Hope2SleepGuide

Sleep Apnoea Forum Bringing Help + Support to the Patient

Well. I am now three days into CPAP and so far:

I feel more alert and refreshed
My skin is clearer (weird but it is!
I am more clear headed.
I am finding it easier to cope with the challenges my autistic son throws at me. He thinks the mask etc is hilarious, I look like Darth Vader apparently! Cheers kiddo.

A few teething issues but nothing I cannot cope with or tweak.

But- the mask and hose, it's a seriously sexy look isn't it lol. 

Views: 118

Reply to This

Replies to This Discussion

Glad things are going well for you. My son thinks I look like the OOOD from Dr Who!

This is great news already Amanda, and just think of how much better you'll be feeling as time goes on, once your body has been repaid all those years of sleep debt when undiagnosed :)

Incidentally, I have come across a large number of ladies with sleep apnoea who were undiagnosed during pregnancy, and have autistic children and other similar conditions like ADHD etc.  I've not come across any studies yet, but I know research is going on to see if there's a link.  It wouldn't surprise me if there was, bearing in mind how often there is a lack of oxygen to the placenta when we have so many apnoeas in our sleep.  Added to the fact that our undiagnosed sleep apnoea gets worse during pregnancy.  In fact some women only have OSA when pregnant.  Sleep apnoea is like the missing link which escaped all the medics for years, causing so many other health issues.

Heh - glad it's working for you - I used to suffer with unbearably dry and flaky skin that was constantly itchy, and that cleared up for me! 

Amanda, well done so far, probably getting more oxygen is helping all the cells to regenerate. Just wait to see how you are a year down the track, a new woman lol. Kath, just on the pregancy, I had my gallbladder out last year and the number of women on another website I am on that have had theirs removed after pregnancy is amazing. I didnt have mine out because of pregnancy, just in case you thought I did lol.

I had my gallbladder removed 6 months after having my son - weird isn't it?

 

And Kath, that research is interesting especially as autism is so unexplained. My son is fairly high functioning but has autism and adhd as a joint diagnosis (the autism was diagnosed first). I am told tat I did not snore until after my son was born but am giessing you can have sleep apnoea without snoring too.

 

My Mum definitely has it  - she has to be heard to be believed - how my Dad copes I do not know lol.

 

Terry..... I didn't think it would be through pregnancy, unless your real name's Theresa LOL.

Amanda - yes, the research is very interesting and I'll post more here when I hear it.  ADHD is definitely linked to sleep apnoea - most children are misdiagnosed with this instead of OSA.  Many of these poor children are put on drugs too, which make sleep apnoea worse (same goes for adults being put on anti-depressants and tranquillisers and treated for depression, rather than the sleep deprivation their undiagnosed OSA is causing).   Here's one of many articles on the link with ADHD http://www.help4adhd.org/en/treatment/coexisting/WWK5D  People can definitely have sleep apnoea without snoring, and this is very common with children especially. 

There is also definite evidence that sleep apnoea runs in families too, due to the craniofacial issues, such as large tonsils/adenoids, recessed chin, large uvula, large soft palate, large tongue base etc.  These are obviously things people are born with.  I hope your Mum will seek help now that you've been diagnosed.

Reply to Discussion

RSS

Sleep Apnoea Forum

New to the Sleep Apnoea Forum? 

1. Stop by our Sleep Apnoea Welcome Center to introduce yourself to the SleepGuide community.
2. Start a New Topic of Conversation.
3. Post your photos - of yourself, your old CPAP machine, your new CPAP machine, your pet, something about you!

Interested in advertising, have a problem or need to contact us? Click the Report an Issue page.

 

Latest Activity

Jonathan replied to Jonathan's discussion ResMed AirSense 10 getting noisy
"Just to tidy this up, I finally had an in-person review by my sleep clinic yesterday, who agreed the ResMed AirSense 10 was "wheezy" and replaced the machine."
Nov 9
Collette rose replied to Collette rose's discussion 1st time and I’ve failed the mask leak test
"thank you jonathan,i did get the it pack so tried the small and still struggled but i was sat up in bed so will try lying down great suggestion "
Nov 3
Jonathan replied to Collette rose's discussion 1st time and I’ve failed the mask leak test
"Hi My first thought is "don't panic"!  We're all a bit different, and there are many things that can be tweaked.  I took to CPAP therapy like a duck to water, but I've had friends who say they can't cope, but…"
Nov 2
Collette rose posted a discussion

1st time and I’ve failed the mask leak test

Hi everyone, today I received my rental kit - prisma smart max, plus a Philips dreamwear mask which I’ve been wearing unconnected to try and get used to it. I just did a mask fit test using a medium mask and got a constant red/orange leak warning…See More
Nov 2
Collette rose is now a member of Hope2SleepGuide
Oct 31
John posted a discussion
Oct 30
Profile IconBill Wright, Nicole Watson, TJ Bennett and 2 more joined Hope2SleepGuide
Oct 29
John replied to John's discussion evil mask noise
"Ha well it lasted a couple of days but started howling again. But it's a step in the right direction, just needs a bit more work."
Oct 24
Jonathan replied to John's discussion Has anyone been told root cause of their OSA?
"Nope, I just accept that some people's throats tend to close when they sleep, due to a loss of muscle tone during deeper sleep.  Back when I was diagnosed, the sleep lab just filmed you whilst you slept, stuck an O2 meter on your finger,…"
Oct 24
Jonathan replied to John's discussion evil mask noise
"Good to know you found a solution!"
Oct 24
John replied to John's discussion Has anyone been told root cause of their OSA?
"Did anyone tell you exactly what the anatomical issue is, Jonathan?"
Oct 21
John replied to Jonathan's discussion ResMed AirSense 10 getting noisy
"Can't say I know about this."
Oct 20
John replied to John's discussion evil mask noise
"So I tore some fabric from one of the filters and glued it over the holes - and it worked!It was dead quiet, and the air was still flowing freely.It was quiet all night then after a few hours a bit of whistling until I gave it a wipe.Vast…"
Oct 19
John replied to John's discussion evil mask noise
"Hi Jonathan, well see my nose is blocked a lot, so I mouth breath which really sucks a lot more moisture and makes my mouth dry. So I put humidity on maximum, which makes for condensation at the mask end, which becomes a demonic reed instrument.Now…"
Oct 17
Jonathan posted a discussion

ResMed AirSense 10 getting noisy

HelloI have an NHS issued ResMed AirSense 10 with heated humidifier.  In the last couple of weeks, it's developed an annoying noise, when I inhale. It bothers me a little and my partner a lot! I sometimes get problems if the water container in the…See More
Oct 16
Jonathan replied to John's discussion evil mask noise
"Hi My first question is why is condensation forming?  I very occasionally get some condensation, may be once a month, but I can quickly run a finger around the inside of the mask, and wipe it away.  I use a nasal mask, with the humidifier…"
Oct 16
John replied to John's discussion What's a good Apnea forum?
"11K+? Ok that's probably where I should look then :-)"
Oct 16
Kath Hope replied to John's discussion What's a good Apnea forum?
"Hi John. Thanks for the compliment as I do my best popping on here, but it's difficult due to us now supporting 25k+ patients at the charity. To be honest, the forum is quiet because most people seem to prefer Facebook and forums aren't as…"
Oct 16
John posted discussions
Oct 16
Jonathan replied to John's discussion Has anyone been told root cause of their OSA?
"There's some information here, but generally it's very common and likely due to our anatomy."
Oct 12

© 2024   Created by The SleepGuide Crew.   Powered by

Badges  |  Report an Issue  |  Terms of Service