Hope2SleepGuide

Sleep Apnoea Forum Bringing Help + Support to the Patient

Well. I am now three days into CPAP and so far:

I feel more alert and refreshed
My skin is clearer (weird but it is!
I am more clear headed.
I am finding it easier to cope with the challenges my autistic son throws at me. He thinks the mask etc is hilarious, I look like Darth Vader apparently! Cheers kiddo.

A few teething issues but nothing I cannot cope with or tweak.

But- the mask and hose, it's a seriously sexy look isn't it lol. 

Views: 144

Reply to This

Replies to This Discussion

Glad things are going well for you. My son thinks I look like the OOOD from Dr Who!

This is great news already Amanda, and just think of how much better you'll be feeling as time goes on, once your body has been repaid all those years of sleep debt when undiagnosed :)

Incidentally, I have come across a large number of ladies with sleep apnoea who were undiagnosed during pregnancy, and have autistic children and other similar conditions like ADHD etc.  I've not come across any studies yet, but I know research is going on to see if there's a link.  It wouldn't surprise me if there was, bearing in mind how often there is a lack of oxygen to the placenta when we have so many apnoeas in our sleep.  Added to the fact that our undiagnosed sleep apnoea gets worse during pregnancy.  In fact some women only have OSA when pregnant.  Sleep apnoea is like the missing link which escaped all the medics for years, causing so many other health issues.

Heh - glad it's working for you - I used to suffer with unbearably dry and flaky skin that was constantly itchy, and that cleared up for me! 

Amanda, well done so far, probably getting more oxygen is helping all the cells to regenerate. Just wait to see how you are a year down the track, a new woman lol. Kath, just on the pregancy, I had my gallbladder out last year and the number of women on another website I am on that have had theirs removed after pregnancy is amazing. I didnt have mine out because of pregnancy, just in case you thought I did lol.

I had my gallbladder removed 6 months after having my son - weird isn't it?

 

And Kath, that research is interesting especially as autism is so unexplained. My son is fairly high functioning but has autism and adhd as a joint diagnosis (the autism was diagnosed first). I am told tat I did not snore until after my son was born but am giessing you can have sleep apnoea without snoring too.

 

My Mum definitely has it  - she has to be heard to be believed - how my Dad copes I do not know lol.

 

Terry..... I didn't think it would be through pregnancy, unless your real name's Theresa LOL.

Amanda - yes, the research is very interesting and I'll post more here when I hear it.  ADHD is definitely linked to sleep apnoea - most children are misdiagnosed with this instead of OSA.  Many of these poor children are put on drugs too, which make sleep apnoea worse (same goes for adults being put on anti-depressants and tranquillisers and treated for depression, rather than the sleep deprivation their undiagnosed OSA is causing).   Here's one of many articles on the link with ADHD http://www.help4adhd.org/en/treatment/coexisting/WWK5D  People can definitely have sleep apnoea without snoring, and this is very common with children especially. 

There is also definite evidence that sleep apnoea runs in families too, due to the craniofacial issues, such as large tonsils/adenoids, recessed chin, large uvula, large soft palate, large tongue base etc.  These are obviously things people are born with.  I hope your Mum will seek help now that you've been diagnosed.

Reply to Discussion

RSS

About

Sleep Apnoea Forum

New to the Sleep Apnoea Forum? 

1. Stop by our Sleep Apnoea Welcome Center to introduce yourself to the SleepGuide community.
2. Start a New Topic of Conversation.
3. Post your photos - of yourself, your old CPAP machine, your new CPAP machine, your pet, something about you!

Interested in advertising, have a problem or need to contact us? Click the Report an Issue page.

 

Latest Activity

Jonathan replied to John's discussion Wellu O2 Ring - is it accurate enough for the medics?
"Hi The SleepCube was a private purchase, as way back then my local sleep clinic assessed patients by filming them overnight, whilst wearing an oximeter, and only issued CPAP machines without humidifiers.  There was no remote monitoring and…"
Oct 25
John replied to John's discussion Wellu O2 Ring - is it accurate enough for the medics?
"Yeah I was wondering about email address. I thought probably if they wanted me to mail them they would have given out an address. I can imagine heart data is considered more acute than sleep data, so it would make more sense to have that…"
Oct 24
Jonathan replied to John's discussion Wellu O2 Ring - is it accurate enough for the medics?
"Hi. I didn't use PatientsKnowBest (ironic name), but I have an email address for my heart department for sending in ECGs.  I was just saying that they may be able to review a PDF when then cannot review a data file from your O2 ring. I am…"
Oct 24
John replied to John's discussion Wellu O2 Ring - is it accurate enough for the medics?
"Hi Jonathan, did you do that through PatientKnowsBest?"
Oct 24
Jonathan replied to John's discussion Wellu O2 Ring - is it accurate enough for the medics?
"On an unrelated topic, I've been able to send ECGs by PDF to my heart clinic. On the subject of Resmed and apnoeas, take a look at https://youtu.be/ufOOAfyzZso?si=Tpdl4EEiCQBZR4iD&t=276 Your machine may be under-reporting. Good…"
Oct 24
John posted a discussion

Wellu O2 Ring - is it accurate enough for the medics?

