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Forum Discussions (864)

Discussions Replies Latest Activity

cpap machine

When first starting to use a cpap machine how long does it take to start feeling the benefits of using one please.

Started by Mike reed in Sleep Apnoea

41 Feb 24, 2012
Reply by Mike reed

Blocked nose when using CPAP

I have a CPAP machine with a humidifier and use “Nasonex” spray three hours before going to bed. I find most nights one nostril blocks whic…

Started by snoreyhead in Sleep Apnoea

8 Feb 24, 2012
Reply by Tigers Fan

Emil is back at children's tommoro

emil is going in to the children's hospital  tommoro, he's back in the sleep lab for his polysomnograghy I can't wait to see the results co…

Started by Rachel Dickinson in Sleep Apnoea

2 Feb 20, 2012
Reply by Kath Hope

Cpap Battery Power Pack

  I have been looking on the Internet for a battery pack fpr my machine I have found quite a few in the USA and quite a lot cheaper then th…

Started by stephen holdsworth in Sleep Apnoea

4 Feb 18, 2012
Reply by Kath Hope

12 VOlt battery

Hello I have just joined the forum would like to know if any members have used one I go caravaning alot at weekends. Thanks Steve

Started by stephen holdsworth in Sleep Apnoea

5 Feb 18, 2012
Reply by martin mucznik

Power Cuts!!

Over the last week I have had two power cuts at home.  The first one only lasted for two hours and the second one (today) lasted for 7 hour…

Started by Julie in Sleep Apnoea

25 Feb 13, 2012
Reply by Graeme Joy

Feeling Tired using CPAP

Hi,   I have been using CPAP therapy since October 2010, approx 15 months now.   I still feel tired, especially whislt driving.  My wife ha…

Started by Mauro Cipriani in Sleep Apnoea

19 Feb 12, 2012
Reply by Kath Hope

new to cpap

ive just been told i have sleep apnoea and im still trying to get to grips with it,i had the full mask to begin with cos i breath through m…

Started by jane brown in Sleep Apnoea

9 Feb 12, 2012
Reply by Marion@As I Live and Breathe

Using CPAP on a plane.

I am used to travelling about with my sleep kit, so am organised with things like plugs, extension leads etc., but I have never actually us…

Started by Lisa in Sleep Apnoea

9 Feb 10, 2012
Reply by Kath Hope

Mojo mask

Does anyone use a mojo full face mask? If so what do you think of it?

Started by Carolyn Tipping in Sleep Apnoea

0 Feb 9, 2012

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Latest Activity

Jonathan replied to John's discussion Wellu O2 Ring - is it accurate enough for the medics?
"Hi The SleepCube was a private purchase, as way back then my local sleep clinic assessed patients by filming them overnight, whilst wearing an oximeter, and only issued CPAP machines without humidifiers.  There was no remote monitoring and…"
Oct 25
John replied to John's discussion Wellu O2 Ring - is it accurate enough for the medics?
"Yeah I was wondering about email address. I thought probably if they wanted me to mail them they would have given out an address. I can imagine heart data is considered more acute than sleep data, so it would make more sense to have that…"
Oct 24
Jonathan replied to John's discussion Wellu O2 Ring - is it accurate enough for the medics?
"Hi. I didn't use PatientsKnowBest (ironic name), but I have an email address for my heart department for sending in ECGs.  I was just saying that they may be able to review a PDF when then cannot review a data file from your O2 ring. I am…"
Oct 24
John replied to John's discussion Wellu O2 Ring - is it accurate enough for the medics?
"Hi Jonathan, did you do that through PatientKnowsBest?"
Oct 24
Jonathan replied to John's discussion Wellu O2 Ring - is it accurate enough for the medics?
"On an unrelated topic, I've been able to send ECGs by PDF to my heart clinic. On the subject of Resmed and apnoeas, take a look at https://youtu.be/ufOOAfyzZso?si=Tpdl4EEiCQBZR4iD&t=276 Your machine may be under-reporting. Good…"
Oct 24
John posted a discussion

Wellu O2 Ring - is it accurate enough for the medics?

