Hope2SleepGuide

Sleep Apnoea Forum Bringing Help + Support to the Patient

Forum Discussions (863)

Discussions Replies Latest Activity

A Sad Story

I read this story on another site, the lady is in the UK, I have just removed names, I posted a comment to the mother saying how sad I felt…

Started by Terry Vella in Sleep Apnoea

4 May 20, 2012
Reply by Terry Vella

Website Problem

I am having a terrible time with the url of the main website.  Some of you will have got a newsletter saying that www.hope2sleep.co.uk wasn…

Started by Kath Hope in Sleep Apnoea

6 May 20, 2012
Reply by Kath Hope

Trapped Wind

Hi dose anyone else on cpap suffer with trapped wind ? I get back pains lower when I purp or pass wind it tends to go ! Just wondered if it…

Started by Stu in Sleep Apnoea

2 May 20, 2012
Reply by Stu

Link With Sleep Apnoea and Cancer

Today's health news is that there's a link between Cancer and Sleep Apnoea. Don't panic if you're on CPAP, as hopefully we are protected, b…

Started by Kath Hope in Sleep Apnoea

0 May 20, 2012

denied evidence

here most of us have had a home sleep study to confirm osa for the hospitals, good however these studys do not pick up on csa  you need a p…

Started by 99 in Sleep Apnoea

2 May 12, 2012
Reply by symmit

I officially LOVE antibiotics.

So my cough progressed and by Monday morning I was breathless and the GP was mentioning hospital but allowed me away with antibiotics. Just…

Started by Amanda Farley in Sleep Apnoea

3 Apr 26, 2012
Reply by Kath Hope

Stop Snoring Week

Bearing in mind it's National Stop Snoring Week, this is a good time to highlight the issue of undiagnosed Sleep Apnoea to our friends and…

Started by Kath Hope in Sleep Apnoea

0 Apr 25, 2012

Cpap machines do not like to play!

On a lighter note..... I suggest  you turn off and remove your CPAP machines before "playing around" with your partner... It absolutely kna…

Started by Darryl Milligan in Sleep Apnoea

5 Apr 22, 2012
Reply by RockRpsgt

So fed up with this cough and cold!

Have not managed ONE whole night with the CPAP for days due to this cough and cold. Unfortunately it's made worse by the dryness. I am pick…

Started by Amanda Farley in Sleep Apnoea

6 Apr 21, 2012
Reply by Kath Hope

New to cpap and the nights seem longer

Hi all. I'm on day 3 of cpap and I don't know if it's me but the nights seem so much longer. Before the nights felt so short and I would wa…

Started by Julia Boyd in Sleep Apnoea

2 Apr 19, 2012
Reply by Terry Vella

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Latest Activity

Jonathan replied to Richard Smith's discussion air bubbles after weight loss
"Hi My sleep clinic discharged me, saying they were happy I was self-managing.  Roll on a decade and the cardiologists taking care of me were very unimpressed and I was re-enrolled.  I expect remote monitoring with current generation Resmed…"
Sep 1
Richard Smith replied to Richard Smith's discussion air bubbles after weight loss
"Hi Jonathan, Thanks again for the info.  My cpap *should* be monitored by the NHS though I haven’t had any contact from them since pre-covid.  I checked out the link you gave to access extra data and I think that’s going to be…"
Aug 31
Jonathan replied to Richard Smith's discussion air bubbles after weight loss
"Hi I have the ResMed Airsense 10 Autoset (APAP).  It's monitored remotely by my NHS sleep clinic and I believe they can make changes to the settings.  I don't know whether they are notified if I make changes, nor whether they…"
Aug 31
Richard Smith replied to Richard Smith's discussion air bubbles after weight loss
"Hi Jonathan, Thanks for the reply.  I'd say that I'm fairly technical.  I have the ResMed Airsense 10 Elite machine.  I've discovered that I can upload data wirelessly from my machine and having lowered the pressure by…"
Aug 30
Jonathan replied to Richard Smith's discussion air bubbles after weight loss
"Hi You don't say how technical you are, or what sort of machine you use.  However https://www.sleephq.com/ has software which allows you to upload data from compatible machines, and analyse your sleep "score", including a…"
Aug 29
Richard Smith posted a discussion

air bubbles after weight loss

Hi,I've been on Mounjaro for about 3 months now, not primarily for weight loss, but I have lost weight around my face and neck.  I've noticed that I am increasingly getting air bubbles in my mouth which of course is disturbing my sleep (and my…See More
Aug 28
Sally Gray posted a discussion

Micro plastics risks

I was reading an article in the I newspaper today written by a journalist who had her blood tested for micro plastics and was shocked by the results.…See More
Aug 3
Alison Mitchell is now a member of Hope2SleepGuide
Jul 2
John posted a discussion

job with the charity

Was wondering if there might be a job for me with Hope2Sleep?(I also just asked this of a group by mistake)See More
Jun 27
Tracey Tilley updated their profile
May 22
Sharon Sullivan posted a discussion

For Sale - Ventura Full Total Face CPAP Mask

I’m selling an Ventura Full Total Face CPAP Mask Large and two spare liners.  I bought it new from the Hope2Sleep shop, but it is not suitable for me.  Only used for about two weeks so I have washed it thoroughly.   Because of this, it is very much…See More
May 17
Tracey Tilley replied to Jim Scullion's discussion UK Attendance Allowance
"I put in a claim for PIP which was denied and now I am over 66 and on pension I tried for AA. Denied again.I have other health conditions ( Diverticular disease and Bile Acid Malabsorbtion ) which I consider hard to live with and they refused all of…"
May 14
Jonathan replied to Sally Gray's discussion ResMed AirMini for travel
"No personal experience, but CPAP.com review of AirMini The AirMini runs at about 30 decibels, which is about the same sound level as a whispered conversation. For comparison, full-sized CPAPs tend to run around 26-28 decibels. Due to their…"
May 5
Sally Gray posted a discussion

ResMed AirMini for travel

I am considering either buying or renting an AirMini for a forthcoming holiday this month where I will be sharing a twin room. I have read that they’re quite noisy and I don’t want to waste my money on either rental or purchase if the noise level…See More
May 3
Sally Gray replied to Nick Daniel's discussion CPAP Total Face Mask
"Hi, I use a ResMed F20 and had the same issue with the silicone full face mask causing red marks and soreness on my nose bridge. I switched over to the Airtouch memory foam full face masks which are expensive and not supplied by the NHS, but the…"
May 3
Kath Hope replied to Glassdaisy's discussion Soft Cap
"It's very much still relevant and we're getting closer to have them manufactured and has been no easy challenge. In fact we were speaking with the company working with us on this only yesterday. If you're not on our newsletter list…"
Mar 27
Glassdaisy posted a discussion

Soft Cap

some time ago I was told that Hope2Sleep was researching a replacement for the discontinued Soft Cap.. as I have seen nothing to indicate moving forward on this, would I be right in assuming you decided it is no longer relevant?See More
Mar 27
Glassdaisy replied to Nick Daniel's discussion CPAP Total Face Mask
"I expect others may have responded by now, but I use the Fitlife full face mask. I kept getting a hard lump on my nose when first starting out & it got so bad that I ended up buying my own masks as my clinic would only give the Fitlife to new…"
Mar 27
Wendy Anthony is now a member of Hope2SleepGuide
Mar 25
David McDade is now a member of Hope2SleepGuide
Jan 3

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