Moving some furniture my long lost O2 ring continuous oxygen saturation monitor turned up. So I've been wearing it and it tells me I have loads of saturation drops during the night even though my Airsense 10 says I have very few apneas.So I get two…See More
Oct 21
Richard Smith replied to Richard Smith's discussion air bubbles after weight loss
"Hi, Just thought I'd give an update.  So, I had my appointment with the NHS sleep clinic which was much quicker than I anticipated and I've now had the overnight sleep study.  My AHI is now 6, down from over 30, so I'm…"
Oct 15
John replied to Sally Gray's discussion Microplastics risks
"Hi Sally from what I read the airsense doesn't suffer the same foam degredation issues as the infamous Phillips machine.I can conceive it's possible that microplastics may be shed from the flexible main tube.What worries me more about the…"
Oct 7
Jonathan replied to Richard Smith's discussion air bubbles after weight loss
"Hi My sleep clinic discharged me, saying they were happy I was self-managing.  Roll on a decade and the cardiologists taking care of me were very unimpressed and I was re-enrolled.  I expect remote monitoring with current generation Resmed…"
Sep 1
Richard Smith replied to Richard Smith's discussion air bubbles after weight loss
"Hi Jonathan, Thanks again for the info.  My cpap *should* be monitored by the NHS though I haven’t had any contact from them since pre-covid.  I checked out the link you gave to access extra data and I think that’s going to be…"
Aug 31
Jonathan replied to Richard Smith's discussion air bubbles after weight loss
"Hi I have the ResMed Airsense 10 Autoset (APAP).  It's monitored remotely by my NHS sleep clinic and I believe they can make changes to the settings.  I don't know whether they are notified if I make changes, nor whether they…"
Aug 31
Richard Smith replied to Richard Smith's discussion air bubbles after weight loss
"Hi Jonathan, Thanks for the reply.  I'd say that I'm fairly technical.  I have the ResMed Airsense 10 Elite machine.  I've discovered that I can upload data wirelessly from my machine and having lowered the pressure by…"
Aug 30
Jonathan replied to Richard Smith's discussion air bubbles after weight loss
"Hi You don't say how technical you are, or what sort of machine you use.  However https://www.sleephq.com/ has software which allows you to upload data from compatible machines, and analyse your sleep "score", including a…"
Aug 29
Richard Smith posted a discussion

air bubbles after weight loss

Hi,I've been on Mounjaro for about 3 months now, not primarily for weight loss, but I have lost weight around my face and neck.  I've noticed that I am increasingly getting air bubbles in my mouth which of course is disturbing my sleep (and my…See More
Aug 28
Sally Gray posted a discussion

Micro plastics risks

I was reading an article in the I newspaper today written by a journalist who had her blood tested for micro plastics and was shocked by the results.…See More
Aug 3
Alison Mitchell is now a member of Hope2SleepGuide
Jul 2
John posted a discussion

job with the charity

Was wondering if there might be a job for me with Hope2Sleep?(I also just asked this of a group by mistake)See More
Jun 27
Tracey Tilley updated their profile
May 22
Sharon Sullivan posted a discussion

For Sale - Ventura Full Total Face CPAP Mask

I’m selling an Ventura Full Total Face CPAP Mask Large and two spare liners.  I bought it new from the Hope2Sleep shop, but it is not suitable for me.  Only used for about two weeks so I have washed it thoroughly.   Because of this, it is very much…See More
May 17
Tracey Tilley replied to Jim Scullion's discussion UK Attendance Allowance
"I put in a claim for PIP which was denied and now I am over 66 and on pension I tried for AA. Denied again.I have other health conditions ( Diverticular disease and Bile Acid Malabsorbtion ) which I consider hard to live with and they refused all of…"
May 14

© 2025   Created by The SleepGuide Crew.   Powered by

Badges  |  Report an Issue  |  Terms of Service