Moving some furniture my long lost O2 ring continuous oxygen saturation monitor turned up. So I've been wearing it and it tells me I have loads of saturation drops during the night even though my Airsense 10 says I have very few apneas.So I get two…See More
Oct 21
Richard Smith replied to Richard Smith's discussion air bubbles after weight loss
"Hi, Just thought I'd give an update.  So, I had my appointment with the NHS sleep clinic which was much quicker than I anticipated and I've now had the overnight sleep study.  My AHI is now 6, down from over 30, so I'm…"
Oct 15
John replied to Sally Gray's discussion Microplastics risks
"Hi Sally from what I read the airsense doesn't suffer the same foam degredation issues as the infamous Phillips machine.I can conceive it's possible that microplastics may be shed from the flexible main tube.What worries me more about the…"
Oct 7
Jonathan replied to Richard Smith's discussion air bubbles after weight loss
"Hi My sleep clinic discharged me, saying they were happy I was self-managing.  Roll on a decade and the cardiologists taking care of me were very unimpressed and I was re-enrolled.  I expect remote monitoring with current generation Resmed…"
Sep 1
Richard Smith replied to Richard Smith's discussion air bubbles after weight loss
"Hi Jonathan, Thanks again for the info.  My cpap *should* be monitored by the NHS though I haven’t had any contact from them since pre-covid.  I checked out the link you gave to access extra data and I think that’s going to be…"
Aug 31
Jonathan replied to Richard Smith's discussion air bubbles after weight loss
"Hi I have the ResMed Airsense 10 Autoset (APAP).  It's monitored remotely by my NHS sleep clinic and I believe they can make changes to the settings.  I don't know whether they are notified if I make changes, nor whether they…"
Aug 31
Richard Smith replied to Richard Smith's discussion air bubbles after weight loss
"Hi Jonathan, Thanks for the reply.  I'd say that I'm fairly technical.  I have the ResMed Airsense 10 Elite machine.  I've discovered that I can upload data wirelessly from my machine and having lowered the pressure by…"
Aug 30
Jonathan replied to Richard Smith's discussion air bubbles after weight loss
"Hi You don't say how technical you are, or what sort of machine you use.  However https://www.sleephq.com/ has software which allows you to upload data from compatible machines, and analyse your sleep "score", including a…"
Aug 29
Richard Smith posted a discussion

air bubbles after weight loss

Hi,I've been on Mounjaro for about 3 months now, not primarily for weight loss, but I have lost weight around my face and neck.  I've noticed that I am increasingly getting air bubbles in my mouth which of course is disturbing my sleep (and my…See More
Aug 28
Sally Gray posted a discussion

Micro plastics risks

I was reading an article in the I newspaper today written by a journalist who had her blood tested for micro plastics and was shocked by the results.…See More
Aug 3
Alison Mitchell is now a member of Hope2SleepGuide
Jul 2
John posted a discussion

job with the charity

Was wondering if there might be a job for me with Hope2Sleep?(I also just asked this of a group by mistake)See More
Jun 27
Tracey Tilley updated their profile
May 22
Sharon Sullivan posted a discussion

For Sale - Ventura Full Total Face CPAP Mask

I’m selling an Ventura Full Total Face CPAP Mask Large and two spare liners.  I bought it new from the Hope2Sleep shop, but it is not suitable for me.  Only used for about two weeks so I have washed it thoroughly.   Because of this, it is very much…See More
May 17
Tracey Tilley replied to Jim Scullion's discussion UK Attendance Allowance
"I put in a claim for PIP which was denied and now I am over 66 and on pension I tried for AA. Denied again.I have other health conditions ( Diverticular disease and Bile Acid Malabsorbtion ) which I consider hard to live with and they refused all of…"
May 14

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