Hope2SleepGuide

Sleep Apnoea Forum Bringing Help + Support to the Patient

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Discussions Replies Latest Activity

Fundraiser for the British Lung Foundation's OSA Campaign

Helen Potts, one of our Forum Members, is taking on a huge challenge of doing her first ever 10K run to raise funds for the BLF's Sleep Apn…

Started by Kath Hope in Sleep Apnoea

0 Apr 15, 2012

Three days in.....

Well. I am now three days into CPAP and so far: I feel more alert and refreshed My skin is clearer (weird but it is! I am more clear heade…

Started by Amanda Farley in Sleep Apnoea

6 Apr 15, 2012
Reply by Kath Hope

Travelling with a CPAP

Do all UK NHS Sleep Clinics supply similar CPAP models or do they vary depending on where you live? My partner has had his CPAP for years…

Started by Christine Woods in Sleep Apnoea

13 Apr 14, 2012
Reply by Kath Hope

Split mask seal

Having had my mask for 6 Months and cleaning carefully everyday to remove grease I put it on Tuesday night and woke up in the morning to fi…

Started by David in Sleep Apnoea

1 Apr 12, 2012
Reply by Terry Vella

I got hacked

Please ignore and delete any emails that you receive from the rockhinkle account. Sorry for the inconvenience. RockRpsgt

Started by RockRpsgt in Sleep Apnoea

3 Apr 7, 2012
Reply by Kath Hope

sleep study readings

Hi all, Ive just recently been diagnosed with OSA, and been reading a few posts.  A lot of people mention AHI, can someone please tell me w…

Started by LINDA in Sleep Apnoea

18 Apr 6, 2012
Reply by Kath Hope

ST JAMES' SLEEP APNOEA SUPPORT GROUP 'DROP-IN DAY'

For those in the West Yorkshire area I look forward to seeing you there:- ST JAMES' SLEEP APNOEA SUPPORT GROUP DROP-IN DAY - Saturday 24th…

Started by Kath Hope in Sleep Apnoea

4 Mar 28, 2012
Reply by Kath Hope

Wheezing and congestion

I have now been using my cpap machine for 2 months and i am getting used to it quite well but one of the downsides is that when removing my…

Started by Mike reed in Sleep Apnoea

19 Mar 27, 2012
Reply by Kath Hope

The Many Causes for Sleep Apnoea

Started by Kath Hope in Sleep Apnoea

0 Mar 22, 2012

Nocturnal panic attacks

Hi - I fairly regularly waken several times per night with panic attacks - 'lurching' in stomach, fast heartbeat and sweating.  I use my CP…

Started by Mags Brown in Sleep Apnoea

25 Mar 21, 2012
Reply by RockRpsgt

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Latest Activity

Alison Mitchell is now a member of Hope2SleepGuide
Jul 2
John posted a discussion

job with the charity

Was wondering if there might be a job for me with Hope2Sleep?(I also just asked this of a group by mistake)See More
Jun 27
Tracey Tilley updated their profile
May 22
Sharon Sullivan posted a discussion

For Sale - Ventura Full Total Face CPAP Mask

I’m selling an Ventura Full Total Face CPAP Mask Large and two spare liners.  I bought it new from the Hope2Sleep shop, but it is not suitable for me.  Only used for about two weeks so I have washed it thoroughly.   Because of this, it is very much…See More
May 17
Tracey Tilley replied to Jim Scullion's discussion UK Attendance Allowance
"I put in a claim for PIP which was denied and now I am over 66 and on pension I tried for AA. Denied again.I have other health conditions ( Diverticular disease and Bile Acid Malabsorbtion ) which I consider hard to live with and they refused all of…"
May 14
Jonathan replied to Sally Gray's discussion ResMed AirMini for travel
"No personal experience, but CPAP.com review of AirMini The AirMini runs at about 30 decibels, which is about the same sound level as a whispered conversation. For comparison, full-sized CPAPs tend to run around 26-28 decibels. Due to their…"
May 5
Sally Gray posted a discussion

ResMed AirMini for travel

I am considering either buying or renting an AirMini for a forthcoming holiday this month where I will be sharing a twin room. I have read that they’re quite noisy and I don’t want to waste my money on either rental or purchase if the noise level…See More
May 3
Sally Gray replied to Nick Daniel's discussion CPAP Total Face Mask
"Hi, I use a ResMed F20 and had the same issue with the silicone full face mask causing red marks and soreness on my nose bridge. I switched over to the Airtouch memory foam full face masks which are expensive and not supplied by the NHS, but the…"
May 3
Kath Hope replied to Glassdaisy's discussion Soft Cap
"It's very much still relevant and we're getting closer to have them manufactured and has been no easy challenge. In fact we were speaking with the company working with us on this only yesterday. If you're not on our newsletter list…"
Mar 27
Glassdaisy posted a discussion

Soft Cap

some time ago I was told that Hope2Sleep was researching a replacement for the discontinued Soft Cap.. as I have seen nothing to indicate moving forward on this, would I be right in assuming you decided it is no longer relevant?See More
Mar 27
Glassdaisy replied to Nick Daniel's discussion CPAP Total Face Mask
"I expect others may have responded by now, but I use the Fitlife full face mask. I kept getting a hard lump on my nose when first starting out & it got so bad that I ended up buying my own masks as my clinic would only give the Fitlife to new…"
Mar 27
Wendy Anthony is now a member of Hope2SleepGuide
Mar 25
David McDade is now a member of Hope2SleepGuide
Jan 3
Nick Daniel replied to John's discussion Are every small CPAP machines any good?
"Yes, it does the job. I use a Powapacs Atom for portable power "
Dec 18, 2024
John replied to John's discussion Are every small CPAP machines any good?
"Hi Nick thanks. Does it do the job and could you camp with it?"
Dec 18, 2024
Nick Daniel posted a discussion

CPAP Total Face Mask

I was curious whether anyone has used the CPAP Total Face Masks and could pass on their observations? I've been using an Airfit F20 for years which is fine apart from the permanent red mark on the bridge of my nose, and have recently tried the…See More
Dec 17, 2024
Nick Daniel replied to John's discussion Are every small CPAP machines any good?
"I've been using the Resmed Airmini for about 5 years when travelling - overall lightweight and small and can be controlled by an App, but it does produce a loud whistling/wind sound for me which hasn't been reduced by an inline filter or…"
Dec 17, 2024
Greg Lloyd is now a member of Hope2SleepGuide
Dec 6, 2024
Jonathan replied to David Hudson's discussion Pressure waking me up. Belching and wind
"Hi It sounds like you need to have more conversations with your sleep clinic.  There's little point in having a high pressure if it means you cannot tolerate the machine.  There's an interesting video here…"
Dec 1, 2024
David Hudson posted a discussion

Pressure waking me up. Belching and wind

HiI'm using the prisma smart max machine. Initially I was just on a nasal mask, this changed as I was sleeping with my mouth open. I then went to face and nose mask and complained of bad wind and belching. Sometimes the pressure in the night was…See More
Nov 28, 2024

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