"Hi
The SleepCube was a private purchase, as way back then my local sleep clinic assessed patients by filming them overnight, whilst wearing an oximeter, and only issued CPAP machines without humidifiers. There was no remote monitoring and…"
Sleep Apnoea Forum Bringing Help + Support to the Patient
Forum Discussions (864)
| Discussions | Replies | Latest Activity |
|---|---|---|
Sleepweaver MaskHi can anyone give me there opinion on a SleepWeaver mask, I started off by purchasing a ComfortGel Blue mask, and even using mask liners a… Started by Ian Oakham in Sleep Apnoea |
9 |
Jul 12, 2014 Reply by Kath Hope |
First Nasal Pillows Mask with Gel Pillows - Nuance by Philips RespironicsThis new mask is finally available in the UK and is the first one to use gel for the nasal pillows. Whilst I'm not a longterm user of nasa… Started by Kath Hope in Sleep Apnoea |
2 |
Jul 11, 2014 Reply by Kath Hope |
Resmed Airfit P10 ReviewAs many who’ve read my reviews before will glean, I like to have a choice of the three main types of mask available to suit in order to red… Started by symmit in Sleep Apnoea |
0 | Jul 11, 2014 |
At last- AHI under 5I've posted here and there on the site and wanted to share my good news. For nearly five years I struggled to get my AHI under 5. For mon… Started by Mary Zimlich in Sleep Apnoea |
2 |
Jul 6, 2014 Reply by 99 |
New APAP user, dry mouthHi everyone. I am new here and have recently been diagnosed with Obstructive Sleep Apnoea. I have an APAP machine and a full mask which cov… Started by Sharon Davies in Sleep Apnoea |
13 |
Jun 21, 2014 Reply by Sharon Davies |
New Treatment For Sleep Apnoea - Please Fill In Survey To Help!***UPDATE 19TH JUNE 2014*** The survey linked to this original post is closed and the new survey link is https://www.surveymonkey.com/s/Apn… Started by Kath Hope in Sleep Apnoea |
21 |
Jun 19, 2014 Reply by Kath Hope |
Research into Down's Syndrome and Sleep ApnoeaIt is now widely known that people with Down's Syndrome are at a high risk for Obstructive Sleep Apnoea (I wrote an article about this last… Started by Kath Hope in Sleep Apnoea |
0 | Jun 2, 2014 |
Is there a connection between Sleep Apnoea and Spina BifidaHi I was wondering if there is any connection between SA & Spina Bifida (SB) as I finally been told that I do have the mildest for of S… Started by DeeNJai in Sleep Apnoea |
0 | May 30, 2014 |
SleepyHead TranslationsI presume there are a lot of non-English people on this forum. They might have problems with the language of the program. That's why it has… Started by Arie Klerk in Sleep Apnoea |
1 |
May 19, 2014 Reply by Kath Hope |
Five foods that aid sleep1.) Almonds -- Almonds are one of the best foods for treating insomnia since they're excellent sources of magnesium, which is a natural mus… Started by 99 in Sleep Apnoea |
0 | May 19, 2014 |
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Latest Activity
"Yeah I was wondering about email address. I thought probably if they wanted me to mail them they would have given out an address. I can imagine heart data is considered more acute than sleep data, so it would make more sense to have that…"
"Hi.
I didn't use PatientsKnowBest (ironic name), but I have an email address for my heart department for sending in ECGs. I was just saying that they may be able to review a PDF when then cannot review a data file from your O2 ring.
I am…"
"Hi Jonathan, did you do that through PatientKnowsBest?"
"On an unrelated topic, I've been able to send ECGs by PDF to my heart clinic.
On the subject of Resmed and apnoeas, take a look at https://youtu.be/ufOOAfyzZso?si=Tpdl4EEiCQBZR4iD&t=276
Your machine may be under-reporting.
Good…"
Wellu O2 Ring - is it accurate enough for the medics?
Moving some furniture my long lost O2 ring continuous oxygen saturation monitor turned up. So I've been wearing it and it tells me I have loads of saturation drops during the night even though my Airsense 10 says I have very few apneas.So I get two…See More
"Hi,
Just thought I'd give an update. So, I had my appointment with the NHS sleep clinic which was much quicker than I anticipated and I've now had the overnight sleep study. My AHI is now 6, down from over 30, so I'm…"
"Hi Sally from what I read the airsense doesn't suffer the same foam degredation issues as the infamous Phillips machine.I can conceive it's possible that microplastics may be shed from the flexible main tube.What worries me more about the…"
"Hi
My sleep clinic discharged me, saying they were happy I was self-managing. Roll on a decade and the cardiologists taking care of me were very unimpressed and I was re-enrolled. I expect remote monitoring with current generation Resmed…"
"Hi Jonathan,
Thanks again for the info. My cpap *should* be monitored by the NHS though I haven’t had any contact from them since pre-covid. I checked out the link you gave to access extra data and I think that’s going to be…"
"Hi
I have the ResMed Airsense 10 Autoset (APAP). It's monitored remotely by my NHS sleep clinic and I believe they can make changes to the settings. I don't know whether they are notified if I make changes, nor whether they…"
"Hi Jonathan,
Thanks for the reply. I'd say that I'm fairly technical. I have the ResMed Airsense 10 Elite machine. I've discovered that I can upload data wirelessly from my machine and having lowered the pressure by…"
"Hi
You don't say how technical you are, or what sort of machine you use. However https://www.sleephq.com/ has software which allows you to upload data from compatible machines, and analyse your sleep "score", including a…"
air bubbles after weight loss
Hi,I've been on Mounjaro for about 3 months now, not primarily for weight loss, but I have lost weight around my face and neck. I've noticed that I am increasingly getting air bubbles in my mouth which of course is disturbing my sleep (and my…See More
Micro plastics risks
I was reading an article in the I newspaper today written by a journalist who had her blood tested for micro plastics and was shocked by the results.…See More
job with the charity
Was wondering if there might be a job for me with Hope2Sleep?(I also just asked this of a group by mistake)See More
For Sale - Ventura Full Total Face CPAP Mask
I’m selling an Ventura Full Total Face CPAP Mask Large and two spare liners. I bought it new from the Hope2Sleep shop, but it is not suitable for me. Only used for about two weeks so I have washed it thoroughly. Because of this, it is very much…See More
"I put in a claim for PIP which was denied and now I am over 66 and on pension I tried for AA. Denied again.I have other health conditions ( Diverticular disease and Bile Acid Malabsorbtion ) which I consider hard to live with and they refused all of…"
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