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Edam
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  • Enfield
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Edam's Discussions

Double inhaling
25 Replies

I have had problems with my Resmed S9 APAP staying at 20 cm for 2-3 hours at a time which wrecks me the next day.This problem has been ongoing for many months and when I think I have fixed it it…Continue

Started this discussion. Last reply by Sleep2snore May 31.

Changing hospital
4 Replies

I am considering asking my GP to refer me to another hospital for the supply and monitoring of CPAP .Would I just be supplied another CPAP and mask by the new hospital or would a new sleep test have…Continue

Started this discussion. Last reply by Edam Apr 29.

Twisted strap ouchhh!!
3 Replies

My Simplus FFM is nearly the best mask I have used over several years but I have a bad habit of putting my mask on with the forehead strap twisted and then going to sleep.This mostly occurs when I…Continue

Started this discussion. Last reply by Sleep2snore May 22.

Amara view mask
5 Replies

I am thinking about buying a Amara View mask as the Simplus I use is giving me problems with the forehead support.Using the fitting gauge my nose measures as a medium but this measures the depth of…Continue

Started this discussion. Last reply by N Feb 18.

 

Edam's Page

Latest Activity

Sleep2snore replied to Edam's discussion Double inhaling
"So if she didn't deal with COPD or Sleep Apnoea what did she deal with? I think it is a simple case of the steroids keeping your airways in the lungs open when you are using your cpap. A collar might keep you from restricting your own…"
May 31
Edam replied to Edam's discussion Double inhaling
"The visit to the nurse was a complete waste of time as she did not deal with patients with COPD or let alone Sleep Apnea. In March I was prescribed oral steroids as I had a flare up and my AHI was zero for 3 nights in a row. So that does suggest ,…"
May 31
Edam replied to Edam's discussion Double inhaling
"A Chin strap would be no use!!!!! as I  have to breath through my mouth as the flow of air through my nose is restricted my polyps and a deviated septum . That is why I have to use a full face mask. Im wondering that as the air is being…"
May 30
Sleep2snore replied to Edam's discussion Double inhaling
"I have just ordered a soft collar from China, bit of a gamble bit for £2.89p and free postage it is worth a try, I do not want to pay British prices just to try one.  I will report back on the quality (which it my not be good, but what do…"
May 30
Sleep2snore replied to Edam's discussion Double inhaling
"Always worth a try and it is always an alternative to a chin strap which will only hold your mouth shut, but the ones supplied from a sleep clinic are usually single strap ones that just slip on the head and tend to be stretch type material which is…"
May 30
Edam replied to Edam's discussion Double inhaling
"I think you may be on to something with the positional sleeping. This could well explain the red patch on the top of my chest and underneath my chin. I will try a different pillow tonight until I can get a collar. Thanks"
May 30
Sleep2snore replied to Edam's discussion Double inhaling
"The other thing that can affect is positional sleeping, if you tuck your chin towards your chest when sleeping. Trouble with this is you don't know you are doing it as you are sleeping and it is usually in the middle of the night when others…"
May 29
Edam replied to Chris Vesey's discussion Medistron batteries
"I bought a power cord and battery pack to use on the Philips Remstar so I could go night fishing. Then the hospital changed me over to a Resmed S9 which is 24v No more night fishing"
May 27
Edam replied to Edam's discussion Double inhaling
"I have been using   Remstar and S9 APAP,s for about 9 years now and my COPD was diagnosed at the same time. A consultant wanted to stop my Steroid inhaler completely as my COPD was not bad enough to require it but the nurse just…"
May 22
Sleep2snore replied to Edam's discussion Double inhaling
"Well the inhaler makes the lungs open up and if anything the dryness from a CPAP will dry them up and shut them down again. I am no doctor, but if you needed an inhaler before CPAP you would certainly need one after you start. Why did they cut you…"
May 22
Sleep2snore replied to Edam's discussion Twisted strap ouchhh!!
"What kind of strap is it, is it a cloth one or a silicone one? If it is a cloth one you could sew a strip along it to give it a bit more rigidity/stiffness. If it is a plastic one or a silicone one you could sew a bit of fabric round it to make it…"
May 22
Edam replied to Edam's discussion Twisted strap ouchhh!!
"I twisted the forehead strap again last night and OUCH!! Can anybody suggest a full face mask without the forehead strap. I cant use the Resmed Airfit masks as I seem to be exactly between sizes "
May 22
Edam replied to Edam's discussion Double inhaling
"Using the  increased steroid dosage inhaler, 200 /6 rather than 100/6, has reduced my 95% pressures by about 5 cm. Doing some detective work I have found that I was put onto a lower dosage inhaler in May last year. I think that is when the…"
May 22
Edam replied to Edam's discussion Double inhaling
"I have read that APAP machines are not suitable for people with Asthma and give the same problems that I have been having. I am now having to use twice the dose of steriods just to keep the APAP happy If I can ever get in touch with my hospital I…"
May 17
Sleep2snore replied to Edam's discussion Double inhaling
"I would like to see how the hospital is going to explain that your Apnoea is getting worse with an AHU of 0. That is almost incompetent. It might also be that it is not straight forward Sleep Apnoea you have and might benefit from an advanced…"
May 14
Edam replied to Edam's discussion Double inhaling
"I have read that if you have Asthma a CPAP is better than a APAP  When the APAP increases the pressure it makes the asthma worse and then the APAP increases the pressure again which makes the asthma even worse ..... This is exactly whats…"
May 13

