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Sleep Apnoea Forum Bringing Help + Support to the Patient

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Discussions Replies Latest Activity

BRITISH LUNG FOUNDATION + PHILIPS RESPIRONICS SLEEP APNOEA CAMPAIGN

'BLF Breathe Easy Week' 13th - 19th June is dedicated to raising awareness of Sleep Apnoea, and is supported by Philips Respironics.  An i…

Started by Kath Hope in Sleep Apnoea

0 Jun 10, 2011

SHOULD CPAP BE USED FOR DAYTIME NAPS?

This is a question I'm asked a lot, and I did lots of digging in the past and came to the conclusion that the answer is "Yes, Yes, Yes!!" …

Started by Kath Hope in Sleep Apnoea

25 Jun 3, 2011
Reply by Joe barnes

HI index

I unplugged emils machine this mornin as I was moving his cot around I never unplug it but when I plugged it back in it sed the HI index wa…

Started by Rachel Dickinson in Sleep Apnoea

15 Jun 2, 2011
Reply by RockRpsgt

hope this works

just want to add these vids of emil the first one is after two failed supraglottoplastys the second after a third attempt at supraglottopla…

Started by Rachel Dickinson in Sleep Apnoea

1 May 30, 2011
Reply by Kath Hope

this new Fit Life face mask

does anyone use the total face mask? emil has got this respironics fitlife total face mask, i have put a pic on, its great he is so calm no…

Started by Rachel Dickinson in Sleep Apnoea

14 May 29, 2011
Reply by Kath Hope

HOW SLEEP APNOEA AFFECTS CHILDREN + TREATMENTS

Here's a link to a very good video seminar from John Hopkins Medicine about how Sleep Apnoea can affect children and what treatments are av…

Started by Kath Hope in Sleep Apnoea

0 May 27, 2011

SO TIRED WITH NO ENERGY (When Things Go Wrong)

Having deja vu today...... I decided I'd read in bed before putting on the mask last night, only I fell asleep with the book still in my ha…

Started by Kath Hope in Sleep Apnoea

0 May 26, 2011

Sleep Clinic Appointments

how often do you go to the clinic?   i go to oxford and just phone up for spares.  i havnt been for 6 years to an appointment.  mind you i…

Started by diane lester in Sleep Apnoea

15 May 25, 2011
Reply by Kath Hope

DOGS CAN ALSO SUFFER FROM SLEEP APNOEA

Well, judging by the amount of snoring (with pauses and snorts) our dog, Scooby, does I'm certainly convinced that dogs can have sleep apno…

Started by Kath Hope in Sleep Apnoea

1 May 24, 2011
Reply by RockRpsgt

my machine is gone now.....

Ive been going for the last year now, and the girl told me that cos i have severe obstructive sleep apnea, they would work with me on getti…

Started by Geraldine Burrows in Sleep Apnoea

1 May 23, 2011
Reply by Kath Hope

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Latest Activity

Edam replied to Edam's discussion Double inhaling
"If the top limit is unrestricted then it will go up to 20 for up to 5 hours a night.  The hospital say that I need this pressure as my Apnea is getting worse but my AHI is nearly always under 1"
Thursday
Sleep2snore replied to Chris Vesey's discussion Cure for wind
"It is very common for people to get wind in there stomach using CPAP/APAP.  As Kath say, at the start it can be quite bad for some people, others are not bothered.  In fact the ResMed is less likely to give you this problem, but saying…"
Wednesday
Sleep2snore replied to Edam's discussion Double inhaling
"Your machine should not go higher unless you need more pressure. The machine I have was set at 10 to 20 when I got it and it has never ventured above 12.9. I have a ResMed 10Auto which I found to be a little better than the Dreamstation.  I…"
Wednesday
Edam replied to Edam's discussion Double inhaling
"I trialled the Sleepweaver before it came out, I believe I still have it somewhere, but I could not get on with it then. I used a liner on the Dreamwear last night but still was too painful to use and had to change masks during the early hours..…"
Wednesday
Edam replied to Edam's discussion Double inhaling
Wednesday
Kath Hope replied to Chris Vesey's discussion Cure for wind
"This is a common problem Sally, and especially when new to CPAP, irrespective of whatever machines people use.  It's definitely not just an Airsense 10 problem. If you've not clicked on the link I posted above in my reply to Chris…"
Monday
Sally Gray replied to Chris Vesey's discussion Cure for wind
"Hi, it’s interesting to read Chris’s comment that the AirSense 10 has given him flatulence whereas his previous CPAP wasn’t a problem.  I’m new to using a CPAP and have been provided with an AirSense 10 which I’m…"
Sep 17
Kath Hope replied to Bob Blair's discussion So Clean sanitiser
"I'm not aware of finance, and we at the Hope2Sleep Charity certainly couldn't offer this unfortunately.  However, if you have a Paypal account then you can apply for Paypal Credit which is offered for products over £150 I…"
Sep 16
Kyla Davies replied to Bob Blair's discussion So Clean sanitiser
"Hi Kath In relation to the Soclean do you know if any finance is available to purchase one of these machines? I do not mind spending that amount on one but would be very helpful especially this time of year to purchase one on a finance…"
Sep 16
Kath Hope replied to Bob Blair's discussion So Clean sanitiser
"Great to hear this Andy Just as importantly they will help prevent gum disease from dry mouth (plus less dental bills)."
Sep 14
Andy Dykes replied to Bob Blair's discussion So Clean sanitiser
"Tried one Xylimelts last night. Best sleep in ages. No waking up with a terrible dry mouth. Very pleased thank you"
Sep 14
Kath Hope replied to Bob Blair's discussion So Clean sanitiser
"Thanks for supporting our charity with your order Andy, and they'll be sent out tomorrow.  I love the Beaumont Citrus Wipes and have tried all the others, and these are definitely the best.  I use them everyday. Hope you find the…"
Sep 11
Andy Dykes replied to Bob Blair's discussion So Clean sanitiser
"Have just placed an order for some mask wipes and the mouth discs. Thanks for the recommendation of the discs, fingers crossed."
Sep 11
Kath Hope replied to Bob Blair's discussion So Clean sanitiser
"The SoClean will never be supplied by the NHS as they can't afford to give out products like this.  We have the SoClean at the charity at the price we've been told it has to be sold for…"
Sep 11
Andy Dykes replied to Bob Blair's discussion So Clean sanitiser
"Thank you for quick reply. The advert was on TV again this afternoon with a web address that links to an Amazon site. After a bit of research I have found a UK seller for £245 with 30 day return. Still not convinced so called my Respiratory…"
Sep 11
Sleep2snore replied to Edam's discussion Double inhaling
"I am sure they are not, but a lt of people tend to tighten their masks up to tightly. A lot more than they need to to stop leaks, I was no exception at the start, if it leaked, tighten it more, but this was not the answer.  New mask the correct…"
Sep 11
Kath Hope replied to Bob Blair's discussion So Clean sanitiser
"I still haven't seen the advert Andy, but lots of people are contacting us about purchasing.  First and foremost, whether with the SoClean or not, it is important to keep our equipment cleaned.  You're doing the right thing…"
Sep 10
Andy Dykes updated their profile
Sep 10
Andy Dykes replied to Bob Blair's discussion So Clean sanitiser
"Oh dear. Looks like I'm in trouble! I have used a CPAP machine for more than 10 years (not the same one) and currently have a Remstar System One SE. Have just seen an advert on TV for the SoClean which got me wondering how often are you…"
Sep 10
Andy Dykes is now a member of Hope2SleepGuide
Sep 10

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