Hope2SleepGuide

Sleep Apnoea Forum Bringing Help + Support to the Patient

Forum Discussions (864)

Discussions Replies Latest Activity

Bad aponea,s

I have not been on here for a while. I hope you are all doing well. I am having real trouble. I have been on a bi pap machine for about 12…

Started by Carolyn Tipping in Sleep Apnoea

7 Feb 22, 2014
Reply by Terry Vella

my face keeps feeling hot and I look very flushed - no high temperature

Hi, Over the last three weeks or so my face has started feeling hot and it look very red and flushed. This can happen at any time during th…

Started by June Ostiadel in Sleep Apnoea

11 Feb 21, 2014
Reply by June Ostiadel

How to Improve Lymph Function from our sister site

 The solution is to reduce factors of overload during the day so that you retain less fluid during the day. Additionally, taking steps to r…

Started by 99 in Sleep Apnoea

1 Feb 15, 2014
Reply by 99

Pillow nudges sleepers when they begin to snore

Pillow nudges sleepers when they begin to snore A habitual snorer is sure to draw the odd night-time prod from their spouse. While thes…

Started by 99 in Sleep Apnoea

0 Feb 12, 2014

Why is falling asleep around full moon more difficult need sleep

We are all, quite literally, lunatics—and I mean that in the nicest way possible. It is the moon, after all, that is responsible for the lu…

Started by 99 in Sleep Apnoea

0 Feb 12, 2014

CPAP Cream

Hi, I purchased the CPAP cream from Hope2Sleep website because the bridge of my nose was feeling a little sore. I wear glasses/spectacles a…

Started by June Ostiadel in Sleep Apnoea

4 Feb 9, 2014
Reply by 99

Not sure what to do from here

Well I haven't been on here for a while. I am currently on cpap resumed with mirage full face mask, my readings have been at 0 to 1 or 2 pe…

Started by Lee in Sleep Apnoea

6 Feb 8, 2014
Reply by Kath Hope

Raising Awareness on Radio Croydon

Preparing my talk for tomorrow's radio show when we're intending to raise awareness of Sleep Apnoea to the Croydon area (and hopefully beyo…

Started by Kath Hope in Sleep Apnoea

26 Feb 3, 2014
Reply by Kath Hope

oxygen

Hello everyone. I've not been on here for a while. I am not doing well at all with my philips resiponics bi pap auto. I feel like I'm going…

Started by Carolyn Tipping in Sleep Apnoea

7 Feb 3, 2014
Reply by Kath Hope

Tinnitus

For the last few months I have had tinnitus mainly in my left ear I think that using my APAP is making it worse although its difficult to t…

Started by Edam in Sleep Apnoea

7 Jan 31, 2014
Reply by Kath Hope

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Latest Activity

Jonathan replied to John's discussion Wellu O2 Ring - is it accurate enough for the medics?
"Hi The SleepCube was a private purchase, as way back then my local sleep clinic assessed patients by filming them overnight, whilst wearing an oximeter, and only issued CPAP machines without humidifiers.  There was no remote monitoring and…"
Oct 25
John replied to John's discussion Wellu O2 Ring - is it accurate enough for the medics?
"Yeah I was wondering about email address. I thought probably if they wanted me to mail them they would have given out an address. I can imagine heart data is considered more acute than sleep data, so it would make more sense to have that…"
Oct 24
Jonathan replied to John's discussion Wellu O2 Ring - is it accurate enough for the medics?
"Hi. I didn't use PatientsKnowBest (ironic name), but I have an email address for my heart department for sending in ECGs.  I was just saying that they may be able to review a PDF when then cannot review a data file from your O2 ring. I am…"
Oct 24
John replied to John's discussion Wellu O2 Ring - is it accurate enough for the medics?
"Hi Jonathan, did you do that through PatientKnowsBest?"
Oct 24
Jonathan replied to John's discussion Wellu O2 Ring - is it accurate enough for the medics?
"On an unrelated topic, I've been able to send ECGs by PDF to my heart clinic. On the subject of Resmed and apnoeas, take a look at https://youtu.be/ufOOAfyzZso?si=Tpdl4EEiCQBZR4iD&t=276 Your machine may be under-reporting. Good…"
Oct 24
John posted a discussion

Wellu O2 Ring - is it accurate enough for the medics?

