"Hi
The SleepCube was a private purchase, as way back then my local sleep clinic assessed patients by filming them overnight, whilst wearing an oximeter, and only issued CPAP machines without humidifiers. There was no remote monitoring and…"
Sleep Apnoea Forum Bringing Help + Support to the Patient
Forum Discussions (864)
| Discussions | Replies | Latest Activity |
|---|---|---|
Settings and different masks / colds etc.For the most time my machine (Icon Auto) is set for 8 min 18 max and seldom rises above 10, when using a sleepweaver mask (nasal). Generall… Started by symmit in Sleep Apnoea |
6 |
Feb 9, 2012 Reply by symmit |
Power CutsDoes anyone experience power cuts at home… if so what do they do.. I know the CPAP machine will just turn off accordingly, but wondered ha… Started by Roz B in Sleep Apnoea |
6 |
Feb 4, 2012 Reply by Roz B |
waking up suddenly with a mouthful of salivaHi I am finding I am waking up suddenly with a mouthful of saliva (there is no a stomach acid taste at all and no signs of indigestion). I… Started by Philip in Sleep Apnoea |
1 |
Feb 4, 2012 Reply by Kath Hope |
F&P Icon - full reviewF&P Icon Auto Review. I've had this machine a couple of weeks now, moving from a Hoffrichter Trend II (which is now my "portable" rig)… Started by symmit in Sleep Apnoea |
5 |
Jan 31, 2012 Reply by RockRpsgt |
SASA conference and AGM 2012 to be held on Saturday 29th September.For those of us in Scotland, the 2012 SASA conference is to be held in the Glasgow area. At the moment I have no further details, as to ex… Started by Lisa in Sleep Apnoea |
2 |
Jan 27, 2012 Reply by Isla Deuchar |
BABY WITH SLEEP APNOEA HISTORY DIES!!!Just came across this article about a baby with a history of Sleep Apnoea found dead in her cot. Why on earth wasn't she being treated? S… Started by Kath Hope in Sleep Apnoea |
8 |
Jan 27, 2012 Reply by Kath Hope |
Happy Birthday CPAP - 30 years old today!A big thank you needs to go to Colin Sullivan, the Australian Inventor of PAP and the reason why we're able to lead a healthier life now we… Started by Kath Hope in Sleep Apnoea |
5 |
Jan 26, 2012 Reply by Roz B |
still struggling !!Well Things may be a little better i can now get of to sleep with this mask on only problem is i cant stay asleep for longer than an hour a… Started by gina in Sleep Apnoea |
23 |
Jan 25, 2012 Reply by Terry Vella |
NEW MASK - GoLife with separate versions for Men and WomenJust letting you know that the eagerly-awaited brand new GoLife Mask is now available. Philips Respironics have listened to the patients -… Started by Kath Hope in Sleep Apnoea |
4 |
Jan 25, 2012 Reply by Kath Hope |
SnoringHi, Can anyone tell me why my snoring is just as bad when I am using the CPAP. It is so loud that my neighbour downstairs can hear it. I… Started by Isla Deuchar in Sleep Apnoea |
10 |
Jan 24, 2012 Reply by Isla Deuchar |
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Latest Activity
"Yeah I was wondering about email address. I thought probably if they wanted me to mail them they would have given out an address. I can imagine heart data is considered more acute than sleep data, so it would make more sense to have that…"
"Hi.
I didn't use PatientsKnowBest (ironic name), but I have an email address for my heart department for sending in ECGs. I was just saying that they may be able to review a PDF when then cannot review a data file from your O2 ring.
I am…"
"Hi Jonathan, did you do that through PatientKnowsBest?"
"On an unrelated topic, I've been able to send ECGs by PDF to my heart clinic.
On the subject of Resmed and apnoeas, take a look at https://youtu.be/ufOOAfyzZso?si=Tpdl4EEiCQBZR4iD&t=276
Your machine may be under-reporting.
Good…"
Wellu O2 Ring - is it accurate enough for the medics?
Moving some furniture my long lost O2 ring continuous oxygen saturation monitor turned up. So I've been wearing it and it tells me I have loads of saturation drops during the night even though my Airsense 10 says I have very few apneas.So I get two…See More
"Hi,
Just thought I'd give an update. So, I had my appointment with the NHS sleep clinic which was much quicker than I anticipated and I've now had the overnight sleep study. My AHI is now 6, down from over 30, so I'm…"
"Hi Sally from what I read the airsense doesn't suffer the same foam degredation issues as the infamous Phillips machine.I can conceive it's possible that microplastics may be shed from the flexible main tube.What worries me more about the…"
"Hi
My sleep clinic discharged me, saying they were happy I was self-managing. Roll on a decade and the cardiologists taking care of me were very unimpressed and I was re-enrolled. I expect remote monitoring with current generation Resmed…"
"Hi Jonathan,
Thanks again for the info. My cpap *should* be monitored by the NHS though I haven’t had any contact from them since pre-covid. I checked out the link you gave to access extra data and I think that’s going to be…"
"Hi
I have the ResMed Airsense 10 Autoset (APAP). It's monitored remotely by my NHS sleep clinic and I believe they can make changes to the settings. I don't know whether they are notified if I make changes, nor whether they…"
"Hi Jonathan,
Thanks for the reply. I'd say that I'm fairly technical. I have the ResMed Airsense 10 Elite machine. I've discovered that I can upload data wirelessly from my machine and having lowered the pressure by…"
"Hi
You don't say how technical you are, or what sort of machine you use. However https://www.sleephq.com/ has software which allows you to upload data from compatible machines, and analyse your sleep "score", including a…"
air bubbles after weight loss
Hi,I've been on Mounjaro for about 3 months now, not primarily for weight loss, but I have lost weight around my face and neck. I've noticed that I am increasingly getting air bubbles in my mouth which of course is disturbing my sleep (and my…See More
Micro plastics risks
I was reading an article in the I newspaper today written by a journalist who had her blood tested for micro plastics and was shocked by the results.…See More
job with the charity
Was wondering if there might be a job for me with Hope2Sleep?(I also just asked this of a group by mistake)See More
For Sale - Ventura Full Total Face CPAP Mask
I’m selling an Ventura Full Total Face CPAP Mask Large and two spare liners. I bought it new from the Hope2Sleep shop, but it is not suitable for me. Only used for about two weeks so I have washed it thoroughly. Because of this, it is very much…See More
"I put in a claim for PIP which was denied and now I am over 66 and on pension I tried for AA. Denied again.I have other health conditions ( Diverticular disease and Bile Acid Malabsorbtion ) which I consider hard to live with and they refused all of…"
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