"Hi
The SleepCube was a private purchase, as way back then my local sleep clinic assessed patients by filming them overnight, whilst wearing an oximeter, and only issued CPAP machines without humidifiers. There was no remote monitoring and…"
Sleep Apnoea Forum Bringing Help + Support to the Patient
Forum Discussions (864)
| Discussions | Replies | Latest Activity |
|---|---|---|
Wheezing and congestionI have now been using my cpap machine for 2 months and i am getting used to it quite well but one of the downsides is that when removing my… Started by Mike reed in Sleep Apnoea |
19 |
Mar 27, 2012 Reply by Kath Hope |
The Many Causes for Sleep ApnoeaStarted by Kath Hope in Sleep Apnoea |
0 | Mar 22, 2012 |
Nocturnal panic attacksHi - I fairly regularly waken several times per night with panic attacks - 'lurching' in stomach, fast heartbeat and sweating. I use my CP… Started by Mags Brown in Sleep Apnoea |
25 |
Mar 21, 2012 Reply by RockRpsgt |
Hospital and Sleep ApnoeaHi I have to go in to hospital shortly for a procedure to remove a biopsy from my bladder......... being a man. and totally allergic to any… Started by Philip Dallinger in Sleep Apnoea |
8 |
Mar 13, 2012 Reply by Philip Dallinger |
Sleeping PillsThis week there have been lots of reports of early death due to sleeping pills. People are getting very anxious, so if you are taking them… Started by Kath Hope in Sleep Apnoea |
2 |
Mar 12, 2012 Reply by RockRpsgt |
CPAP HOSE LIFT fixed bracket experiencesI have the CPAP HOSE LIFT using it under the mattress however it tends to lean so I am asking if anybody has used the fixed base bracket w… Started by David in Sleep Apnoea |
17 |
Mar 11, 2012 Reply by Kath Hope |
Children - Snoring and Sleep Disorders Cause Behavioural Problems + Mimics ADHDAt last it's hit the news that snoring, mouth breathing and sleep disorders are causing children to be labelled with ADHD and other conditi… Started by Kath Hope in Sleep Apnoea |
1 |
Mar 11, 2012 Reply by RockRpsgt |
Yay, I have been dischargedI started on CPAP on 19/12/11, and after a series of mask & pressure changes, the consultant has decided today to discharge me. I now o… Started by Darryl Milligan in Sleep Apnoea |
18 |
Feb 28, 2012 Reply by Kath Hope |
My good news storyI'd like to share my good news story, I go to an depression outpatient course called Mindfulness on Saturday mornings, we learn to accept o… Started by Terry Vella in Sleep Apnoea |
7 |
Feb 25, 2012 Reply by Terry Vella |
DVLAI have recived a letter from papworth explaining when i was monitored that i had a mean saturation of 94.7% and a desaturation index of 4.5… Started by Mike reed in Sleep Apnoea |
1 |
Feb 24, 2012 Reply by Kath Hope |
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Latest Activity
"Yeah I was wondering about email address. I thought probably if they wanted me to mail them they would have given out an address. I can imagine heart data is considered more acute than sleep data, so it would make more sense to have that…"
"Hi.
I didn't use PatientsKnowBest (ironic name), but I have an email address for my heart department for sending in ECGs. I was just saying that they may be able to review a PDF when then cannot review a data file from your O2 ring.
I am…"
"Hi Jonathan, did you do that through PatientKnowsBest?"
"On an unrelated topic, I've been able to send ECGs by PDF to my heart clinic.
On the subject of Resmed and apnoeas, take a look at https://youtu.be/ufOOAfyzZso?si=Tpdl4EEiCQBZR4iD&t=276
Your machine may be under-reporting.
Good…"
Wellu O2 Ring - is it accurate enough for the medics?
Moving some furniture my long lost O2 ring continuous oxygen saturation monitor turned up. So I've been wearing it and it tells me I have loads of saturation drops during the night even though my Airsense 10 says I have very few apneas.So I get two…See More
"Hi,
Just thought I'd give an update. So, I had my appointment with the NHS sleep clinic which was much quicker than I anticipated and I've now had the overnight sleep study. My AHI is now 6, down from over 30, so I'm…"
"Hi Sally from what I read the airsense doesn't suffer the same foam degredation issues as the infamous Phillips machine.I can conceive it's possible that microplastics may be shed from the flexible main tube.What worries me more about the…"
"Hi
My sleep clinic discharged me, saying they were happy I was self-managing. Roll on a decade and the cardiologists taking care of me were very unimpressed and I was re-enrolled. I expect remote monitoring with current generation Resmed…"
"Hi Jonathan,
Thanks again for the info. My cpap *should* be monitored by the NHS though I haven’t had any contact from them since pre-covid. I checked out the link you gave to access extra data and I think that’s going to be…"
"Hi
I have the ResMed Airsense 10 Autoset (APAP). It's monitored remotely by my NHS sleep clinic and I believe they can make changes to the settings. I don't know whether they are notified if I make changes, nor whether they…"
"Hi Jonathan,
Thanks for the reply. I'd say that I'm fairly technical. I have the ResMed Airsense 10 Elite machine. I've discovered that I can upload data wirelessly from my machine and having lowered the pressure by…"
"Hi
You don't say how technical you are, or what sort of machine you use. However https://www.sleephq.com/ has software which allows you to upload data from compatible machines, and analyse your sleep "score", including a…"
air bubbles after weight loss
Hi,I've been on Mounjaro for about 3 months now, not primarily for weight loss, but I have lost weight around my face and neck. I've noticed that I am increasingly getting air bubbles in my mouth which of course is disturbing my sleep (and my…See More
Micro plastics risks
I was reading an article in the I newspaper today written by a journalist who had her blood tested for micro plastics and was shocked by the results.…See More
job with the charity
Was wondering if there might be a job for me with Hope2Sleep?(I also just asked this of a group by mistake)See More
For Sale - Ventura Full Total Face CPAP Mask
I’m selling an Ventura Full Total Face CPAP Mask Large and two spare liners. I bought it new from the Hope2Sleep shop, but it is not suitable for me. Only used for about two weeks so I have washed it thoroughly. Because of this, it is very much…See More
"I put in a claim for PIP which was denied and now I am over 66 and on pension I tried for AA. Denied again.I have other health conditions ( Diverticular disease and Bile Acid Malabsorbtion ) which I consider hard to live with and they refused all of…"
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