"Hi
The SleepCube was a private purchase, as way back then my local sleep clinic assessed patients by filming them overnight, whilst wearing an oximeter, and only issued CPAP machines without humidifiers. There was no remote monitoring and…"
Sleep Apnoea Forum Bringing Help + Support to the Patient
Forum Discussions (864)
| Discussions | Replies | Latest Activity |
|---|---|---|
InterestingCould schizophrenia be a sleep disorder? Schizophrenia is among the most damaging and least understood of all mental disorders. Now a seemi… Started by RockRpsgt in Sleep Apnoea |
3 |
Jan 24, 2012 Reply by Lisa |
Frozen SleeplessBack to square one. Haven't worn my mask in over a month. Had a couple of nights where I woke up feeling entire body was paralyzed &… Started by Cathy Smith in Sleep Apnoea |
10 |
Jan 23, 2012 Reply by RockRpsgt |
Shorter HoseAs i said in a previous discussion, my ahi's have gone back up to 25. I thought it was because I had started to use a much longer hose. Wel… Started by Carolyn Tipping in Sleep Apnoea |
10 |
Jan 20, 2012 Reply by Carolyn Tipping |
Still no phonecallFor the past 3 friday's, including tomorrow, I have phoned my sleep clinic to get help, and advice, on my bi-pap treatment.I have been told… Started by Carolyn Tipping in Sleep Apnoea |
4 |
Jan 20, 2012 Reply by Carolyn Tipping |
Sore Gums and TeethHi All I have been on CPAP for the past few weeks and all i can say is it is an up hill struggle. Last night I put my mask on and before I… Started by gina in Sleep Apnoea |
7 |
Jan 20, 2012 Reply by gina |
Chest infection..any advice?11 days into CPAP, and I am getting used to it, ironing out teething problems without problems. I have a Phillips System One REMstar Pro wi… Started by Darryl Milligan in Sleep Apnoea |
14 |
Jan 19, 2012 Reply by Kath Hope |
Holding Breath Whilst Awake?Just been asked by a Twitter follower who has sleep apnoea if it's normal to sometimes hold our breath whilst awake. I do this sometimes a… Started by Kath Hope in Sleep Apnoea |
38 |
Jan 19, 2012 Reply by Kath Hope |
Central ApneaAnyone out there with mainly central apneas that has to use an ASV machine? Started by Elianna Halsey in Sleep Apnoea |
24 |
Jan 18, 2012 Reply by Elianna Halsey |
One preventitive treatment that will help everything.http://www.cbc.ca/news/canada/toronto/story/2012/01/11/toronto-viral-video-doctor-health.html Started by RockRpsgt in Sleep Apnoea |
5 |
Jan 18, 2012 Reply by Rosemary Kemp |
HoseAs I have said in a previous discussion, when I changed the hose on my machine, to a much longer hose, my ahi' went back up to 25. I change… Started by Carolyn Tipping in Sleep Apnoea |
2 |
Jan 18, 2012 Reply by Carolyn Tipping |
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Latest Activity
"Yeah I was wondering about email address. I thought probably if they wanted me to mail them they would have given out an address. I can imagine heart data is considered more acute than sleep data, so it would make more sense to have that…"
"Hi.
I didn't use PatientsKnowBest (ironic name), but I have an email address for my heart department for sending in ECGs. I was just saying that they may be able to review a PDF when then cannot review a data file from your O2 ring.
I am…"
"Hi Jonathan, did you do that through PatientKnowsBest?"
"On an unrelated topic, I've been able to send ECGs by PDF to my heart clinic.
On the subject of Resmed and apnoeas, take a look at https://youtu.be/ufOOAfyzZso?si=Tpdl4EEiCQBZR4iD&t=276
Your machine may be under-reporting.
Good…"
Wellu O2 Ring - is it accurate enough for the medics?
Moving some furniture my long lost O2 ring continuous oxygen saturation monitor turned up. So I've been wearing it and it tells me I have loads of saturation drops during the night even though my Airsense 10 says I have very few apneas.So I get two…See More
"Hi,
Just thought I'd give an update. So, I had my appointment with the NHS sleep clinic which was much quicker than I anticipated and I've now had the overnight sleep study. My AHI is now 6, down from over 30, so I'm…"
"Hi Sally from what I read the airsense doesn't suffer the same foam degredation issues as the infamous Phillips machine.I can conceive it's possible that microplastics may be shed from the flexible main tube.What worries me more about the…"
"Hi
My sleep clinic discharged me, saying they were happy I was self-managing. Roll on a decade and the cardiologists taking care of me were very unimpressed and I was re-enrolled. I expect remote monitoring with current generation Resmed…"
"Hi Jonathan,
Thanks again for the info. My cpap *should* be monitored by the NHS though I haven’t had any contact from them since pre-covid. I checked out the link you gave to access extra data and I think that’s going to be…"
"Hi
I have the ResMed Airsense 10 Autoset (APAP). It's monitored remotely by my NHS sleep clinic and I believe they can make changes to the settings. I don't know whether they are notified if I make changes, nor whether they…"
"Hi Jonathan,
Thanks for the reply. I'd say that I'm fairly technical. I have the ResMed Airsense 10 Elite machine. I've discovered that I can upload data wirelessly from my machine and having lowered the pressure by…"
"Hi
You don't say how technical you are, or what sort of machine you use. However https://www.sleephq.com/ has software which allows you to upload data from compatible machines, and analyse your sleep "score", including a…"
air bubbles after weight loss
Hi,I've been on Mounjaro for about 3 months now, not primarily for weight loss, but I have lost weight around my face and neck. I've noticed that I am increasingly getting air bubbles in my mouth which of course is disturbing my sleep (and my…See More
Micro plastics risks
I was reading an article in the I newspaper today written by a journalist who had her blood tested for micro plastics and was shocked by the results.…See More
job with the charity
Was wondering if there might be a job for me with Hope2Sleep?(I also just asked this of a group by mistake)See More
For Sale - Ventura Full Total Face CPAP Mask
I’m selling an Ventura Full Total Face CPAP Mask Large and two spare liners. I bought it new from the Hope2Sleep shop, but it is not suitable for me. Only used for about two weeks so I have washed it thoroughly. Because of this, it is very much…See More
"I put in a claim for PIP which was denied and now I am over 66 and on pension I tried for AA. Denied again.I have other health conditions ( Diverticular disease and Bile Acid Malabsorbtion ) which I consider hard to live with and they refused all of…"
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