Hope2SleepGuide

Sleep Apnoea Forum Bringing Help + Support to the Patient

Forum Discussions (863)

Discussions Replies Latest Activity

Tongue Surgery to Cure Sleep Apnoea - Trans-Oral Robotic Surgery

Am sat here right now with 5 stitches in my own tongue from a biopsy I had a 5 days ago, and after this experience, nobody is coming near m…

Started by Kath Hope in Sleep Apnoea

7 Sep 27, 2012
Reply by Isla Deuchar

Free competition to win a copy of 'A Monkey, a Mouse and a CPAP Machine'

This award-winning children's book was written especially for children who use CPAP, or who have a family member that uses it. It's availa…

Started by Marion@As I Live and Breathe in Sleep Apnoea

8 Sep 26, 2012
Reply by Marion@As I Live and Breathe

Yet Another New Technique for Snoring and Sleep Apnoea

(Ouch!!!  Give me CPAP anyday - I've had needles in my tongue and it's excruciating!!!) An end to snoring? The stitch in your tongue to sil…

Started by Kath Hope in Sleep Apnoea

0 Sep 25, 2012

CPAP Therapy Not Working

Hi all, I haven't written in here for some time now.  For some reason my CPAP is still not working.  I changed my mask from the Fitlife bac…

Started by Isla Deuchar in Sleep Apnoea

6 Sep 24, 2012
Reply by Isla Deuchar

resmed s9 series

Hi, Looking at information on my S9 auto, i noticed that the EPR function is disabled.  Would you guys recommend turning this on or not.  W…

Started by LINDA in Sleep Apnoea

11 Sep 23, 2012
Reply by Isla Deuchar

Diagnosis for Sleep Apnoea Getting Easier

Here's an interesting new development for diagnosing Sleep Apnoea - certainly easier and will be interesting to see if it takes off. http:/…

Started by Kath Hope in Sleep Apnoea

0 Sep 22, 2012

Go life

well ive just had to stop using my blue gel resparonics mask hopefully only for a while but having problems with my teeth so ive now got a…

Started by gina in Sleep Apnoea

3 Sep 16, 2012
Reply by stephen smith

Share Your Sleep Apnoea Story to Win The Prize

There's a Contest over on Sleep Apnea Guide (a good place of information) for sharing your Sleep Apnoea Story (closing date is the 31st Aug…

Started by Kath Hope in Sleep Apnoea

10 Sep 12, 2012
Reply by gina

any one new to cpap when you think it is time to quit dont !!

well i had to just put pen to paper about my care and treatment to try and give a bit of hope to any one that is struggling . I started on…

Started by gina in Sleep Apnoea

17 Sep 11, 2012
Reply by gina

50% of 400 Women Tested Postive for Sleep Apnoea

Half of Women May Have Sleep Apnoea: Study By Kerry Grens NEW YORK | Fri Sep 7, 2012 4:57pm EDT (Reuters Health) - Fully half of the 400…

Started by Kath Hope in Sleep Apnoea

1 Sep 8, 2012
Reply by Kath Hope

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Latest Activity

Jonathan replied to Richard Smith's discussion air bubbles after weight loss
"Hi My sleep clinic discharged me, saying they were happy I was self-managing.  Roll on a decade and the cardiologists taking care of me were very unimpressed and I was re-enrolled.  I expect remote monitoring with current generation Resmed…"
Sep 1
Richard Smith replied to Richard Smith's discussion air bubbles after weight loss
"Hi Jonathan, Thanks again for the info.  My cpap *should* be monitored by the NHS though I haven’t had any contact from them since pre-covid.  I checked out the link you gave to access extra data and I think that’s going to be…"
Aug 31
Jonathan replied to Richard Smith's discussion air bubbles after weight loss
"Hi I have the ResMed Airsense 10 Autoset (APAP).  It's monitored remotely by my NHS sleep clinic and I believe they can make changes to the settings.  I don't know whether they are notified if I make changes, nor whether they…"
Aug 31
Richard Smith replied to Richard Smith's discussion air bubbles after weight loss
"Hi Jonathan, Thanks for the reply.  I'd say that I'm fairly technical.  I have the ResMed Airsense 10 Elite machine.  I've discovered that I can upload data wirelessly from my machine and having lowered the pressure by…"
Aug 30
Jonathan replied to Richard Smith's discussion air bubbles after weight loss
"Hi You don't say how technical you are, or what sort of machine you use.  However https://www.sleephq.com/ has software which allows you to upload data from compatible machines, and analyse your sleep "score", including a…"
Aug 29
Richard Smith posted a discussion

