Hope2SleepGuide

Sleep Apnoea Forum Bringing Help + Support to the Patient

Well. I am now three days into CPAP and so far:

I feel more alert and refreshed
My skin is clearer (weird but it is!
I am more clear headed.
I am finding it easier to cope with the challenges my autistic son throws at me. He thinks the mask etc is hilarious, I look like Darth Vader apparently! Cheers kiddo.

A few teething issues but nothing I cannot cope with or tweak.

But- the mask and hose, it's a seriously sexy look isn't it lol. 

Views: 141

Reply to This

Replies to This Discussion

Glad things are going well for you. My son thinks I look like the OOOD from Dr Who!

This is great news already Amanda, and just think of how much better you'll be feeling as time goes on, once your body has been repaid all those years of sleep debt when undiagnosed :)

Incidentally, I have come across a large number of ladies with sleep apnoea who were undiagnosed during pregnancy, and have autistic children and other similar conditions like ADHD etc.  I've not come across any studies yet, but I know research is going on to see if there's a link.  It wouldn't surprise me if there was, bearing in mind how often there is a lack of oxygen to the placenta when we have so many apnoeas in our sleep.  Added to the fact that our undiagnosed sleep apnoea gets worse during pregnancy.  In fact some women only have OSA when pregnant.  Sleep apnoea is like the missing link which escaped all the medics for years, causing so many other health issues.

Heh - glad it's working for you - I used to suffer with unbearably dry and flaky skin that was constantly itchy, and that cleared up for me! 

Amanda, well done so far, probably getting more oxygen is helping all the cells to regenerate. Just wait to see how you are a year down the track, a new woman lol. Kath, just on the pregancy, I had my gallbladder out last year and the number of women on another website I am on that have had theirs removed after pregnancy is amazing. I didnt have mine out because of pregnancy, just in case you thought I did lol.

I had my gallbladder removed 6 months after having my son - weird isn't it?

 

And Kath, that research is interesting especially as autism is so unexplained. My son is fairly high functioning but has autism and adhd as a joint diagnosis (the autism was diagnosed first). I am told tat I did not snore until after my son was born but am giessing you can have sleep apnoea without snoring too.

 

My Mum definitely has it  - she has to be heard to be believed - how my Dad copes I do not know lol.

 

Terry..... I didn't think it would be through pregnancy, unless your real name's Theresa LOL.

Amanda - yes, the research is very interesting and I'll post more here when I hear it.  ADHD is definitely linked to sleep apnoea - most children are misdiagnosed with this instead of OSA.  Many of these poor children are put on drugs too, which make sleep apnoea worse (same goes for adults being put on anti-depressants and tranquillisers and treated for depression, rather than the sleep deprivation their undiagnosed OSA is causing).   Here's one of many articles on the link with ADHD http://www.help4adhd.org/en/treatment/coexisting/WWK5D  People can definitely have sleep apnoea without snoring, and this is very common with children especially. 

There is also definite evidence that sleep apnoea runs in families too, due to the craniofacial issues, such as large tonsils/adenoids, recessed chin, large uvula, large soft palate, large tongue base etc.  These are obviously things people are born with.  I hope your Mum will seek help now that you've been diagnosed.

Reply to Discussion

RSS

About

Sleep Apnoea Forum

New to the Sleep Apnoea Forum? 

1. Stop by our Sleep Apnoea Welcome Center to introduce yourself to the SleepGuide community.
2. Start a New Topic of Conversation.
3. Post your photos - of yourself, your old CPAP machine, your new CPAP machine, your pet, something about you!

Interested in advertising, have a problem or need to contact us? Click the Report an Issue page.

