Hope2SleepGuide

Sleep Apnoea Forum Bringing Help + Support to the Patient

Forum Discussions (863)

Discussions Replies Latest Activity

Which is the best sleep apnoea test?

This is my first post and I am very grateful to have found this forum. My husband was tested for sleep apnoea  using a home test on the NH…

Started by Amanda S in Sleep Apnoea

10 Sep 2, 2020
Reply by Kath Hope

Having major trouble and getting very frustrated trying to use CPAP machine - help?

I have, for a number of years, had problems sleeping. Although I'd (most of the time) sleep for a normal amount of time (7-9 hours), I'd fr…

Started by thatbloke in Sleep Apnoea

11 Aug 16, 2020
Reply by Sleep2snore

Breas Z1 cpap machine error 33,

My Breas Z1 machine has suddenly started showing error 33. Having contacted my supplier in the Uk it turns out that Breas will not repair i…

Started by David in Sleep Apnoea

5 Aug 13, 2020
Reply by Sleep2snore

Help! I'm not sure where to turn anymore.

Sorry for the essay! My sleep clinic are useless and I really don't feel they have the knowledge to treat my condition. I've been on cpap/a…

Started by Mark in Sleep Apnoea

6 Aug 13, 2020
Reply by Sleep2snore

I'm so worried about my Health condition and putting on weight.

 Hi everyone, I have been hit by Universal Credit cuts and problems whilst in lockdown,  I also can't go into shops as I'm still shielding.…

Started by Stuart Adrian Gillespie in Sleep Apnoea

3 Aug 13, 2020
Reply by Sleep2snore

Hot weather

Hi all. first summer using CPAP and my god it’s hard to use when it’s hot!! Any tips would be greatly appreciated  Holly

Started by Holly in Sleep Apnoea

4 Aug 13, 2020
Reply by Sleep2snore

Dream mapper 90% pressure changes

Hi I have been using a philips CPAP machine  for about four months and my AHI has been anything from 0.3 to 2.6 but occasionally the 90% pr…

Started by John Garbutt in Sleep Apnoea

3 Jul 23, 2020
Reply by Kath Hope

Sanitising machines

Hi there, It's been a while since I last visited the forum; I hope you have all been well. Since the last time I posted, I was diagnosed wi…

Started by Savannah A. in Sleep Apnoea

1 Jul 22, 2020
Reply by Kath Hope

Want to buy CPAP machine and mask without testing

Hi all,  I'm hoping you can help me. I took a private sleep test with Philips a few months back before the lockdown which shows I have sev…

Started by Leoni Atkins in Sleep Apnoea

1 Jul 5, 2020
Reply by Kath Hope

Follow up appointments

Hi, I have just realised I have never had any follow up appointments since being given my resmed autosense 10 in January 2018. Dvla wants t…

Started by Chris Vesey in Sleep Apnoea

3 Jul 1, 2020
Reply by Kath Hope

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Latest Activity

Jonathan replied to Richard Smith's discussion air bubbles after weight loss
"Hi My sleep clinic discharged me, saying they were happy I was self-managing.  Roll on a decade and the cardiologists taking care of me were very unimpressed and I was re-enrolled.  I expect remote monitoring with current generation Resmed…"
Sep 1
Richard Smith replied to Richard Smith's discussion air bubbles after weight loss
"Hi Jonathan, Thanks again for the info.  My cpap *should* be monitored by the NHS though I haven’t had any contact from them since pre-covid.  I checked out the link you gave to access extra data and I think that’s going to be…"
Aug 31
Jonathan replied to Richard Smith's discussion air bubbles after weight loss
"Hi I have the ResMed Airsense 10 Autoset (APAP).  It's monitored remotely by my NHS sleep clinic and I believe they can make changes to the settings.  I don't know whether they are notified if I make changes, nor whether they…"
Aug 31
Richard Smith replied to Richard Smith's discussion air bubbles after weight loss
"Hi Jonathan, Thanks for the reply.  I'd say that I'm fairly technical.  I have the ResMed Airsense 10 Elite machine.  I've discovered that I can upload data wirelessly from my machine and having lowered the pressure by…"
Aug 30
Jonathan replied to Richard Smith's discussion air bubbles after weight loss
"Hi You don't say how technical you are, or what sort of machine you use.  However https://www.sleephq.com/ has software which allows you to upload data from compatible machines, and analyse your sleep "score", including a…"
Aug 29
Richard Smith posted a discussion

air bubbles after weight loss

Hi,I've been on Mounjaro for about 3 months now, not primarily for weight loss, but I have lost weight around my face and neck.  I've noticed that I am increasingly getting air bubbles in my mouth which of course is disturbing my sleep (and my…See More
Aug 28
Sally Gray posted a discussion

Micro plastics risks

I was reading an article in the I newspaper today written by a journalist who had her blood tested for micro plastics and was shocked by the results.…See More
Aug 3
Alison Mitchell is now a member of Hope2SleepGuide
Jul 2
John posted a discussion

job with the charity

Was wondering if there might be a job for me with Hope2Sleep?(I also just asked this of a group by mistake)See More
Jun 27
Tracey Tilley updated their profile
May 22
Sharon Sullivan posted a discussion

For Sale - Ventura Full Total Face CPAP Mask

I’m selling an Ventura Full Total Face CPAP Mask Large and two spare liners.  I bought it new from the Hope2Sleep shop, but it is not suitable for me.  Only used for about two weeks so I have washed it thoroughly.   Because of this, it is very much…See More
May 17
Tracey Tilley replied to Jim Scullion's discussion UK Attendance Allowance
"I put in a claim for PIP which was denied and now I am over 66 and on pension I tried for AA. Denied again.I have other health conditions ( Diverticular disease and Bile Acid Malabsorbtion ) which I consider hard to live with and they refused all of…"
May 14
Jonathan replied to Sally Gray's discussion ResMed AirMini for travel
"No personal experience, but CPAP.com review of AirMini The AirMini runs at about 30 decibels, which is about the same sound level as a whispered conversation. For comparison, full-sized CPAPs tend to run around 26-28 decibels. Due to their…"
May 5
Sally Gray posted a discussion

ResMed AirMini for travel

I am considering either buying or renting an AirMini for a forthcoming holiday this month where I will be sharing a twin room. I have read that they’re quite noisy and I don’t want to waste my money on either rental or purchase if the noise level…See More
May 3
Sally Gray replied to Nick Daniel's discussion CPAP Total Face Mask
"Hi, I use a ResMed F20 and had the same issue with the silicone full face mask causing red marks and soreness on my nose bridge. I switched over to the Airtouch memory foam full face masks which are expensive and not supplied by the NHS, but the…"
May 3
Kath Hope replied to Glassdaisy's discussion Soft Cap
"It's very much still relevant and we're getting closer to have them manufactured and has been no easy challenge. In fact we were speaking with the company working with us on this only yesterday. If you're not on our newsletter list…"
Mar 27
Glassdaisy posted a discussion

Soft Cap

some time ago I was told that Hope2Sleep was researching a replacement for the discontinued Soft Cap.. as I have seen nothing to indicate moving forward on this, would I be right in assuming you decided it is no longer relevant?See More
Mar 27
Glassdaisy replied to Nick Daniel's discussion CPAP Total Face Mask
"I expect others may have responded by now, but I use the Fitlife full face mask. I kept getting a hard lump on my nose when first starting out & it got so bad that I ended up buying my own masks as my clinic would only give the Fitlife to new…"
Mar 27
Wendy Anthony is now a member of Hope2SleepGuide
Mar 25
David McDade is now a member of Hope2SleepGuide
Jan 3

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