Moving some furniture my long lost O2 ring continuous oxygen saturation monitor turned up. So I've been wearing it and it tells me I have loads of saturation drops during the night even though my Airsense 10 says I have very few apneas.So I get two…See More
Oct 21
Richard Smith replied to Richard Smith's discussion air bubbles after weight loss
"Hi, Just thought I'd give an update.  So, I had my appointment with the NHS sleep clinic which was much quicker than I anticipated and I've now had the overnight sleep study.  My AHI is now 6, down from over 30, so I'm…"
Oct 15
John replied to Sally Gray's discussion Microplastics risks
"Hi Sally from what I read the airsense doesn't suffer the same foam degredation issues as the infamous Phillips machine.I can conceive it's possible that microplastics may be shed from the flexible main tube.What worries me more about the…"
Oct 7
Jonathan replied to Richard Smith's discussion air bubbles after weight loss
"Hi My sleep clinic discharged me, saying they were happy I was self-managing.  Roll on a decade and the cardiologists taking care of me were very unimpressed and I was re-enrolled.  I expect remote monitoring with current generation Resmed…"
Sep 1
Richard Smith replied to Richard Smith's discussion air bubbles after weight loss
"Hi Jonathan, Thanks again for the info.  My cpap *should* be monitored by the NHS though I haven’t had any contact from them since pre-covid.  I checked out the link you gave to access extra data and I think that’s going to be…"
Aug 31
Jonathan replied to Richard Smith's discussion air bubbles after weight loss
"Hi I have the ResMed Airsense 10 Autoset (APAP).  It's monitored remotely by my NHS sleep clinic and I believe they can make changes to the settings.  I don't know whether they are notified if I make changes, nor whether they…"
Aug 31
Richard Smith replied to Richard Smith's discussion air bubbles after weight loss
"Hi Jonathan, Thanks for the reply.  I'd say that I'm fairly technical.  I have the ResMed Airsense 10 Elite machine.  I've discovered that I can upload data wirelessly from my machine and having lowered the pressure by…"
Aug 30
Jonathan replied to Richard Smith's discussion air bubbles after weight loss
"Hi You don't say how technical you are, or what sort of machine you use.  However https://www.sleephq.com/ has software which allows you to upload data from compatible machines, and analyse your sleep "score", including a…"
Aug 29
Richard Smith posted a discussion

air bubbles after weight loss

Hi,I've been on Mounjaro for about 3 months now, not primarily for weight loss, but I have lost weight around my face and neck.  I've noticed that I am increasingly getting air bubbles in my mouth which of course is disturbing my sleep (and my…See More
Aug 28
Sally Gray posted a discussion

Micro plastics risks

I was reading an article in the I newspaper today written by a journalist who had her blood tested for micro plastics and was shocked by the results.…See More
Aug 3
Alison Mitchell is now a member of Hope2SleepGuide
Jul 2
John posted a discussion

job with the charity

Was wondering if there might be a job for me with Hope2Sleep?(I also just asked this of a group by mistake)See More
Jun 27
Tracey Tilley updated their profile
May 22
Sharon Sullivan posted a discussion

For Sale - Ventura Full Total Face CPAP Mask

I’m selling an Ventura Full Total Face CPAP Mask Large and two spare liners.  I bought it new from the Hope2Sleep shop, but it is not suitable for me.  Only used for about two weeks so I have washed it thoroughly.   Because of this, it is very much…See More
May 17
Tracey Tilley replied to Jim Scullion's discussion UK Attendance Allowance
"I put in a claim for PIP which was denied and now I am over 66 and on pension I tried for AA. Denied again.I have other health conditions ( Diverticular disease and Bile Acid Malabsorbtion ) which I consider hard to live with and they refused all of…"
May 14

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