 

Latest Activity

Tracey Tilley updated their profile
May 22
Sharon Sullivan posted a discussion

For Sale - Ventura Full Total Face CPAP Mask

I’m selling an Ventura Full Total Face CPAP Mask Large and two spare liners.  I bought it new from the Hope2Sleep shop, but it is not suitable for me.  Only used for about two weeks so I have washed it thoroughly.   Because of this, it is very much…See More
May 17
Tracey Tilley replied to Jim Scullion's discussion UK Attendance Allowance
"I put in a claim for PIP which was denied and now I am over 66 and on pension I tried for AA. Denied again.I have other health conditions ( Diverticular disease and Bile Acid Malabsorbtion ) which I consider hard to live with and they refused all of…"
May 14
Jonathan replied to Sally Gray's discussion ResMed AirMini for travel
"No personal experience, but CPAP.com review of AirMini The AirMini runs at about 30 decibels, which is about the same sound level as a whispered conversation. For comparison, full-sized CPAPs tend to run around 26-28 decibels. Due to their…"
May 5
Sally Gray posted a discussion

ResMed AirMini for travel

I am considering either buying or renting an AirMini for a forthcoming holiday this month where I will be sharing a twin room. I have read that they’re quite noisy and I don’t want to waste my money on either rental or purchase if the noise level…See More
May 3
Sally Gray replied to Nick Daniel's discussion CPAP Total Face Mask
"Hi, I use a ResMed F20 and had the same issue with the silicone full face mask causing red marks and soreness on my nose bridge. I switched over to the Airtouch memory foam full face masks which are expensive and not supplied by the NHS, but the…"
May 3
Kath Hope replied to Glassdaisy's discussion Soft Cap
"It's very much still relevant and we're getting closer to have them manufactured and has been no easy challenge. In fact we were speaking with the company working with us on this only yesterday. If you're not on our newsletter list…"
Mar 27
Glassdaisy posted a discussion

Soft Cap

some time ago I was told that Hope2Sleep was researching a replacement for the discontinued Soft Cap.. as I have seen nothing to indicate moving forward on this, would I be right in assuming you decided it is no longer relevant?See More
Mar 27
Glassdaisy replied to Nick Daniel's discussion CPAP Total Face Mask
"I expect others may have responded by now, but I use the Fitlife full face mask. I kept getting a hard lump on my nose when first starting out & it got so bad that I ended up buying my own masks as my clinic would only give the Fitlife to new…"
Mar 27
Wendy Anthony is now a member of Hope2SleepGuide
Mar 25
David McDade is now a member of Hope2SleepGuide
Jan 3
Nick Daniel replied to John's discussion Are every small CPAP machines any good?
"Yes, it does the job. I use a Powapacs Atom for portable power "
Dec 18, 2024
John replied to John's discussion Are every small CPAP machines any good?
"Hi Nick thanks. Does it do the job and could you camp with it?"
Dec 18, 2024
Nick Daniel posted a discussion

CPAP Total Face Mask

I was curious whether anyone has used the CPAP Total Face Masks and could pass on their observations? I've been using an Airfit F20 for years which is fine apart from the permanent red mark on the bridge of my nose, and have recently tried the…See More
Dec 17, 2024
Nick Daniel replied to John's discussion Are every small CPAP machines any good?
"I've been using the Resmed Airmini for about 5 years when travelling - overall lightweight and small and can be controlled by an App, but it does produce a loud whistling/wind sound for me which hasn't been reduced by an inline filter or…"
Dec 17, 2024
Greg Lloyd is now a member of Hope2SleepGuide
Dec 6, 2024
Jonathan replied to David Hudson's discussion Pressure waking me up. Belching and wind
"Hi It sounds like you need to have more conversations with your sleep clinic.  There's little point in having a high pressure if it means you cannot tolerate the machine.  There's an interesting video here…"
Dec 1, 2024
David Hudson posted a discussion

Pressure waking me up. Belching and wind

HiI'm using the prisma smart max machine. Initially I was just on a nasal mask, this changed as I was sleeping with my mouth open. I then went to face and nose mask and complained of bad wind and belching. Sometimes the pressure in the night was…See More
Nov 28, 2024
Jonathan replied to Jonathan's discussion ResMed AirSense 10 getting noisy
"Just to tidy this up, I finally had an in-person review by my sleep clinic yesterday, who agreed the ResMed AirSense 10 was "wheezy" and replaced the machine."
Nov 9, 2024
Collette rose replied to Collette rose's discussion 1st time and I’ve failed the mask leak test
"thank you jonathan,i did get the it pack so tried the small and still struggled but i was sat up in bed so will try lying down great suggestion "
Nov 3, 2024

© 2025   Created by The SleepGuide Crew.   Powered by

Badges  |  Report an Issue  |  Terms of Service