
4 |
Oct 7, 2014 Reply by Kath Hope |
Unhappy With Results/TreatmentHi, So my first post here. I was refereed for a sleep study in May this year. I have had two sleep studies (both at home); a two night f… Started by airbusA346 in Sleep Apnoea |
18 |
Oct 2, 2014 Reply by Kath Hope |
CPAP PillowI have recently found a pillow that is designed for CPAP users http://www.mobilitysmart.cc/putnams-advanced-memory-foam-cpap-pillow-medium… Started by David Anthony Burnley in Sleep Apnoea |
3 |
Sep 15, 2014 Reply by Kath Hope |
Sheffield Children's Hospital Propose New Paediatric MasksUnfortunately, not all children look as happy as little Emil does in his Respironics FitLife CPAP Mask, but the Sheffield Children's Hosp… Started by Kath Hope in Sleep Apnoea |
0 | Sep 9, 2014 |
AHIMy AHI is always below 0.5 and some nights its 0. This makes me wonder if I have Sleep Apnoea any longer or is it a case that the machine i… Started by Edam in Sleep Apnoea |
7 |
Sep 5, 2014 Reply by Pete |
recently moved from Australia....now under NHS in UK...... Shock!I have recently moved over here with my Resmed S9 Autoset machine having been diagnosed with moderate to severe sleep apnoea in November 20… Started by suzanne erdbrink in Sleep Apnoea |
10 |
Sep 5, 2014 Reply by Pete |
Westminster Debate on Sleep ApnoeaAt Long Last!!! Westminster holds a debate on Sleep Apnoea with a powerful speech by Julie Hilling MP joined by Meg Munn. Rosie Cooper adds… Started by Kath Hope in Sleep Apnoea |
0 | Sep 3, 2014 |
Communication from Stephanie AssaI have received a message from this lady who apparently comes from Cambodia and she says that She has important information for me and I sh… Started by David Anthony Burnley in Sleep Apnoea |
3 |
Sep 2, 2014 Reply by Kath Hope |
3D printingHere's an interesting article which hints at what the future may hold http://www.3ders.org/articles/20140723-metamason-revolutionizing-3d-p… Started by Jonathan in Sleep Apnoea |
2 |
Sep 2, 2014 Reply by Kath Hope |
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Latest Activity
"Yeah I was wondering about email address. I thought probably if they wanted me to mail them they would have given out an address. I can imagine heart data is considered more acute than sleep data, so it would make more sense to have that…"
"Hi.
I didn't use PatientsKnowBest (ironic name), but I have an email address for my heart department for sending in ECGs. I was just saying that they may be able to review a PDF when then cannot review a data file from your O2 ring.
I am…"
"Hi Jonathan, did you do that through PatientKnowsBest?"
"On an unrelated topic, I've been able to send ECGs by PDF to my heart clinic.
On the subject of Resmed and apnoeas, take a look at https://youtu.be/ufOOAfyzZso?si=Tpdl4EEiCQBZR4iD&t=276
Your machine may be under-reporting.
Good…"
Wellu O2 Ring - is it accurate enough for the medics?
Moving some furniture my long lost O2 ring continuous oxygen saturation monitor turned up. So I've been wearing it and it tells me I have loads of saturation drops during the night even though my Airsense 10 says I have very few apneas.So I get two…See More
"Hi,
Just thought I'd give an update. So, I had my appointment with the NHS sleep clinic which was much quicker than I anticipated and I've now had the overnight sleep study. My AHI is now 6, down from over 30, so I'm…"
"Hi Sally from what I read the airsense doesn't suffer the same foam degredation issues as the infamous Phillips machine.I can conceive it's possible that microplastics may be shed from the flexible main tube.What worries me more about the…"
"Hi
My sleep clinic discharged me, saying they were happy I was self-managing. Roll on a decade and the cardiologists taking care of me were very unimpressed and I was re-enrolled. I expect remote monitoring with current generation Resmed…"
"Hi Jonathan,
Thanks again for the info. My cpap *should* be monitored by the NHS though I haven’t had any contact from them since pre-covid. I checked out the link you gave to access extra data and I think that’s going to be…"
"Hi
I have the ResMed Airsense 10 Autoset (APAP). It's monitored remotely by my NHS sleep clinic and I believe they can make changes to the settings. I don't know whether they are notified if I make changes, nor whether they…"
"Hi Jonathan,
Thanks for the reply. I'd say that I'm fairly technical. I have the ResMed Airsense 10 Elite machine. I've discovered that I can upload data wirelessly from my machine and having lowered the pressure by…"
"Hi
You don't say how technical you are, or what sort of machine you use. However https://www.sleephq.com/ has software which allows you to upload data from compatible machines, and analyse your sleep "score", including a…"
air bubbles after weight loss
Hi,I've been on Mounjaro for about 3 months now, not primarily for weight loss, but I have lost weight around my face and neck. I've noticed that I am increasingly getting air bubbles in my mouth which of course is disturbing my sleep (and my…See More
Micro plastics risks
I was reading an article in the I newspaper today written by a journalist who had her blood tested for micro plastics and was shocked by the results.…See More
job with the charity
Was wondering if there might be a job for me with Hope2Sleep?(I also just asked this of a group by mistake)See More
For Sale - Ventura Full Total Face CPAP Mask
I’m selling an Ventura Full Total Face CPAP Mask Large and two spare liners. I bought it new from the Hope2Sleep shop, but it is not suitable for me. Only used for about two weeks so I have washed it thoroughly. Because of this, it is very much…See More
"I put in a claim for PIP which was denied and now I am over 66 and on pension I tried for AA. Denied again.I have other health conditions ( Diverticular disease and Bile Acid Malabsorbtion ) which I consider hard to live with and they refused all of…"
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