"Hi
The SleepCube was a private purchase, as way back then my local sleep clinic assessed patients by filming them overnight, whilst wearing an oximeter, and only issued CPAP machines without humidifiers. There was no remote monitoring and…"
Sleep Apnoea Forum Bringing Help + Support to the Patient
Forum Discussions (864)
| Discussions | Replies | Latest Activity |
|---|---|---|
Update from this "hose head"Hello all Hose Heads.(that name still makes me chuckle) Thought I should should drop in and have a read again, not been on for a while as I… Started by stephen smith in Sleep Apnoea |
7 |
May 21, 2012 Reply by Kath Hope |
A Sad StoryI read this story on another site, the lady is in the UK, I have just removed names, I posted a comment to the mother saying how sad I felt… Started by Terry Vella in Sleep Apnoea |
4 |
May 20, 2012 Reply by Terry Vella |
Website ProblemI am having a terrible time with the url of the main website. Some of you will have got a newsletter saying that www.hope2sleep.co.uk wasn… Started by Kath Hope in Sleep Apnoea |
6 |
May 20, 2012 Reply by Kath Hope |
Trapped WindHi dose anyone else on cpap suffer with trapped wind ? I get back pains lower when I purp or pass wind it tends to go ! Just wondered if it… Started by Stu in Sleep Apnoea |
2 |
May 20, 2012 Reply by Stu |
Link With Sleep Apnoea and CancerToday's health news is that there's a link between Cancer and Sleep Apnoea. Don't panic if you're on CPAP, as hopefully we are protected, b… Started by Kath Hope in Sleep Apnoea |
0 | May 20, 2012 |
denied evidencehere most of us have had a home sleep study to confirm osa for the hospitals, good however these studys do not pick up on csa you need a p… Started by 99 in Sleep Apnoea |
2 |
May 12, 2012 Reply by symmit |
I officially LOVE antibiotics.So my cough progressed and by Monday morning I was breathless and the GP was mentioning hospital but allowed me away with antibiotics. Just… Started by Amanda Farley in Sleep Apnoea |
3 |
Apr 26, 2012 Reply by Kath Hope |
Stop Snoring WeekBearing in mind it's National Stop Snoring Week, this is a good time to highlight the issue of undiagnosed Sleep Apnoea to our friends and… Started by Kath Hope in Sleep Apnoea |
0 | Apr 25, 2012 |
Cpap machines do not like to play!On a lighter note..... I suggest you turn off and remove your CPAP machines before "playing around" with your partner... It absolutely kna… Started by Darryl Milligan in Sleep Apnoea |
5 |
Apr 22, 2012 Reply by RockRpsgt |
So fed up with this cough and cold!Have not managed ONE whole night with the CPAP for days due to this cough and cold. Unfortunately it's made worse by the dryness. I am pick… Started by Amanda Farley in Sleep Apnoea |
6 |
Apr 21, 2012 Reply by Kath Hope |
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Latest Activity
"Yeah I was wondering about email address. I thought probably if they wanted me to mail them they would have given out an address. I can imagine heart data is considered more acute than sleep data, so it would make more sense to have that…"
"Hi.
I didn't use PatientsKnowBest (ironic name), but I have an email address for my heart department for sending in ECGs. I was just saying that they may be able to review a PDF when then cannot review a data file from your O2 ring.
I am…"
"Hi Jonathan, did you do that through PatientKnowsBest?"
"On an unrelated topic, I've been able to send ECGs by PDF to my heart clinic.
On the subject of Resmed and apnoeas, take a look at https://youtu.be/ufOOAfyzZso?si=Tpdl4EEiCQBZR4iD&t=276
Your machine may be under-reporting.
Good…"
Wellu O2 Ring - is it accurate enough for the medics?
Moving some furniture my long lost O2 ring continuous oxygen saturation monitor turned up. So I've been wearing it and it tells me I have loads of saturation drops during the night even though my Airsense 10 says I have very few apneas.So I get two…See More
"Hi,
Just thought I'd give an update. So, I had my appointment with the NHS sleep clinic which was much quicker than I anticipated and I've now had the overnight sleep study. My AHI is now 6, down from over 30, so I'm…"
"Hi Sally from what I read the airsense doesn't suffer the same foam degredation issues as the infamous Phillips machine.I can conceive it's possible that microplastics may be shed from the flexible main tube.What worries me more about the…"
"Hi
My sleep clinic discharged me, saying they were happy I was self-managing. Roll on a decade and the cardiologists taking care of me were very unimpressed and I was re-enrolled. I expect remote monitoring with current generation Resmed…"
"Hi Jonathan,
Thanks again for the info. My cpap *should* be monitored by the NHS though I haven’t had any contact from them since pre-covid. I checked out the link you gave to access extra data and I think that’s going to be…"
"Hi
I have the ResMed Airsense 10 Autoset (APAP). It's monitored remotely by my NHS sleep clinic and I believe they can make changes to the settings. I don't know whether they are notified if I make changes, nor whether they…"
"Hi Jonathan,
Thanks for the reply. I'd say that I'm fairly technical. I have the ResMed Airsense 10 Elite machine. I've discovered that I can upload data wirelessly from my machine and having lowered the pressure by…"
"Hi
You don't say how technical you are, or what sort of machine you use. However https://www.sleephq.com/ has software which allows you to upload data from compatible machines, and analyse your sleep "score", including a…"
air bubbles after weight loss
Hi,I've been on Mounjaro for about 3 months now, not primarily for weight loss, but I have lost weight around my face and neck. I've noticed that I am increasingly getting air bubbles in my mouth which of course is disturbing my sleep (and my…See More
Micro plastics risks
I was reading an article in the I newspaper today written by a journalist who had her blood tested for micro plastics and was shocked by the results.…See More
job with the charity
Was wondering if there might be a job for me with Hope2Sleep?(I also just asked this of a group by mistake)See More
For Sale - Ventura Full Total Face CPAP Mask
I’m selling an Ventura Full Total Face CPAP Mask Large and two spare liners. I bought it new from the Hope2Sleep shop, but it is not suitable for me. Only used for about two weeks so I have washed it thoroughly. Because of this, it is very much…See More
"I put in a claim for PIP which was denied and now I am over 66 and on pension I tried for AA. Denied again.I have other health conditions ( Diverticular disease and Bile Acid Malabsorbtion ) which I consider hard to live with and they refused all of…"
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