"Hi
The SleepCube was a private purchase, as way back then my local sleep clinic assessed patients by filming them overnight, whilst wearing an oximeter, and only issued CPAP machines without humidifiers. There was no remote monitoring and…"
Sleep Apnoea Forum Bringing Help + Support to the Patient
Forum Discussions (864)
| Discussions | Replies | Latest Activity |
|---|---|---|
REFEXOLIGY TO SLEEPJUST rub the pad on top of your thumb or both your thumbs lightly remeber to put you mask on first Started by 99 in Sleep Apnoea |
0 | Oct 1, 2012 |
Tongue Surgery to Cure Sleep Apnoea - Trans-Oral Robotic SurgeryAm sat here right now with 5 stitches in my own tongue from a biopsy I had a 5 days ago, and after this experience, nobody is coming near m… Started by Kath Hope in Sleep Apnoea |
7 |
Sep 27, 2012 Reply by Isla Deuchar |
Free competition to win a copy of 'A Monkey, a Mouse and a CPAP Machine'This award-winning children's book was written especially for children who use CPAP, or who have a family member that uses it. It's availa… Started by Marion@As I Live and Breathe in Sleep Apnoea |
8 |
Sep 26, 2012 Reply by Marion@As I Live and Breathe |
Yet Another New Technique for Snoring and Sleep Apnoea(Ouch!!! Give me CPAP anyday - I've had needles in my tongue and it's excruciating!!!) An end to snoring? The stitch in your tongue to sil… Started by Kath Hope in Sleep Apnoea |
0 | Sep 25, 2012 |
CPAP Therapy Not WorkingHi all, I haven't written in here for some time now. For some reason my CPAP is still not working. I changed my mask from the Fitlife bac… Started by Isla Deuchar in Sleep Apnoea |
6 |
Sep 24, 2012 Reply by Isla Deuchar |
resmed s9 seriesHi, Looking at information on my S9 auto, i noticed that the EPR function is disabled. Would you guys recommend turning this on or not. W… Started by LINDA in Sleep Apnoea |
11 |
Sep 23, 2012 Reply by Isla Deuchar |
Diagnosis for Sleep Apnoea Getting EasierHere's an interesting new development for diagnosing Sleep Apnoea - certainly easier and will be interesting to see if it takes off. http:/… Started by Kath Hope in Sleep Apnoea |
0 | Sep 22, 2012 |
Go lifewell ive just had to stop using my blue gel resparonics mask hopefully only for a while but having problems with my teeth so ive now got a… Started by gina in Sleep Apnoea |
3 |
Sep 16, 2012 Reply by stephen smith |
Share Your Sleep Apnoea Story to Win The PrizeThere's a Contest over on Sleep Apnea Guide (a good place of information) for sharing your Sleep Apnoea Story (closing date is the 31st Aug… Started by Kath Hope in Sleep Apnoea |
10 |
Sep 12, 2012 Reply by gina |
any one new to cpap when you think it is time to quit dont !!well i had to just put pen to paper about my care and treatment to try and give a bit of hope to any one that is struggling . I started on… Started by gina in Sleep Apnoea |
17 |
Sep 11, 2012 Reply by gina |
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Latest Activity
"Yeah I was wondering about email address. I thought probably if they wanted me to mail them they would have given out an address. I can imagine heart data is considered more acute than sleep data, so it would make more sense to have that…"
"Hi.
I didn't use PatientsKnowBest (ironic name), but I have an email address for my heart department for sending in ECGs. I was just saying that they may be able to review a PDF when then cannot review a data file from your O2 ring.
I am…"
"Hi Jonathan, did you do that through PatientKnowsBest?"
"On an unrelated topic, I've been able to send ECGs by PDF to my heart clinic.
On the subject of Resmed and apnoeas, take a look at https://youtu.be/ufOOAfyzZso?si=Tpdl4EEiCQBZR4iD&t=276
Your machine may be under-reporting.
Good…"
Wellu O2 Ring - is it accurate enough for the medics?
Moving some furniture my long lost O2 ring continuous oxygen saturation monitor turned up. So I've been wearing it and it tells me I have loads of saturation drops during the night even though my Airsense 10 says I have very few apneas.So I get two…See More
"Hi,
Just thought I'd give an update. So, I had my appointment with the NHS sleep clinic which was much quicker than I anticipated and I've now had the overnight sleep study. My AHI is now 6, down from over 30, so I'm…"
"Hi Sally from what I read the airsense doesn't suffer the same foam degredation issues as the infamous Phillips machine.I can conceive it's possible that microplastics may be shed from the flexible main tube.What worries me more about the…"
"Hi
My sleep clinic discharged me, saying they were happy I was self-managing. Roll on a decade and the cardiologists taking care of me were very unimpressed and I was re-enrolled. I expect remote monitoring with current generation Resmed…"
"Hi Jonathan,
Thanks again for the info. My cpap *should* be monitored by the NHS though I haven’t had any contact from them since pre-covid. I checked out the link you gave to access extra data and I think that’s going to be…"
"Hi
I have the ResMed Airsense 10 Autoset (APAP). It's monitored remotely by my NHS sleep clinic and I believe they can make changes to the settings. I don't know whether they are notified if I make changes, nor whether they…"
"Hi Jonathan,
Thanks for the reply. I'd say that I'm fairly technical. I have the ResMed Airsense 10 Elite machine. I've discovered that I can upload data wirelessly from my machine and having lowered the pressure by…"
"Hi
You don't say how technical you are, or what sort of machine you use. However https://www.sleephq.com/ has software which allows you to upload data from compatible machines, and analyse your sleep "score", including a…"
air bubbles after weight loss
Hi,I've been on Mounjaro for about 3 months now, not primarily for weight loss, but I have lost weight around my face and neck. I've noticed that I am increasingly getting air bubbles in my mouth which of course is disturbing my sleep (and my…See More
Micro plastics risks
I was reading an article in the I newspaper today written by a journalist who had her blood tested for micro plastics and was shocked by the results.…See More
job with the charity
Was wondering if there might be a job for me with Hope2Sleep?(I also just asked this of a group by mistake)See More
For Sale - Ventura Full Total Face CPAP Mask
I’m selling an Ventura Full Total Face CPAP Mask Large and two spare liners. I bought it new from the Hope2Sleep shop, but it is not suitable for me. Only used for about two weeks so I have washed it thoroughly. Because of this, it is very much…See More
"I put in a claim for PIP which was denied and now I am over 66 and on pension I tried for AA. Denied again.I have other health conditions ( Diverticular disease and Bile Acid Malabsorbtion ) which I consider hard to live with and they refused all of…"
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