Hope2SleepGuide

Sleep Apnoea Forum Bringing Help + Support to the Patient

Forum Discussions (863)

Discussions Replies Latest Activity

Dry Mouth - best humidifier settings advice

Hi I have a PR Dreamstation Auto with integrated humidifier connected to a Amara Viewfull face mask via a heated wire tube. My average pres…

Started by Michael Jones in Sleep Apnoea

0 May 16, 2021

Split mask and hospital not helping.

Any ideas about emergency repair to a split mask? It split on Friday night so I've been with9ut my CPAP since then . Called the hospital…

Started by Amanda Farley in Sleep Apnoea

3 May 4, 2021
Reply by Kath Hope

Using humidifier

All the tips I've read regarding cleaning the humidifier state regularly washing with a gentle soap and water and only using distilled wate…

Started by Maxine Chaplain in Sleep Apnoea

3 Apr 28, 2021
Reply by Kath Hope

Newly diagnosed via Phillips at home test and needing advice

Hi all, I have recently been diagnosed with OSA via home test i paid for privately with Phillips and looking at some advice to get treated…

Started by Damien in Sleep Apnoea

12 Mar 13, 2021
Reply by Judith Wilson

Sleep disorder following mini stroke

Hi Kath and everybody. My name is Raza and am new to this forum. It feels really good to sound out people who have first hand experience of…

Started by Raza silveira in Sleep Apnoea

5 Mar 1, 2021
Reply by Kath Hope

Face mask marks

My hubby was having problems with his resmed mask leaving marks. He now uses large black out silk sleep masks which are not so thick to sto…

Started by Sarah in Sleep Apnoea

0 Feb 12, 2021

Newly diagnosed not sure what happens next - Scottish NHS

Hi, Firstly my names Mark and I am totally alien to all of this. I had a sleep test done by the Scottish NHS about 14 weeks ago, after wait…

Started by ScottishSleepyHead in Sleep Apnoea

3 Jan 15, 2021
Reply by Kath Hope

Upper Airways Resistance Syndrome

Hi, I am new to the group! I just wanted to ask for some advice if possible please. I have recently done a Philips home sleep apnoea test…

Started by Cazack in Sleep Apnoea

2 Dec 6, 2020
Reply by Cazack

Ear ache

Hi all I have recently been diagnosed with severe sleep apnoea and have been using CPAP treatment for about 3 months. Up to about two weeks…

Started by Gary in Sleep Apnoea

0 Nov 25, 2020

Dental Pain

I would be grateful for any body else who has suffered from 'dry socket' after tooth extraction.  I wear a full face mask as I am a mouth b…

Started by Carys in Sleep Apnoea

1 Nov 24, 2020
Reply by Kath Hope

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Latest Activity

Jonathan replied to Richard Smith's discussion air bubbles after weight loss
"Hi My sleep clinic discharged me, saying they were happy I was self-managing.  Roll on a decade and the cardiologists taking care of me were very unimpressed and I was re-enrolled.  I expect remote monitoring with current generation Resmed…"
Sep 1
Richard Smith replied to Richard Smith's discussion air bubbles after weight loss
"Hi Jonathan, Thanks again for the info.  My cpap *should* be monitored by the NHS though I haven’t had any contact from them since pre-covid.  I checked out the link you gave to access extra data and I think that’s going to be…"
Aug 31
Jonathan replied to Richard Smith's discussion air bubbles after weight loss
"Hi I have the ResMed Airsense 10 Autoset (APAP).  It's monitored remotely by my NHS sleep clinic and I believe they can make changes to the settings.  I don't know whether they are notified if I make changes, nor whether they…"
Aug 31
Richard Smith replied to Richard Smith's discussion air bubbles after weight loss
"Hi Jonathan, Thanks for the reply.  I'd say that I'm fairly technical.  I have the ResMed Airsense 10 Elite machine.  I've discovered that I can upload data wirelessly from my machine and having lowered the pressure by…"
Aug 30
Jonathan replied to Richard Smith's discussion air bubbles after weight loss
"Hi You don't say how technical you are, or what sort of machine you use.  However https://www.sleephq.com/ has software which allows you to upload data from compatible machines, and analyse your sleep "score", including a…"
Aug 29
Richard Smith posted a discussion

air bubbles after weight loss

Hi,I've been on Mounjaro for about 3 months now, not primarily for weight loss, but I have lost weight around my face and neck.  I've noticed that I am increasingly getting air bubbles in my mouth which of course is disturbing my sleep (and my…See More
Aug 28
Sally Gray posted a discussion

Micro plastics risks

I was reading an article in the I newspaper today written by a journalist who had her blood tested for micro plastics and was shocked by the results.…See More
Aug 3
Alison Mitchell is now a member of Hope2SleepGuide
Jul 2
John posted a discussion

job with the charity

Was wondering if there might be a job for me with Hope2Sleep?(I also just asked this of a group by mistake)See More
Jun 27
Tracey Tilley updated their profile
May 22
Sharon Sullivan posted a discussion

For Sale - Ventura Full Total Face CPAP Mask

I’m selling an Ventura Full Total Face CPAP Mask Large and two spare liners.  I bought it new from the Hope2Sleep shop, but it is not suitable for me.  Only used for about two weeks so I have washed it thoroughly.   Because of this, it is very much…See More
May 17
Tracey Tilley replied to Jim Scullion's discussion UK Attendance Allowance
"I put in a claim for PIP which was denied and now I am over 66 and on pension I tried for AA. Denied again.I have other health conditions ( Diverticular disease and Bile Acid Malabsorbtion ) which I consider hard to live with and they refused all of…"
May 14
Jonathan replied to Sally Gray's discussion ResMed AirMini for travel
"No personal experience, but CPAP.com review of AirMini The AirMini runs at about 30 decibels, which is about the same sound level as a whispered conversation. For comparison, full-sized CPAPs tend to run around 26-28 decibels. Due to their…"
May 5
Sally Gray posted a discussion

ResMed AirMini for travel

I am considering either buying or renting an AirMini for a forthcoming holiday this month where I will be sharing a twin room. I have read that they’re quite noisy and I don’t want to waste my money on either rental or purchase if the noise level…See More
May 3
Sally Gray replied to Nick Daniel's discussion CPAP Total Face Mask
"Hi, I use a ResMed F20 and had the same issue with the silicone full face mask causing red marks and soreness on my nose bridge. I switched over to the Airtouch memory foam full face masks which are expensive and not supplied by the NHS, but the…"
May 3
Kath Hope replied to Glassdaisy's discussion Soft Cap
"It's very much still relevant and we're getting closer to have them manufactured and has been no easy challenge. In fact we were speaking with the company working with us on this only yesterday. If you're not on our newsletter list…"
Mar 27
Glassdaisy posted a discussion

Soft Cap

some time ago I was told that Hope2Sleep was researching a replacement for the discontinued Soft Cap.. as I have seen nothing to indicate moving forward on this, would I be right in assuming you decided it is no longer relevant?See More
Mar 27
Glassdaisy replied to Nick Daniel's discussion CPAP Total Face Mask
"I expect others may have responded by now, but I use the Fitlife full face mask. I kept getting a hard lump on my nose when first starting out & it got so bad that I ended up buying my own masks as my clinic would only give the Fitlife to new…"
Mar 27
Wendy Anthony is now a member of Hope2SleepGuide
Mar 25
David McDade is now a member of Hope2SleepGuide
Jan 3

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