"Hi
The SleepCube was a private purchase, as way back then my local sleep clinic assessed patients by filming them overnight, whilst wearing an oximeter, and only issued CPAP machines without humidifiers. There was no remote monitoring and…"
Sleep Apnoea Forum Bringing Help + Support to the Patient
Forum Discussions (864)
| Discussions | Replies | Latest Activity |
|---|---|---|
Advice needed please!I need help ---(sorry long and rambling post - I will try and stick to the basics) I was diagnosed with OSA 4 years ago. I was having 35… Started by suzie Stiles in Sleep Apnoea |
48 |
Aug 20, 2011 Reply by Julie |
Alcohol and apnoea....hi My 18 year old had laryngomalacia when he was born he only stridors when he has a really bad cold until he went to a party a few weeks… Started by carol murphy in Sleep Apnoea |
4 |
Aug 20, 2011 Reply by carol murphy |
Fao carolHi carol just want to wish u luck with polysomnograghy on Wednesday I need to do it now while things are fresh in my mind! How's everyone h… Started by Rachel Dickinson in Sleep Apnoea |
16 |
Aug 20, 2011 Reply by carol murphy |
Paediatric masksThey don't have much in the line of paediatric masks at the children's hospital and we have the ones he used in intensive care, but they ju… Started by Rachel Dickinson in Sleep Apnoea |
6 |
Aug 19, 2011 Reply by Kath Hope |
DepressionI am quite new to this forum so please excuse my whinging. I have recently re-started treatment with a Bipap auto machine. It has just hit… Started by Carolyn Tipping in Sleep Apnoea |
8 |
Aug 19, 2011 Reply by carol murphy |
Going to sleepHi can anyone help iv been using a cpap for about 8 weeks and its been going fine iv felt so much better ,more awake during the day but for… Started by Stu in Sleep Apnoea |
6 |
Aug 19, 2011 Reply by carol murphy |
Help Needed. My Child is Snoring with his mask onEmil Is snoring through his mask, has done last couple of nights his pressure Is 12 but his home ventilation nurse says kids can get used t… Started by Rachel Dickinson in Sleep Apnoea |
3 |
Aug 18, 2011 Reply by Rachel Dickinson |
MasksI go to clinic tomorrow, wednesday, to try out yet more masks. I have been given a few already, but none seal. Also I find the forehead sup… Started by Carolyn Tipping in Sleep Apnoea |
6 |
Aug 17, 2011 Reply by Kath Hope |
Excess windDoes anyone else suffer from excess wind when using a cpap machine? Started by Stu in Sleep Apnoea |
1 |
Aug 13, 2011 Reply by Kath Hope |
somerset medical centerII am impressed with this hospital as they carry out tests first to see what will be needed before just doing surgery. http://www.somersetm… Started by Joe barnes in Sleep Apnoea |
6 |
Aug 13, 2011 Reply by Joe barnes |
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Latest Activity
"Yeah I was wondering about email address. I thought probably if they wanted me to mail them they would have given out an address. I can imagine heart data is considered more acute than sleep data, so it would make more sense to have that…"
"Hi.
I didn't use PatientsKnowBest (ironic name), but I have an email address for my heart department for sending in ECGs. I was just saying that they may be able to review a PDF when then cannot review a data file from your O2 ring.
I am…"
"Hi Jonathan, did you do that through PatientKnowsBest?"
"On an unrelated topic, I've been able to send ECGs by PDF to my heart clinic.
On the subject of Resmed and apnoeas, take a look at https://youtu.be/ufOOAfyzZso?si=Tpdl4EEiCQBZR4iD&t=276
Your machine may be under-reporting.
Good…"
Wellu O2 Ring - is it accurate enough for the medics?
Moving some furniture my long lost O2 ring continuous oxygen saturation monitor turned up. So I've been wearing it and it tells me I have loads of saturation drops during the night even though my Airsense 10 says I have very few apneas.So I get two…See More
"Hi,
Just thought I'd give an update. So, I had my appointment with the NHS sleep clinic which was much quicker than I anticipated and I've now had the overnight sleep study. My AHI is now 6, down from over 30, so I'm…"
"Hi Sally from what I read the airsense doesn't suffer the same foam degredation issues as the infamous Phillips machine.I can conceive it's possible that microplastics may be shed from the flexible main tube.What worries me more about the…"
"Hi
My sleep clinic discharged me, saying they were happy I was self-managing. Roll on a decade and the cardiologists taking care of me were very unimpressed and I was re-enrolled. I expect remote monitoring with current generation Resmed…"
"Hi Jonathan,
Thanks again for the info. My cpap *should* be monitored by the NHS though I haven’t had any contact from them since pre-covid. I checked out the link you gave to access extra data and I think that’s going to be…"
"Hi
I have the ResMed Airsense 10 Autoset (APAP). It's monitored remotely by my NHS sleep clinic and I believe they can make changes to the settings. I don't know whether they are notified if I make changes, nor whether they…"
"Hi Jonathan,
Thanks for the reply. I'd say that I'm fairly technical. I have the ResMed Airsense 10 Elite machine. I've discovered that I can upload data wirelessly from my machine and having lowered the pressure by…"
"Hi
You don't say how technical you are, or what sort of machine you use. However https://www.sleephq.com/ has software which allows you to upload data from compatible machines, and analyse your sleep "score", including a…"
air bubbles after weight loss
Hi,I've been on Mounjaro for about 3 months now, not primarily for weight loss, but I have lost weight around my face and neck. I've noticed that I am increasingly getting air bubbles in my mouth which of course is disturbing my sleep (and my…See More
Micro plastics risks
I was reading an article in the I newspaper today written by a journalist who had her blood tested for micro plastics and was shocked by the results.…See More
job with the charity
Was wondering if there might be a job for me with Hope2Sleep?(I also just asked this of a group by mistake)See More
For Sale - Ventura Full Total Face CPAP Mask
I’m selling an Ventura Full Total Face CPAP Mask Large and two spare liners. I bought it new from the Hope2Sleep shop, but it is not suitable for me. Only used for about two weeks so I have washed it thoroughly. Because of this, it is very much…See More
"I put in a claim for PIP which was denied and now I am over 66 and on pension I tried for AA. Denied again.I have other health conditions ( Diverticular disease and Bile Acid Malabsorbtion ) which I consider hard to live with and they refused all of…"
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