air bubbles after weight loss

Hi,I've been on Mounjaro for about 3 months now, not primarily for weight loss, but I have lost weight around my face and neck.  I've noticed that I am increasingly getting air bubbles in my mouth which of course is disturbing my sleep (and my…See More
Aug 28
Sally Gray posted a discussion

Micro plastics risks

I was reading an article in the I newspaper today written by a journalist who had her blood tested for micro plastics and was shocked by the results.…See More
Aug 3
Alison Mitchell is now a member of Hope2SleepGuide
Jul 2
John posted a discussion

job with the charity

Was wondering if there might be a job for me with Hope2Sleep?(I also just asked this of a group by mistake)See More
Jun 27
Tracey Tilley updated their profile
May 22
Sharon Sullivan posted a discussion

For Sale - Ventura Full Total Face CPAP Mask

I’m selling an Ventura Full Total Face CPAP Mask Large and two spare liners.  I bought it new from the Hope2Sleep shop, but it is not suitable for me.  Only used for about two weeks so I have washed it thoroughly.   Because of this, it is very much…See More
May 17
Tracey Tilley replied to Jim Scullion's discussion UK Attendance Allowance
"I put in a claim for PIP which was denied and now I am over 66 and on pension I tried for AA. Denied again.I have other health conditions ( Diverticular disease and Bile Acid Malabsorbtion ) which I consider hard to live with and they refused all of…"
May 14
Jonathan replied to Sally Gray's discussion ResMed AirMini for travel
"No personal experience, but CPAP.com review of AirMini The AirMini runs at about 30 decibels, which is about the same sound level as a whispered conversation. For comparison, full-sized CPAPs tend to run around 26-28 decibels. Due to their…"
May 5
Sally Gray posted a discussion

ResMed AirMini for travel

I am considering either buying or renting an AirMini for a forthcoming holiday this month where I will be sharing a twin room. I have read that they’re quite noisy and I don’t want to waste my money on either rental or purchase if the noise level…See More
May 3
Sally Gray replied to Nick Daniel's discussion CPAP Total Face Mask
"Hi, I use a ResMed F20 and had the same issue with the silicone full face mask causing red marks and soreness on my nose bridge. I switched over to the Airtouch memory foam full face masks which are expensive and not supplied by the NHS, but the…"
May 3
Kath Hope replied to Glassdaisy's discussion Soft Cap
"It's very much still relevant and we're getting closer to have them manufactured and has been no easy challenge. In fact we were speaking with the company working with us on this only yesterday. If you're not on our newsletter list…"
Mar 27
Glassdaisy posted a discussion

Soft Cap

some time ago I was told that Hope2Sleep was researching a replacement for the discontinued Soft Cap.. as I have seen nothing to indicate moving forward on this, would I be right in assuming you decided it is no longer relevant?See More
Mar 27
Glassdaisy replied to Nick Daniel's discussion CPAP Total Face Mask
"I expect others may have responded by now, but I use the Fitlife full face mask. I kept getting a hard lump on my nose when first starting out & it got so bad that I ended up buying my own masks as my clinic would only give the Fitlife to new…"
Mar 27
Wendy Anthony is now a member of Hope2SleepGuide
Mar 25
David McDade is now a member of Hope2SleepGuide
Jan 3

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