"Hi
The SleepCube was a private purchase, as way back then my local sleep clinic assessed patients by filming them overnight, whilst wearing an oximeter, and only issued CPAP machines without humidifiers. There was no remote monitoring and…"
Sleep Apnoea Forum Bringing Help + Support to the Patient
Forum Discussions (864)
| Discussions | Replies | Latest Activity |
|---|---|---|
New to cpap and the nights seem longerHi all. I'm on day 3 of cpap and I don't know if it's me but the nights seem so much longer. Before the nights felt so short and I would wa… Started by Julia Boyd in Sleep Apnoea |
2 |
Apr 19, 2012 Reply by Terry Vella |
Noisy machine in the middle of the night.Just a quick question for my more experienced fellow hose heads :) I am waking up in the middle of the night with the machine working ver… Started by Amanda Farley in Sleep Apnoea |
9 |
Apr 17, 2012 Reply by Kath Hope |
Widening awareness of this site.Have seen my lovely GP this morning who was really interested in this website and has written it down for other patients. Expect an influx… Started by Amanda Farley in Sleep Apnoea |
1 |
Apr 17, 2012 Reply by Kath Hope |
Fundraiser for the British Lung Foundation's OSA CampaignHelen Potts, one of our Forum Members, is taking on a huge challenge of doing her first ever 10K run to raise funds for the BLF's Sleep Apn… Started by Kath Hope in Sleep Apnoea |
0 | Apr 15, 2012 |
Three days in.....Well. I am now three days into CPAP and so far: I feel more alert and refreshed My skin is clearer (weird but it is! I am more clear heade… Started by Amanda Farley in Sleep Apnoea |
6 |
Apr 15, 2012 Reply by Kath Hope |
Travelling with a CPAPDo all UK NHS Sleep Clinics supply similar CPAP models or do they vary depending on where you live? My partner has had his CPAP for years… Started by Christine Woods in Sleep Apnoea |
13 |
Apr 14, 2012 Reply by Kath Hope |
Split mask sealHaving had my mask for 6 Months and cleaning carefully everyday to remove grease I put it on Tuesday night and woke up in the morning to fi… Started by David in Sleep Apnoea |
1 |
Apr 12, 2012 Reply by Terry Vella |
I got hackedPlease ignore and delete any emails that you receive from the rockhinkle account. Sorry for the inconvenience. RockRpsgt Started by RockRpsgt in Sleep Apnoea |
3 |
Apr 7, 2012 Reply by Kath Hope |
sleep study readingsHi all, Ive just recently been diagnosed with OSA, and been reading a few posts. A lot of people mention AHI, can someone please tell me w… Started by LINDA in Sleep Apnoea |
18 |
Apr 6, 2012 Reply by Kath Hope |
ST JAMES' SLEEP APNOEA SUPPORT GROUP 'DROP-IN DAY'For those in the West Yorkshire area I look forward to seeing you there:- ST JAMES' SLEEP APNOEA SUPPORT GROUP DROP-IN DAY - Saturday 24th… Started by Kath Hope in Sleep Apnoea |
4 |
Mar 28, 2012 Reply by Kath Hope |
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Latest Activity
"Yeah I was wondering about email address. I thought probably if they wanted me to mail them they would have given out an address. I can imagine heart data is considered more acute than sleep data, so it would make more sense to have that…"
"Hi.
I didn't use PatientsKnowBest (ironic name), but I have an email address for my heart department for sending in ECGs. I was just saying that they may be able to review a PDF when then cannot review a data file from your O2 ring.
I am…"
"Hi Jonathan, did you do that through PatientKnowsBest?"
"On an unrelated topic, I've been able to send ECGs by PDF to my heart clinic.
On the subject of Resmed and apnoeas, take a look at https://youtu.be/ufOOAfyzZso?si=Tpdl4EEiCQBZR4iD&t=276
Your machine may be under-reporting.
Good…"
Wellu O2 Ring - is it accurate enough for the medics?
Moving some furniture my long lost O2 ring continuous oxygen saturation monitor turned up. So I've been wearing it and it tells me I have loads of saturation drops during the night even though my Airsense 10 says I have very few apneas.So I get two…See More
"Hi,
Just thought I'd give an update. So, I had my appointment with the NHS sleep clinic which was much quicker than I anticipated and I've now had the overnight sleep study. My AHI is now 6, down from over 30, so I'm…"
"Hi Sally from what I read the airsense doesn't suffer the same foam degredation issues as the infamous Phillips machine.I can conceive it's possible that microplastics may be shed from the flexible main tube.What worries me more about the…"
"Hi
My sleep clinic discharged me, saying they were happy I was self-managing. Roll on a decade and the cardiologists taking care of me were very unimpressed and I was re-enrolled. I expect remote monitoring with current generation Resmed…"
"Hi Jonathan,
Thanks again for the info. My cpap *should* be monitored by the NHS though I haven’t had any contact from them since pre-covid. I checked out the link you gave to access extra data and I think that’s going to be…"
"Hi
I have the ResMed Airsense 10 Autoset (APAP). It's monitored remotely by my NHS sleep clinic and I believe they can make changes to the settings. I don't know whether they are notified if I make changes, nor whether they…"
"Hi Jonathan,
Thanks for the reply. I'd say that I'm fairly technical. I have the ResMed Airsense 10 Elite machine. I've discovered that I can upload data wirelessly from my machine and having lowered the pressure by…"
"Hi
You don't say how technical you are, or what sort of machine you use. However https://www.sleephq.com/ has software which allows you to upload data from compatible machines, and analyse your sleep "score", including a…"
air bubbles after weight loss
Hi,I've been on Mounjaro for about 3 months now, not primarily for weight loss, but I have lost weight around my face and neck. I've noticed that I am increasingly getting air bubbles in my mouth which of course is disturbing my sleep (and my…See More
Micro plastics risks
I was reading an article in the I newspaper today written by a journalist who had her blood tested for micro plastics and was shocked by the results.…See More
job with the charity
Was wondering if there might be a job for me with Hope2Sleep?(I also just asked this of a group by mistake)See More
For Sale - Ventura Full Total Face CPAP Mask
I’m selling an Ventura Full Total Face CPAP Mask Large and two spare liners. I bought it new from the Hope2Sleep shop, but it is not suitable for me. Only used for about two weeks so I have washed it thoroughly. Because of this, it is very much…See More
"I put in a claim for PIP which was denied and now I am over 66 and on pension I tried for AA. Denied again.I have other health conditions ( Diverticular disease and Bile Acid Malabsorbtion ) which I consider hard to live with and they refused all of…"
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