Profile Information

My Interest in Sleep Apnoea
I have Sleep Apnoea
Treatment Being Used, If Any
Auto-Adjusting CPAP
If Machine Being Used, What Make? (e.g., Respironics M Series with A-Flex Auto-Adjusting CPAP)
Resmed S9 Autoset
Resmed H5i Humidifier
Climateline tube
If Mask Being Used, What Type? (e.g., ResMed Activa Nasal Mask)
Fisher Paykel Simplus

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Latest Activity

Alison replied to Bethany's discussion Help for the hubby
"Hi Bethany, Just a suggestion but has anyone mentioned narcolepsy?"
yesterday
Profile Iconsharon and Penny Harrison joined Hope2SleepGuide
Saturday
jjimjam is now a member of Hope2SleepGuide
Jun 14
Sleep2snore replied to Bethany's discussion Help for the hubby
"The two things that come to mind is diabetes and low blood pressure.  Though I think they would have checked for diabetes, a sudden drop in blood pressure is more difficult to catch.  Has he had his heart checked?  Also there is a…"
Jun 12
Bethany replied to Bethany's discussion Help for the hubby
"Thank you for the welcome.  It can get very frustrating, especially when we hear stories like yours with a very long fight before getting any actual diagnosis. We have feeling that we are also going to be on a very long road before we find…"
Jun 8
Bethany replied to Bethany's discussion Help for the hubby
"His CPAP machine is currently set at 7.5cmph, it was originally a little lower but after his check up they advised to increase it. He has follow ups with a sleep doctor every 3 months for the first year (unless we are having problems then we can go…"
Jun 8
Vivienne Roberts added 2 discussions to the group Buy-Sell-Swap
Jun 6
Vivienne Roberts joined The SleepGuide Crew's group
Jun 6
Sleep2snore replied to Mags's discussion What is a good oxygen Oximeter
"You should have got the manual with the Airsense 10 Autoset? If you didn't get it AIRSENSE RANGE MANUAL . pdf"
Jun 6
Sleep2snore replied to Chris Vesey's discussion What pressures?
"I hope they set the low pressure up and that it is not left 4 to 20. I find a lot of people is given machines set up like this and that is not really good. It is not recommended that you shift the pressures on an NHS machine, the clinic will not be…"
Jun 6
Sleep2snore replied to Bethany's discussion Help for the hubby
"Is it a CPAP machine with a fixed pressure he has? It might be that a fixed pressure machine is not the right one for him or he may have a complicated Sleep Apnoea, in other words there are other things going on other than just his throat…"
Jun 6
Kath Hope replied to Chris Vesey's discussion What pressures?
"Hi Chris I think you mean 'APAP' rather than 'acap' and if so, it will have automatic pressures.  It's not really recommended to alter your own pressures, and people only usually do that in desperation if they…"
Jun 6
Kath Hope replied to Bethany's discussion Help for the hubby
"Welcome to our forum Bethany, but so sorry to read of what you're both going through.  Glad your husband's severe sleep apnoea got picked up finally and at least you know he's on good treatment for that.  However, it's…"
Jun 6
Profile IconVivienne Roberts, Bethany and Andrew Woo joined Hope2SleepGuide
Jun 6
Bethany posted a discussion

Help for the hubby

Hello everyone, I am hoping that maybe someone out there has been through what my husband is currently having to deal with. Three years ago my husband randomly collapsed at his place of work (hes an engineer and works with machinery so naturally him…See More
Jun 5
Chris Vesey posted a discussion

What pressures?

Hi,I was given my resmed airsense 10 by the hospital and instructed in its use. At no time were pressures mentioned and i have read of people altering the pressures. As mine is an acap does this mean that the pressure is set automatically by the…See More
Jun 4
Mags updated their profile
Jun 4
Mags replied to Mags's discussion What is a good oxygen Oximeter
"Thanks Kath Will have a look in the morning and let you know"
Jun 4
Kath Hope replied to Mags's discussion What is a good oxygen Oximeter
"The Airsense Autoset does show the data in you look in the 'Sleep Report' section on your screen you can then scroll down to AHI and should also be able to see leakage.  If you can't see the AHI then it means the hospital have…"
Jun 4
Mags replied to Mags's discussion What is a good oxygen Oximeter
"The Machine is Res Med AirSense 10 AutoSet"
Jun 3

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